:cry: I have not been formally diagnosed with this illness yet, as I have had to move from one province to another (in canada) before I could get the final diagnosis; however, I do suffer from most of the symptoms of fibromyalgia, and since the onset (or should I say "onslaught") of this disease, I have been literally going through hell. It has been over a year now that I have been suffering with little to no relief, other than nsaids, which I had to quit taking due to severe side effects. Nothing else has been offered since then, and now that I am dealing with doctors in the walk-in clinics, they will not help me with this. I am waiting to see a dr who I think will finally be able to refer me to the specialist (rheumatologist) here, but it is still a waiting game while I suffer. There are literally no doctors taking new patients here, so I am left to fight the symptoms with whatever I can purchase over-the-counter, which isn't much since i'm on welfare now that I can't work. I would love to hear from others who are suffering with this bizarre illness. I need support. I also have been tested for rheumatoid arthritis and possibly ankylosing spondylitis (rare in women), and have always suffered from severe and frequent migraines. Now that I have moved back to ontario, I find out migraine meds are not covered under the welfare plan here, and they are $70 for six pills (generic). I feel completely abandoned by the medical system here and like no one cares. I am in high levels of pain every day and don't know what i'm hanging onto anymore. Poor people might as well shoot themselves in this province, we do not have a voice and we do not matter, no matter how much pain we are in. It is very depressing. Any words of encouragement would be gratefully received. Thanks for listening.
Hello maggie..........You are right about the medical system being unfair to poor people. I havent been diagnosed with fibro but it runs in my family . Ive been tested for other things...Arthritis-lupus-rheumatism and now my family doctor will be sending me for a bone scan--then a rhumatalogist. Ive seen what my sister went through and she is still dealing with. They had put her on steroids, meds for the pain ...And it realy screwed up her system. And if you dont have a family physician, you end up with doctors who just pass you quickly without any feeling towards your problems. I am one who hates taking medication, my stomack just cant tolarate them. So dont give up, you may be alone to suffer but knowing others have the same problem and can help with ideas to alleviate the pain your going through should give you comfort. My sister has now taken up yoga and stretching excersise, she puts heat on her back and legs cause thats where its the worse for her. Because of the pain she has trouble sleeping and she was taking pills for that...Now she drink green tea during the day and at night she drinks chamomile tea, it has realy help us both. Hope this helps . Good luck
Thanks, edina, for your response. I know I am not alone in suffering with this illness, it just feels like i'm alone and battling the whole world, medically, all by myself. I have found out there is a fibromyalgia support group here, so I will try to start attending the meetings. I have also heard of someone who did get disability approved on fibromyalgia alone, here in sudbury, and she has the same specialist I am trying to get referred to, so there is some hope there too.
I do use heat therapy, but would have to stay laying on the heating pad all day to be pain-free, and I wish I could, but do have to get up and do things sometimes. Nothing seems to help this when I ache all over, though, and even a hot shower or bath only gives minimal relief for a very short time. It hardly seems worth the trouble once i've gotten all undressed and then dressed again afterwards, i'm still exhausted and in pain. I am trying to stay positive that I will eventually get what I need, but the days are so long with chronic pain, even when I don't get up til noon. I do appreciate the words of encouragement, though, and thank you for responding. I hope you also find your way to relief and I pray for everyone who is battling this isidious illness.
hi my name is Holly, i am new to this site and i havent been diagnosed yet with fibro it as well runs in my family and i have experienced the symptoms for the last 3 yrs although i am blessed with a family dr i dont know what good its done for me since he refuses to help me and refuses to refer me to anyone and i am so tired i am on odsp due to other medical issues and i as well feel very hopeless i dont know what to do anymore any suggestions or specilists that you know of who might take new patients without a referal would be very helpful like ontario works (welfare) my odsp (disability) is very limited to covering medication...and i am a single mom with two boys who have special needs so i try to take it day by day but its getting hard like i said any advice and support would be much appreciated thank you!!!