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After the Thyroidectomy......what Next ...... ?

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Larry D.

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After the Thyroidectomy......what Next ...... ?
Posted: 03-20-06 11:05am

So, some of us have had a thyroidectomy for different reasons. But, thyroidectomies have the same risks, and removal procedures. I would like to have this post deal with, and I shall start, different experiences that you have lived in the aftermath, issues, resolutions, or even good stories.

I, personally, am trying to find out about partial facial nerve paralysis. Since my thyroidectomy, 2 weeks old, about 65 % of my right cheek is numb to feeling, and my right ear is at about the same. In my opinion there should be something that I could possibly do to help the proper healing of these areas. I realize that this is a fresh surgery, but let's face it. It is exactly that, a surgery and has to be delt with. So anyone that has any suggestions that I can work from, I would appreciate hearing from you.

Sincerely

larry
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Larry D.

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Joined: 20 Mar 2006
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Update For the Curious
Posted: 04-21-06 00:51am

Well, for those who might wonder, thyroidetomy on march 13th, now april 21, I have tried gently messaging the cheek area and ear. Come to find out, the doctor had not cut any nerves during surgery but only stretched a few very well, thank you very much...Lol
the right side of my face is about at 40 % numb today and feeling it heal differently every day. However my ear is still about the same. The doc assures me that it will get back into place with time.... As the swelling goes down at incision level, circulation will resume and even if it takes a few years, it will get better.


Larry

lllllyrb
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Larry D.

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Joined: 20 Mar 2006
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Posted: 05-07-06 12:04pm

May 7th, not much difference in the sensations in my face and ear. The nerve that was stretched during surgery is now tolerable. I can actually shave quite easily. Might sound funny for some but very frustrating for me!! Lol. The 9th of may, going for my rai treatment. Doc says it should last only 2 days compared to three or four. Something about my system is stronger. But will only be able to determine on the second day of the treatment depending on how much radio activity still in my body. Says I should start taking synthroid on may 10th if all goes well. Returned to work on may 3rd. And driving everyone crazy including myself!@! Besides this, all is well and going forward. So keep hanging in there taking it one bite at a time.

Sincerely

larry
love life let life love you right back...
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Larry D.

New User, Becoming EHEALTHy
Joined: 20 Mar 2006
Posts: 41
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Posted: 05-11-06 22:25pm

May 11th, 2 day journey is at an end. Lasted 48 hours as guessed by the doc. Smart fellow him I say..... Never ran to the bathroom as often as I did in these 2 days. Man they were talking about putting the taxes up because I used too much water !!!!
Jokes aside, hang on. Even 2 days in solitude is a lot. I walked in there head high, and raring to get this thing done. Got it done all right. Of course good food and fantastic staff helped a lot. Imagine, my own private nurse and she can't even enter my room !!! Hu ! Like, not fair ! Lol
one thing for sure,.... A lot of time to think. Lots of it. Too much...
Going for another body scan on may 16th, and then i'll know for sure if I can go back to stressing myself with my j.O.B. Or I continue with this cancer. One thing for sure. I never wish this upon any human being, however survivable it is. And there still are people that are worst off than i. You're going through the forums, look around........

Sincerely

larry
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Larry D.

New User, Becoming EHEALTHy
Joined: 20 Mar 2006
Posts: 41
Location: ,

Posted: 05-17-06 18:47pm

Ok....... Last bady scan done, still found three spots. Doc says treatment very successfull. Good concentration of iodine within the three spots. Now he suggests that we close book for one full year and reopen next year. We just leave the treatment do what has to be done. Hooooo yeaaaaaaah !!!!!!!
We got the sucker just where we want him. Should be cancer free next year. Should.......
Now I am left to my synthroid , .............. And my life !!!!
I have noticed that there has been many readers to this post. I could've writen much more precisely what I have felt, gone through, my deepesst thoughts. But you know how sometimes we'll tell someone," well that was just a little too much information" and laugh it off? Well I did not want to offend any readers, there are oyung people also who look up these forums, and others whom just would not want to know.
So I thank everyone that took the time to stop in and just read this post. The num,bers were there. Even though I don't have your names, which I don't want no offense, it served to me as therapy to just share with someone else with same interests. I hope that my compressed journey with papilary cancer has brought you something to help you in whatever way possible. I mean this from the bottom of my heart when I thank you for reading up on this.
Love life let life love you right back
it's great !!!! Right tapcrav ???????

