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Conditions and Diseases > Lupus Forum > Auto Immune Hepititis
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Q: Auto Immune Hepititis
asked by: Kathryn on January 4th, 2004
New User
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hi everyone!
I am sooo happy I found this sight and have people who understand lupus to talk to. Last jan. I underwent a liver biopsy to confirm my illness - auto immune hepititis. I have since been on prednisone and suffering the side effects of it. My doctor is trying to wean me off of it by also giving me immurane, but no success yet. As we try to reduce the prednisone dosage the liver inflammation flares up!

I suppose i'm on a relatively low dosage of prednisone - 25mg/day. I was wondering how others on a similar dosage were finding it? I have zero energy and find I have to take several naps a day. I have taken a month off work as I find it very difficult to focus and concentrate on a task and my memory also seems to have been affected. I would love to hear if anyone else feels this way.

A fews weeks ago, I developed a purplish rash caused by bleeding under the skin. The doctor performed a skin biopsy and I will get the results in two weeks. They are not sure if it is related to the lupus. Again, anyone else experience this?

Kathryn Confused
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LadyBrannon
replied on January 6th, 2004
Active User, very eHealthy
Hi! Nice to meet you!
I have lots of skin involvement. Let me know how it goes!

As for the prednisone, I have not been below (successfully anyway) 20 mg in over 2 years. I take much higher doses when the lupus decides to act up. I vary from 120mg to 20mg. How do I find it? It sucks, to be quite frank. I, too, take naps most days...Even on good days. I do not sleep well at night, despite taking the steroids in the early morning (which is the way your body naturally releases your steroids).

Memory...A lot of lupus patients complain of memory problems. Do you have a neurologist? My memory loss got out of hand. I just started seeing a new type of neurologist because of possible lupus complications in my brain. *sigh*

it is so nice to meet you. I wish you the best with the biopsy!

Hugs,
ladybrannon
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