Help! Have Been Tested For Epilepsy-what Next?

I live in northern wisconsin, am age 14, and have a condition, in which, doctors from all over the state have not found an answer. Maybe you can help me! For 10 months I have been struggling with this condition. It started with a rash in april, which was on forearms and and thighs. Although unknown, it was treated as lyme's disease, with prednysone, as a precaution. The rash went away after 2 weeks. Immediately afterwards, I took a 2 week trip to montana, near glacier park, where I visited a friend. While there, I discovered a severe loss of balance. I fell down 4 flights of stairs, fell many times while walking, and while just standing. When I returned home, the loss of balance continued. I was falling at all times of the day and realized it was very often. My mother took me to the clinic, expecting an inner ear infection. That wasn't the case. For me my blood pressure drops while my heart rate rises. During one tilt table test within 2 minutes of starting, my heart rate rose to 136 and my blood pressure dropped to 68/32. One time during an orthostatic blood pressure taking, my blood pressure dropped to 49/37.
That does not sound too healthy to me!!!!!!!!!!!
Here are my symptoms:
~falling while walking and standing-can be in the middle of a sentence and just drop to the floor.
~migrane headaches above and behind eyes
~lightheadedness-not dizziness
~joint pain in hips, knees, and ankles
~muscle pain in lower thighs, and calves
~never lost consciousness


i have had a lot of blood taken, a catscan, an mri, ekg's, eeg's, holter monitoring.


I had 2 tilt table tests done. The first one was positive, I was put on florinef. This seemed to help, but after a while the symptoms started to increase. I am off of it now. Currently I am taking verapamil, licorice root, and am drinking salt water. I also am now walking with a cane, because the muscle and joint pain is so bad. Please remember, I am only 14!


I have doing some research of my own and have found a similar condition, called neurally mediated hypotension (nmh). If you know of anything that fits my description, or know more about nmh, please reply!



It has been too long not knowing! I wish to live a normal teen-age life as best as possible, please help me do this!