Yes, all of the symptoms that you have described I also get. I am 42 and have been diagnosed with lupus sle 10 years ago.

It took the doctors 10 years prior to that to diagnose me, but I was very glad because I knew something was wrong with me.

Are you currently on plaquenil and antidepressants? I'm taking plaquenil and celexa and also am using parriet to control my stomach acids, because that can keep me awake at night.

I do find that there's certain foods that I cannot eat, such as processed junk and greasy stuff. Otherwise, I will be running to the bathroom with half an hour of eating them.

Sometimes it feels like someone is stabbing me on the side of my stomach. And then it will go away, and not come back for weeks, this usually happens when I am on pms.


When you are tired, listen to your body...Rest and lots of it. Even if you can only have a 1/2 hour nap here and there it helps alot.

yes I am on plaquenil, I alos take trazodone at night trying to get sleep. I know that some foods also affect me. The ones you descibed. And I also end up in the bathroom with severe pain.
Thank you for answering my posting. I had all but given up on any replies. My doctor hasn't tagged me yet with lupus for sure but she figures I am in the early stages. I hope and pray it stays that way.
How were you finally diagnosed ?? I know it isn't easy for the doctors to decide what we really have. I also have fibromyalgia/chronic fatigue so symptoms overlap. But the blood tests showed there was more to my symptoms.

Trazodone, is that a sleeping pill?
When I was diagnosed I was also in the early stages, first my gp thought I had rheumatoid arthritis because the lab results came back as connective tissue disorder.
One of the first signs I had was my fingers would turn white and go numb in the winter time, and then once in a while I would get a low grade fever, then achey joints and then I was getting to the point where I was being hospitalized every 3 or 4 months with a high fever. That's when the doctors did more tests and finally I was sent to a rheumatologist that confirmed I had lupus.


Keep on insisting for more tests, because I was at the point when I was getting so depressed, I knew something was wrong with me but I felt like nobody was listening.

I just found this site recently and I am so glad that I did. I haven't had anyone that I could talk to about my illness and it seems like my own boyfriend doesn't even understand. And I find this very frustating when the one person that you need support from won't even give it.

Good luck, I would love to hear from you again.

Trazadone is actually an antidepressant that helps me sleep. I take 150mg. And the zanaflex is a muscle relaxer I take it with the trazadone. Some nights it works and others it doesn't.

I have problems with cold weather, can't even put my hands in cold meat without pain and a cooler with ice in it kills me. They turn a blue coller and feel quite stuff. Its been getting cooler here and my legs have started aching again. Among other joints.

It has taken me three doctors before I could really get any plausable answer to my symptoms. She takes more tests at least once or twice a year. I do much better pain wise in the summer.


I think these illnesses are hard for other people to understand because we don't look sick. And they don't understand that our aches and pains aren't the same as normal aches and pains. I have gotten to where I don't even tell people anymore that I am sick. If they do notice I am slower or limping then I just say I am tired.

I hate not having the energy I used to have. I am only 39 and feel much much older at times. Especially in the winter. I try and go to curves for women to work out as I know it is good for me but some days it is hard and some I just can't do it. But I keep trying. I will not let this illness rule my life. I refuse. Lol

its good to be able to chat with someone who knows what we are feeling !!

Did you ever find out what was causing all of the sickness from your orignal post? Because I had been going to a rhematologist for 2 years and they just thought I had arthritis, untill I ended up pretty much just as sick as you were, and then I found out I had ttp/hus and thats when they noticed lupus activity too after doing a kidney biopsy (my kidneys failed on me for awhile too which also added to all the illness) how, i'm only 19 and luckly they pretty much found the lupus before that had even become that active and 1 treatment of chemo fixed that for me for now. But the ttp/hus and kidney failure wasn't that quick to get fixed, i'm just really lucky that my kidneys kicked back in and are now back to normal and everythings back to normal. But what caused your being sick? Because I was on plaquinal (or however its spelt) and methoprednizone for the joint pain, and I never got that sick because of the drugs.

Sarah

OMG!!! I have the same problems. I have noticed that certain things I can not eat. Especially greasy food. I am so drain from using the restroom or throwing up, that I can only lay down to recover. I thought it was just me. I was diagnosed with Lupus in 04. I am glad to know it is not just me.

I am sick to my stomach daily, spend hours in the bathroom, have LUPUS (SLE), but my DR. does not think this is a sx of LUPUS???

Hmm. I've just undergone bloodwork for several potential diagnoses. This is the only one that fits like a glove. In the last 2 weeks, I've been in ER for severe photosensitivity and pain under left ribs. Now, pressed on my abdomen, quite painful. Had severe pain under belly button, yesterday, for about 80 min., but it resolved. I have arthritis throughout body and have been on antidepressants for 16 years. I am awake for days and if I sleep, the maximum is 4 hrs (not apnea).I constantly have a stomach ache, which I assumed was caused by my medicine. I have lost 70 lbs in 1 1/2 yrs. I don't see any of you mention a prognosis for this illness. Is it a life-threatening illness or just a nuisance? Thanks for any information you can provide!