Sincerely
larry
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Larry D.

New User, Becoming EHEALTHy
Joined: 20 Mar 2006
Posts: 41
Location: ,

Posted: 05-17-06 18:53pm

For those more daring and more curious, you can read the full version of my journey's diary still unfinished , on my personal blog at
http://larry.Dedjoker.Googlepages. Com/cancersupportandinformationcenter

and I hope I have the right to do this.........

Larry
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Larry D.

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Joined: 20 Mar 2006
Posts: 41
Location: ,

Posted: 06-15-06 16:40pm

You know what the difference between having cancer and not ? There is none. I have had cancer and it only means that I am still alive. Through all the rollercoasters that I have been on, this is the most wicked one of all !! It does not go away. It is very real, and really affects your life for ever. It is there to stay. Like anything else that I will see in my life, it will determine what kind of person I will become in the futur. It will help define my caracter. And hopefully understand why this happened to me. But I still tell everyone, trying to convince myself that it's just a walk in the park. It's not. So to you all hang tight and you will survive.

Sincerely

larry
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tapcrav

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Joined: 09 Mar 2006
Posts: 17
Location: Reading PA
Right Larry
Posted: 06-15-06 16:49pm

Hi again just read up on your posts. Hang in there larry remember the first time for me was 93 and now again in 06 but the doc seems to think an rai should do the trick. Right larry also my left ear was numb for two days after surgery. Hang tight
pat c
bless you
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Larry D.

New User, Becoming EHEALTHy
Joined: 20 Mar 2006
Posts: 41
Location: ,

Posted: 06-21-06 20:17pm

Eh

yup the right side of my face is still numb to the touch. Always sensitive, evenhard to shave!!! At least I have an excuse lol.....
It will come hopefully sooner than later.
Talk toyou soon pat
angels are still guarding...... We're the proof....

Take care

larry
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tapcrav

New User, Becoming EHEALTHy
Joined: 09 Mar 2006
Posts: 17
Location: Reading PA
After the Thyroidectomy
Posted: 06-21-06 21:00pm

Hey larry guess what....Did I tell you the lymphnodes they removed had no cancer in them. I called the pathologist that processed the biopsy today and he said yes you still have thyroid cancer and it must be somewhere else. Now i'm really scared since they found the nodules in my lungs. Just thot I would update you.
God bless you
pat
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Larry D.

New User, Becoming EHEALTHy
Joined: 20 Mar 2006
Posts: 41
Location: ,

Posted: 06-26-06 09:16am

Tks for the update pat. Hopefully the doc's wrong in sayign that it must be elsewhere's. No offense to him of course. How are things really going there? Is everyone able to cope? Hope all goes well. Keep in touch please........
Think we both need the input lol :wink:

as far as I am concerned the doc has increase the synthroid to 125/day. Will check up on me within a month's time to follow the level of my ths. So I guess over all I can't really complain. Still alive right? Doc was laughing the last time I spoke to him about me being tired all the time. That's one thing that I appreciate from him though. His sense of humour. It's obvious that he is concerned, because he called me at home , at night. Office was closed so he follows up on his patients. But he still keeps a happy note to his stuff.

Later pat
god bless

larry
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Larry D.

