Hi! I've got it, too. I hope to hear
from other folks out their...I'm on a
desperate hunt to end this. Their HAS to
be an answer. I'm now at my wits end, and
have started mailing every Dr. that has
written a paper, or even mentions the word
palinopsia or persistence of vision. If
there are others out there...let's band
together and become a force to be reckoned
with. I'm on the search for a Dr. that's
willing to take this on...If I find one,
I'll let them know there might be more of
us coming.
Persistent palinopsia started for me
suddenly last November when I started
seeing trails behind moving objects. To
see what I see, set your mouse settings to
"display pointer trails.: I see it
always. Nothing seems to make it better
or worse. It made me a bit queasy at
first. Now it is my constant companion.
I could learn to live with it, but....
By February, 2007, I suddenly developed
severe photophobia with intense eye
pain...which invariably leads to a killer
ache above my brow. It has been with me
daily, ever since. It's not brightness,
but light change which hurts me. I find
bright sunny days and fluorescent lighting
only mildly painful, while a single low
light...even a nightlight...will send me
screaming. It feels as if I have sprained
the muscles responsible for constricting
my pupil. Immediately after being exposed
to a change in light, I will feel a cramp
in my eye. The cramp is most severe in
the eye that is closest to the light
source. The headache is always over the
affected eye/eyes. One thing of interest
I found by accident...the pain is relieved
by having my eyes dilated. It seems that
removing my eyes ability to adjust to
light relieves the pain.
I've been checked by a neurologist....who
sent me to a sleep specialist, and an
ophthalmologist...who sent me to a
neuro-ophthalmologist...who sent me to a
different neurologist...who sent me to a
retina specialist...who sent me back to
the neurologist...who has just sent me to
an immunologist and an endocrinologist. I
wonder who they'll send me to?
I've had 3 eye exams, an MRI, EEG, and an
overnight sleep study, all with normal
findings. I've used LSD 3 times....in
the 80's....If that's it, it sure took
it's own sweet time making me pay for my
fun.
You can contact me directly at:
winkle
mouse@yahoo.com
