I have for the last three years
experienced strange if vague symptoms.
It started with enlarged lymph nodes and
all doctors involved (including
hematologist/oncologist) thought that
surgical biopsy would offer the best means
of diagnosis. The lymph nodes were
diagnosed as having "reactive hyperplasia"
and in a ct scan last month appear to have
resolved themselves. For the last year I
have had bowel troubles, mysterious
swelling in my hip and calf as well as
pain in my groin area (where the lymph
nodes were enlarged). Four months ago,
eye pain, persistent nausea and pain on my
left side just below my rib cage and right
below my clavicle joined the symphony of
symptoms. Two days ago my right upper
arm started having sharp pain accompanied
by swelling that does not change with
tylenol or with motion.
My hematologist/oncologist has released me
from his care, my primary care physician
thought my symptoms to be viral, an
infectious disease specialist and all
diagnostic testing proved other wise and
he seems to not care to try to further
determine what is wrong.
I am 31 and feel like while I am falling
apart physically, these doctors seem to
think that I am too young for there to be
anything physiologically wrong with me.
I think I either need a new pcp who'll be
my advocate, not my adversary in
determining what is wrong with me or to
find a specialist who can help.
Anyone have any ideas for either of those
pursuits? I live in maryland.
