I am so glad I have found this site as it has helped me already to feel less alone but I have a question. I had a total colectomy nearly 10 years ago now with temporary ileostomy and reversal (j pouch I think). Ever since I have had diarrhoea which I understand why but have tried everything under the sun to try and bulk things up but nothing seems to work. My main problem is at night when I have to get up between 2 (good night) and 8 or more times which leaves me really tired - I would give anything to be able to sleep through the night!

Also, and this is hard to write as so embarrassing! Ever since my surgery I seem to have some sort of leaking (faeces) throughout the day when my poo seems to come out my vagina both when I need the loo and when I feel I don't! I have spoken many times to my surgeon about this who said this can't happen as obviously the 2 areas aren't connected and has done tests as well which haven't shown any link. I think he thinks I am going mad now and I have stopped asking him about this.

I hope someone can give me some guidance on this as it is driving me mad with worry and no one seems to understand. I think if I can solve or improve the diarrhoea this would help as the few times my poo is firmer this leaking doesn't happen as much.

Many thanks.