New User, Becoming EHEALTHy
Joined: 20 Mar 2006
Posts: 41
Location: ,

Posted: 08-22-06 14:34pm

August 22,2006
still hanging on. Very different way of thinking. I now take life much more seriously and react in so many particular ways. I still have issues with my surgery, however very good healing process. The right side of my face is still numb to the touch however coming around. My neck also is very sensitive to any pressure when it touches the nerve. I now finally see a big difference since march, obviously. Sounds logical right? It is, but it's not easy still. I still take my hat off to all those whom have experienced and survived an ordeal. No matter what it was. Since I have had my surgery, I have found and spoken to so many people tht have the cancer, it's unreal. Seems like there is someone else in the same boat on a regular basis. Too many people iknow!
It's funny though how it has affected my every day life. Much much less patient, much more serious about stuff, I don't find things funny aymore. Like I aged about ten years in about five months. Life will nevver be the same. However I comfort myself because there are many people out there that are in worst situations that I am in.
So having said this, I continue my journey and pray that god will look over me and all those in need.

To survive

larry d.
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Larry D.

New User, Becoming EHEALTHy
Joined: 20 Mar 2006
Posts: 41
Location: ,

Posted: 09-24-06 10:27am

Hello y'all
september 24th and all is well. The right side of my face is seriously coming around and the feeling is coming back to it. The synthroid has been adjusted, I think, to a proper level and things are getting back to what normal was a year ago. This, 6 months later. So to all, hang tight and things will get back....

Larry
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Richard Day Gore

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Posted: 11-22-06 08:13am

Hi larry,
hang in there. It can be a long adjustment, but many people (myself included) will tell you that one day you'll suddenly be aware that you haven't thought about "it" for a while. It's just something you get used to, believe it or not.
Regards and best wishes,
richard day gore
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Larry D.

New User, Becoming EHEALTHy
Joined: 20 Mar 2006
Posts: 41
Location: ,

Posted: 04-09-07 16:33pm

Hello there,
You are right Richard..... It kinda grows on you after a while. Not that it is ok, but you just get used to living with or without it, what ever the case may be. The thought however that stays in my mind, " Is it going to come back at me?" Not having this stop my daily activities now, but still a thought that remains. I appreciate your thougts. May we live long and old lives .......

The one thing that is not right is that it feels like I relive the worry again. In may is my first round at yearly follow ups, scan and so on. You should, I believe recognise the process. It's like going over it again. But not as bad. Because I already know what I do and don't have. It won't be a surprise.
Again tks



Larry D.
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Larry D.

New User, Becoming EHEALTHy
Joined: 20 Mar 2006
Posts: 41
Location: ,

Posted: 05-25-07 07:38am

Well good day I could say, I have gone for muy RAI sccan yesterday and doc gave me a clean bill of health for one year. Thank you guardian angels.
So life does get better after the fact after all. Thought I would share thiss with all so sprinkle a little light at the end of your tunnel maybe.

God bless all ......


Larry D.
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Larry D.

New User, Becoming EHEALTHy
Joined: 20 Mar 2006
Posts: 41
Location: ,

Posted: 09-09-07 14:35pm

Hey everyone,
It's me again, still hanging around. Been a while since I've had my therapy so here goes. Been doing not too bad. Still woking at finding the proper med strength. Doc can't add, lol. Having my mood swings still, testing out my wife's patience. She's actually doing pretty good too !!
Have had other cancer activities going on inside, but everything seems to be under control or so they tell me. Somehow easier to live through it now. Acceptance is the first step I guess.....

Basically, I seriously would like to thank everyone who offered support to me on this. Espescially Pat. I'm finally adjusting to this and am realising that even though there are many miles between us....... you have really helped me see this thing through..

THANK YOU

On the road to recovery.......

God bless
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Richard Day Gore

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Joined: 22 Nov 2006
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Posted: 09-10-07 21:04pm

Hi Larry,

Man, are you onto something: acceptance isn't just the first step--it's a HUGE super important step and if you are reaching it then you are way ahead on the path of getting on with your life.

Thanks for the update. Keep 'em coming.

Regards,
Richard Day Gore
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