I live in northern wisconsin, am age 14,
and have a condition, in which, doctors
from all over the state have not found an
answer. Maybe you can help me! For 10
months I have been struggling with this
condition. It started with a rash in
april, which was on forearms and and
thighs. Although unknown, it was treated
as lyme's disease, with prednysone, as a
precaution. The rash went away after 2
weeks. Immediately afterwards, I took a 2
week trip to montana, near glacier park,
where I visited a friend. While there, I
discovered a severe loss of balance. I
fell down 4 flights of stairs, fell many
times while walking, and while just
standing. When I returned home, the loss
of balance continued. I was falling at
all times of the day and realized it was
very often. My mother took me to the
clinic, expecting an inner ear infection.
That wasn't the case. For me my blood
pressure drops while my heart rate rises.
During one tilt table test within 2
minutes of starting, my heart rate rose to
136 and my blood pressure dropped to
68/32. One time during an orthostatic
blood pressure taking, my blood pressure
dropped to 49/37.
That does not sound too healthy to
me!!!!!!!!!!!
Here are my symptoms:
~falling while walking and standing-can be
in the middle of a sentence and just drop
to the floor.
~migrane headaches above and behind eyes
~lightheadedness-not dizziness
~joint pain in hips, knees, and ankles
~muscle pain in lower thighs, and calves
~never lost consciousness
i have had a lot of blood taken, a
catscan, an mri, ekg's, eeg's, holter
monitoring.
I had 2 tilt table tests done. The first
one was positive, I was put on florinef.
This seemed to help, but after a while the
symptoms started to increase. I am off of
it now. Currently I am taking verapamil,
licorice root, and am drinking salt water.
I also am now walking with a cane,
because the muscle and joint pain is so
bad. Please remember, I am only 14!
I have doing some research of my own and
have found a similar condition, called
neurally mediated hypotension (nmh). If
you know of anything that fits my
description, or know more about nmh,
please reply!
It has been too long not knowing! I wish
to live a normal teen-age life as best as
possible, please help me do this!
