Stomach & Spleen Pain ?? Part of Lupus? Posted: 04-21-06 14:14pm
Is this part of lupus?? I can feel fine
one minute then wham I have terrible
stomach pains and it feels like my spleen
hurts and is swollen,at this time I also
feel like someone has pulled my plug and I
am totally wiped out, then I either get so
sick I am throwing up or running to the
toilet with diarreah. Is this part of
this illness? I am not going back to see
rhumey until may 10th, but wondered if
anyone else does this and what they have
found out about it. I hate it. I never
know when or where it will strike me.
Please any info would be nice.
This happened last night again, I feel so
whipped today, and everything it aching.
Ugggh
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hapigurl64
New User, Becoming EHEALTHy
Joined: 31 Aug 2006 Posts: 3 Location: Canada
Yes It Is Posted: 08-31-06 13:53pm
Yes, all of the symptoms that you have
described I also get. I am 42 and have
been diagnosed with lupus sle 10 years
ago.
It took the doctors 10 years prior to that
to diagnose me, but I was very glad
because I knew something was wrong with
me.
Are you currently on plaquenil and
antidepressants? I'm taking plaquenil
and celexa and also am using parriet to
control my stomach acids, because that can
keep me awake at night.
I do find that there's certain foods that
I cannot eat, such as processed junk and
greasy stuff. Otherwise, I will be
running to the bathroom with half an hour
of eating them.
Sometimes it feels like someone is
stabbing me on the side of my stomach.
And then it will go away, and not come
back for weeks, this usually happens when
I am on pms.
When you are tired, listen to your
body...Rest and lots of it. Even if you
can only have a 1/2 hour nap here and
there it helps alot.
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kalleykat
New User, Becoming EHEALTHy
Joined: 21 Apr 2006 Posts: 5
Re: Yes It Is Posted: 09-01-06 08:05am
hapigurl64
wrote:
yes, all of the symptoms
that you have described I also get. I
am 42 and have been diagnosed with lupus
sle 10 years ago.
It took the doctors 10 years prior to that
to diagnose me, but I was very glad
because I knew something was wrong with
me.
Are you currently on plaquenil and
antidepressants? I'm taking plaquenil
and celexa and also am using parriet to
control my stomach acids, because that can
keep me awake at night.
I do find that there's certain foods that
I cannot eat, such as processed junk and
greasy stuff. Otherwise, I will be
running to the bathroom with half an hour
of eating them.
Sometimes it feels like someone is
stabbing me on the side of my stomach.
And then it will go away, and not come
back for weeks, this usually happens when
I am on pms.
When you are tired, listen to your
body...Rest and lots of it. Even if
you can only have a 1/2 hour nap here and
there it helps
alot.
yes I am on plaquenil, I alos take
trazodone at night trying to get sleep. I
know that some foods also affect me. The
ones you descibed. And I also end up in
the bathroom with severe pain.
Thank you for answering my posting. I had
all but given up on any replies. My
doctor hasn't tagged me yet with lupus for
sure but she figures I am in the early
stages. I hope and pray it stays that
way.
How were you finally diagnosed ?? I know
it isn't easy for the doctors to decide
what we really have. I also have
fibromyalgia/chronic fatigue so symptoms
overlap. But the blood tests showed there
was more to my symptoms.
|
hapigurl64
New User, Becoming EHEALTHy
Joined: 31 Aug 2006 Posts: 3 Location: Canada
Response to Kalleykat Posted: 09-01-06 14:46pm
Trazodone, is that a sleeping pill?
When I was diagnosed I was also in the
early stages, first my gp thought I had
rheumatoid arthritis because the lab
results came back as connective tissue
disorder.
One of the first signs I had was my
fingers would turn white and go numb in
the winter time, and then once in a while
I would get a low grade fever, then achey
joints and then I was getting to the point
where I was being hospitalized every 3 or
4 months with a high fever. That's when
the doctors did more tests and finally I
was sent to a rheumatologist that
confirmed I had lupus.
Keep on insisting for more tests, because
I was at the point when I was getting so
depressed, I knew something was wrong with
me but I felt like nobody was listening.
I just found this site recently and I am
so glad that I did. I haven't had anyone
that I could talk to about my illness and
it seems like my own boyfriend doesn't
even understand. And I find this very
frustating when the one person that you
need support from won't even give it.
Good luck, I would love to hear from you
again.
|
kalleykat
New User, Becoming EHEALTHy
Joined: 21 Apr 2006 Posts: 5
Posted: 09-05-06 07:49am
Trazadone is actually an antidepressant
that helps me sleep. I take 150mg. And
the zanaflex is a muscle relaxer I take it
with the trazadone. Some nights it works
and others it doesn't.
I have problems with cold weather, can't
even put my hands in cold meat without
pain and a cooler with ice in it kills me.
They turn a blue coller and feel quite
stuff. Its been getting cooler here and
my legs have started aching again. Among
other joints.
It has taken me three doctors before I
could really get any plausable answer to
my symptoms. She takes more tests at
least once or twice a year. I do much
better pain wise in the summer.
I think these illnesses are hard for other
people to understand because we don't look
sick. And they don't understand that our
aches and pains aren't the same as normal
aches and pains. I have gotten to where I
don't even tell people anymore that I am
sick. If they do notice I am slower or
limping then I just say I am tired.
I hate not having the energy I used to
have. I am only 39 and feel much much
older at times. Especially in the winter.
I try and go to curves for women to work
out as I know it is good for me but some
days it is hard and some I just can't do
it. But I keep trying. I will not let
this illness rule my life. I refuse. Lol
Did you ever find out what was causing all
of the sickness from your orignal post?
Because I had been going to a
rhematologist for 2 years and they just
thought I had arthritis, untill I ended up
pretty much just as sick as you were, and
then I found out I had ttp/hus and thats
when they noticed lupus activity too after
doing a kidney biopsy (my kidneys failed
on me for awhile too which also added to
all the illness) how, i'm only 19 and
luckly they pretty much found the lupus
before that had even become that active
and 1 treatment of chemo fixed that for me
for now. But the ttp/hus and kidney
failure wasn't that quick to get fixed,
i'm just really lucky that my kidneys
kicked back in and are now back to normal
and everythings back to normal. But what
caused your being sick? Because I was on
plaquinal (or however its spelt) and
methoprednizone for the joint pain, and I
never got that sick because of the
drugs.