Hi! I've got it, too. I hope to hear from other folks out their...I'm on a desperate hunt to end this. Their HAS to be an answer. I'm now at my wits end, and have started mailing every Dr. that has written a paper, or even mentions the word palinopsia or persistence of vision. If there are others out there...let's band together and become a force to be reckoned with. I'm on the search for a Dr. that's willing to take this on...If I find one, I'll let them know there might be more of us coming.
Persistent palinopsia started for me suddenly last November when I started seeing trails behind moving objects. To see what I see, set your mouse settings to "display pointer trails.: I see it always. Nothing seems to make it better or worse. It made me a bit queasy at first. Now it is my constant companion. I could learn to live with it, but....
By February, 2007, I suddenly developed severe photophobia with intense eye pain...which invariably leads to a killer ache above my brow. It has been with me daily, ever since. It's not brightness, but light change which hurts me. I find bright sunny days and fluorescent lighting only mildly painful, while a single low light...even a nightlight...will send me screaming. It feels as if I have sprained the muscles responsible for constricting my pupil. Immediately after being exposed to a change in light, I will feel a cramp in my eye. The cramp is most severe in the eye that is closest to the light source. The headache is always over the affected eye/eyes. One thing of interest I found by accident...the pain is relieved by having my eyes dilated. It seems that removing my eyes ability to adjust to light relieves the pain.
I've been checked by a neurologist....who sent me to a sleep specialist, and an ophthalmologist...who sent me to a neuro-ophthalmologist...who sent me to a different neurologist...who sent me to a retina specialist...who sent me back to the neurologist...who has just sent me to an immunologist and an endocrinologist. I wonder who they'll send me to?
I've had 3 eye exams, an MRI, EEG, and an overnight sleep study, all with normal findings. I've used LSD 3 times....in the 80's....If that's it, it sure took it's own sweet time making me pay for my fun.
You can contact me directly at:
winklemouse@yahoo.com