I am here to just about guarentee you that
most of you will have all or almost all of
your test come back normal and yet be
sick. I almost died because I only had
test done on me that have been tested on
men and lab rats, join the race to take
our health back into our hands and help
spread the news. More women are now
dying of heart disease way over breast
cancer now and I believe many of this is
needless and when they die, I also believe
it will only be listed as miocardial
infraction (not sure of the spelling) but
I think there are a lot of things women
are dying of as far as their hearts that
are not being found and properly treated
in time.
I am posting on here every time I see
symptoms that were like the ones I had but
doctors tend to laugh off or use an excuse
of anxiety, nerves, menopause, etc. To
the first poster, that many missed beats
are not normal, I had those to and believe
me, it is hard to get your nerves better
while this is going on and while each
doctor sends you home. I will almost
guarantee you also that you will get a
clean bill of health from the test they
give you also, I know I did, but I still
had a disease and it was about to kill me,
blocking the left side of my heart off
75%! So how did all my test come back
normal? Because they are still using
test that were only done on men and lab
rats and women's vascular system and
vessels are very different.
You must look things up, know your
symptoms, know what these symptoms can be
hinting at and you tell the doctors what
your opinion is also, you have that right!
As a matter of fact, your life may
depend on it.
After much research, trip after trip to
the hospital, all the test coming back
except for some irregularities in my pulse
but still feeling like I was going to die,
I discovered to many things that looked
like the symptoms I had and the final time
I was taken to the hospital and all I
remember them saying in the ambulance was,
"i think we've lost her' I knew with the
last breath I had, I would demand another
test. They didn't want to do anything
invasive, they only wanted to doctor me
with medicine and send me back home and
tell me all the things I was doing wrong
to cause this, once again, anxiety came in
and menopause. I had written on a piece
of paper - prinzmetal variant angina -
vasospasms and gave it to my husband.
When all was said and done and they
finally did the invasive procedure, sure
enough, the prognosis was, prinzmetal.
Unfortunately there is little that can be
done for this, I am on a lot of medicines,
I have a lot of lifestyle changes to make,
some because I just need to eat and
exercise differently, some because it took
so long for someone to diagnosis me
properly.
Prinzmetal is often called a resting
disease because it becomes very painful to
sleep or even get good rest, a lot of the
symptoms seem to be on the left side of
the body and like one poster said, she
could feel something wrong in the pulse on
her wrist. Boy, was that something I
noticed! I would have beats and then
just a blank, nothing going on. I had
left side numbness on my face and ear,
pain in my neck and jaw, in my shoulder.
Sometimes it seemed to move and in fact it
is, it is different vessels having spasms,
including your heart.
This may not be what you have at all but
what I am saying, especially to the ladies
is, take some of your health concerns into
your own hands, you are not a man or a lab
rat so there has been very little testing
to see how your cardiovascular system
works or how you will react to medicines
normally use. Take a look at post sent
in by some of the males (no offense guys)
but a lot of them say, don't worry about,
it, its perfectly normal, take this
vitamin or eat this food and don't get so
worked up about it..... Well, i'm here
to tell you if you don't get worked up
about it and be informed enough when you
go to take that next test, see that next
doctor or end up in the hospital you may
end up like me, sitting here on the
internet at 4 a.M., taking pain pills, 9
different medicines and wish I had just
been aware of this disease before. I
guess I was just lucky some information I
put in on google search happened to bring
prinzmetal up, I started not to click on
it because I thought it didn't even have
anything to do with the heart, I had never
heard of it and I study health issues all
the time. My wish now and what I am
determined to do is bring awareness to
others out there, especially women because
this is predominately a female disease and
I believe we are going to find some
correlation between not only symptoms but
age factors 40's +/-, time of life,
menopause, problems with the female system
- hormones not in balance, and most
importantly I believe there is a direct
correlation with what is happening in this
persons life, i.E., divorce, relationship
problems, death, depression, job stress,
home stress, financial stress, (pretty
apparent I am saying stress plays a big
part in this). The things I am wanting
to find out, is all those details from
women all across the us and try to form
some kind of a questionnaire for doctors,
nurses and emergency room attendants and
notice how many women are falling through
the cracks as far as heart disease, being
sent home with "the problem is all in your
head prescriptions", or worse yet, not
finding the real culprit and send them
home and something terrible happens and no
one in their family knows why.
Please, help me bring awareness about this
disease, I am contacting the heart
association to washington and women's
groups to help spread the word and getting
on sites like this (which is one of the
best I have seen and why I chose it to
post on)
take heart, take care,
let me know if you have been diagnosed
with prinzmetal or vasospasms
sincerely,
pixie13 (dee)
