Hello! My daughter has the same symptoms as you have...It is called the nutcracker syndrome. A vein is being pinched by another vein and artery and causing blood in her urine and sharp pain under her left rib cage. Google on it. You can even google the image of it. My daugher was diagnosed after a ct scan. As for the treatment...??? We are in limbo...Good luck.

If there is anyone who has information about this disorder,or who may have this same disorder please let me know. My name jodi and I also have this rare disorder called the nutcracker syndrome. It is painful. The doctors' I have been seeing don't have alot of info. About this disorder. I also have another problem, I am currently pregnant, not very far along. The doctors say that if I try to carry this baby I could die. If they don't know much about this disorder how do they know I could die? So if anyone else has this disorder and has been pregnant, please tell me about your story or the situation.

Sorry I can't help here, but I do have some advice. Don't list your email address on this site! Tell people to pm you with info, but if you have your email here you will get spammed like you wont believe. If I were you I would edit it out. But, just a suggestion.

Thank you!!!!

Ur welcome!

I agree with the reply about nutcracker syndrome. But you actually asked, is there any other kidney diseases that come on suddenly?

Let me say this. Iga nephropathy for instance isnt sudden, but the patient feels that it is. Life has went along fine (no idea blood was in urine) and suddenly,,,,,,,,,the kidneys are inflammed..Etc....


Alport's , the patient might have some hearing/vision probs but are not linking it in their minds to whats happening in their backs, therefore, again it will feel as if it came on suddenly, when in fact your born with it.

There are alot of glom. Diseases and I dont feel comfy telling you it is nutcracker syndrome, you need to do a 24 hour urine to test for blood/protein/and some other levels.....It will tell all.

I also have the rib pain,,,,,,,,even wondered if it were cancer in my ribs....I was told iga nephropathy, now I know its alport's.

Please make certain of your diagnosis....Its your life honey and you have a right to know. 24 hr urine will rule out any kidney disease/

hope this helped and p.S. I know what that pain is like,,its dreadful!

Kimmyk

I've had the same nagging pain , left side, under my ribs. Like between my last ribs and my hip. It's been going on for about 3 months now and i'm a little worried. My dad lost a kidney as a child so kidney issues scare me. My side is sensitive to the touch. No bleeding anywhere though.

The biopsy did not reveal alports' but during biopsy they found I was retaining urine, so off to urologist I went, to find I had a neruogenic bladder (nerve dead), let me say that if you feel your not completely voiding you need to have this checked. The urologist is the one who suspected ms first. It will backwash into kidneys and therefore mimic a kidney disease.

You probably dont have ms, but I do.

Thought id let you know! Just in case!

Much love and hope,

kim

I know exactly what you are talking about. When I was in 9th grade I started noticing blood in my urine. I went to a nephrologist and they did cat scans, biopsy's, blood work, etc. You name it I got tested for it. I was diagnosed with thin membrane disease. Years passed and I noticed more and more blood. It got to the point where I could barely walk up a flight of stairs. I was getting iron tranfusions every 6 weeks and blood transfusions every 2 weeks. My face was drained of all life. In college I began experiencing extreme pain in my left kidney and large blood clots that sent me to the emergency room. I began researching thin membrane disease and didnt have any of the symptoms I was having. I got a new doctor in Indianapolis and he agreed. I was referred to the Cleveland Clinic, where after 11 years they performed each test over. Everything was normal again except they could only see blood coming from my left kidney. They finally figured out I had Nutcracker Syndrome. It was a nightmare but now I am feeling great and healthy.

Welcome and it's great to hear you fought to get answers and are feeling better..

I have retroaortic left renal vein "nutcracker syndrome" that showed up on my MRI/CT. I have had pain in the left flank and buttock down my leg, swelling of the left leg, pain upon urinating, frequency, urgency, back pain, and a very cold stomach. The symptoms are aggravated when my back is aggravated. It showed up in my early forties, though my left kidny is enlarged so I suspect its onset was really in my late twenties, but just wasn't as bad as now. I hope theywill fix it surgically as I'm limited in walking and the pain is bad. I would like to talk to others who have this. It is extremely rare, but can develop as a consequence of other diseases. I suspect mine is a birth defect since I had repeated kidney infections and problems as a three and four year old. I am glad to hear that the original poster is doing better and I am here if anyone wants to converse.

I was diagnosed with a degenerated disc 4 yrs ago. i had low back pain, though not constant. It has been constant since i slipped on stairs & fell on tailbone 3 months ago. i can barely get out of bed in the morning. the pain is on my left side.. lower back, down my left leg. i have not been back to doctor due to no health coverage. could this be an organ problem?

You should go to the Emergency room. They have to see you. They need to check you out. Sometimes its a pinched nerve but it can get really bad and even be disfiguring. I hope you get some health insurance, but I would go anyway. You can end up incontinent or numb from this stuff, and you may have other damage or may even have a fracture. They have to provide some care and you need to follow up the way they say. You may have to pay some out of pocket, but that happens even if you have health insurance.

Hi,

I've had left side pain for 2 1/2 yrs now! In april I was admitted to the hospital because of blood in the urine and my CT scan came back as though I had the Nutcracker Syndrome. Well, a vascular surgeon saw me and told me I was fine, although my pressure gradient in that vein was at a 7! it's supposed to be 3 or below. So I went home, still hurting, VERY VERY FATIGUE, and finally got in to see a kidney specialist. My kidney had grown a bunch since my first CT scan a year ago. We did a 24hr urine and that came back great! She told me that she was certain I had the Nutcracker Syndrome and referred me to a surgeon. He saw me and within a week put a stent in. Which was good, because my pressure was then at a 14! I have to now get ultrasounds every 3 months to make sure the stent is in place, but if it doesnt work, it's surgery. Please don't give up if you are hurting! I saw so many Drs. and had so many different dx's, like Irritable Bowel Syndrome, Crohns Disease, that I was Crazy!!