Changing Aed's What to Replace It With Posted: 04-21-06 22:54pm
Im getting off the phenobarbital soon.
What's a good med to replace it with.
Meds. I've taken:
lamictal,keppra,topamax,tegretol,dilantin,
depakote no success on these. Pheno has
worked the best but my Dr. Says it's not
a good med to be on. After all that i've
read I have to agree with him.
|
kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 250 Location: Conn
Thanks: 2
Thanked:0
Posted: 04-22-06 17:03pm
I am sorry you have to change meds yet
again. Has nothing helped at all? What
new med is tried depends mostly on what
kinds of seizures you have. If any of
them have helped even a little bit it
might help the neuro see which class has
had the best help. (ie, sodium channel
blocker, gaba inhibiter, etc)....
I hope that you can find a medication that
really helps you this time around.
Have you looked into trying atkins or vns
or to see if you could be a surgery
candidate since meds are not helping?
|
mad_zappy
New User, Becoming EHEALTHy
Joined: 21 Apr 2006 Posts: 5 Location: Seattle,WA
Discription of Patient Posted: 04-22-06 23:10pm
I have clonic tonic and generalized mixed.
I've had 3 right temp. Lope resections
which have helped reduce number and
severity. I was having 2-3 g.M.S daily.
Now down to 4-5 g.M. Monthly. (off
pheno. It's worse) but, it did come at
a price. I lost half my vision, but, it
was worth it. Last operation was last
feb. And has help alot even though I
almost lost the use of my left arm.
Scary! My neuro surg. Was awesome.
Dr. Ojeman at the univ. Of wa.
Excellent staff!!!! I would recommend
this option for anyone with similar
condition to look into this procedure.
Though im not seizure free I think with
the proper med. I can be. I just need
a med. That can replace phenobarbital
with same control. Some meds. I've
tried worked alittle, but, I couldn't take
the side effects.
|
kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 250 Location: Conn
Thanks: 2
Thanked:0
Posted: 04-28-06 13:03pm
Thanks for explainging more.....Have you
looked into any of the newer ones like
neurontin, possibly lyrica I have seen a
few try for some generalized seizures,
zonegran is sometimes used for generalized
seizures ( my daughter was one of them),
felbatol is used for some as well....Seems
like the list is so much shorter for
generalized seizures than it is for
partials....
I am sorry that the surgery was not the
total answer but glad to hear that it did
help.
I hope that it has helped some!!
Hoping that you can find something to help
the rest of the way! I know there are
more medications coming including a newer
version of keppra, a newer zonegran with
fewer side effects. There is mysoline, as
well which is a form of dilantin, I think.
