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Q: Family Help
asked by: kgentle on March 23rd, 2006
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I have mixed connective tissue disease. It is very similar to lupus, but since it is more rare, there are not the same support systems out there. I often fall back on the lupus forums for support when needed.

I have been diagnosed for 5 years now, and I am still able to work full time. I am a mommy of 3, and very busy (very tired!). I take enbrel (tnf inhibit), metho, piroxicam, etc.

Because of my disease and my medication, I catch every cold, flu, virus, infection, etc. That I am exposed to. I get sick so much. My husband and children rarely got sick until I started getting sick. Now they are sick all the time.

I already have to miss so much work due to my illness, but then I have to miss even more to take care of a sick family. Then they make me sick again...And it all starts over.

So my question is this. Is there something I can do to make a difference? We are big hand washers, and I try to feed them well. We isolate mommy to the extent possible everytime I am sick. What else can we do? Is there an air purifier or something like that on the market that reduces the germs in the air? Is there a special vitamin that kids can take that will help their immune systems (they already take a multivitamin)?

Any ideas, success stories, etc....Would be appreciated.
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FNAjill
replied on June 12th, 2006
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Diet
I have lupus, and recently completely changed my diet. I follow a "whole foods" vegan diet. It has only been 3 months, but already I feel great and I have reduced my medication. I feel the need to share this information because I know that a change in diet has worked for many people with auto-immune disorders. My suggestion is to check out Dr. Joel fuhrman's books "eat to live" and "disease proof your child". It is a strict diet to follow, but it can help your ctd, and is a great healthy way of life for the whole family!
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