I have had a thyroidectomy due to papillary thyroid cancer and the removal of surrounding lymphnodes. I have been under dr care since the surgery in 1992. A few weeks ago I became ill with a painful lump on the right side of my throat thatradiated into my ear. I was sick for about 3 weeks with this. A couple weeks later the left side of my throat gave me the same problem. I am scheduled for a radioactive iodine scan in june again. I just had one last june. On march 22nd I am going for a second opinion. I am very worried that the cancer is back. Do these new symptoms sound like warning signs of a reoccurance
How did your second opinion go march 22nd??
Any different news than what you thought or had????
How far up did the incision go for thyroidectomy surgery in 92 ??? Was it up behind the ear or underneath the collar bone??
In case I miss you, good luck in june with your rai scan.......
:cry: dear larry d.
Just read your reply to my question and my reply is yes it is cancer again. :( I am scheduled to see a surgeon on the 8th of may for surgery. I had a biopsy and it was found in the left limphnode so please now is the time to wish me luck!! :roll: thank you for your reply and your copncern.
My deapest and heartfelt thoughts are with you. By all means I wish that all of your guardian angels and mine are watching over you. Now is the time !!! I will be praying for you. Good luck pat. Hope to hear from you soon.
I hope you all are doing well - you're in my prayers! Tap, if it isn't a recurrence, it could be mumps!...As bad as that can be, it's better than a recurrence
i'm a breast cancer survivor, so have periodic pet scans for one thing or another...In 2002, a scan showed a 'small focal uptake' in the thyroid - a blood test and quick iodine scan showed nothing (and at that time I didn't research the fact that if it's shown on pet, a biopsy must be done). Then, in jan of this year, I had another pet scan - wanted to change meds for bone growth, but because forteo can hasten cancers in the bone, wanted a bone scan to make sure there were no mets (from the breast cancer) - the bone scan was suspicious, so a pet scan was done. Luckily, it negated the bone scan, but...It showed an explosion of growth and fdg uptake in my right thyroid (a rew nodules in left too) with uptake in a few lymph nodes and into neck tissues. Before the pet my regular onco had noticed some lumps in neck, ordered an ultrasound (last fall) and did some blood work in feb or mar. Inbetween that is when I had the pet scan, and it showed the large growth and high fdg uptake. I went to my 2nd opinion onco, who said "yep, let's get a biopsy" - which showed suspicion of malignacy for hurthle cell cancer. Yesterday, the right lobe of my thyroid was removed for more definitive pathology (apparently with hurthle cell and follicular cell, needle biopsies aren't accurate). So, now, just like everyone else, it's the waiting game!
I hope you are all well, and doing fine! Thank god I can work out of my home! I had to go on disability april of last year due to multiple medical problems, but get a few xtra dollars/month consulting (fixing) computers and doing some minor web design.
thank you for your kind thoughts. Very well appreciated. As I can only speak for myself, I am doing great as per the doc. I am officially off the hook for another year where I will be returning for another scan to follow up on the remaining cancer and to find out if the treatment did it's job. The iodine absorbtion by the remainding cancer/ thyroid gland pieces, was excellent, well concentrated and now we wait.
Now as I read your story, and as I understand it, you say that "" it showed an explosion of growth and fdg uptake in my right thyroid (a rew nodules in left too) with uptake in a few lymph nodes and into neck tissues
"" and also you state that "" yesterday, the right lobe of my thyroid was removed for more definitive pathology (apparently with hurthle cell and follicular cell, needle biopsies aren't accurate)"" ?????????
I am sorry but just do not understand ! If both sides of your thyroid are affected, they perform surgery to do a lobotomy, then for what to go back and take the other side out???? How many surgeries do they need to solve this??
Don't get me wrong. I am no doctor, by far!!! But ....... Did they really explain this to you? And the outcome's possibilities? At this point in my opinion you should, and I hope you do, ask questions and demand answers if they haven't supplied you what you need to know. Maybe my doctor was too confident through out my processing, but I can't even start imagining that he would've known about the two lobes affected and take only oen out, to possibly return to take the other side out later.
Ido not mean any disrespect to no one, but make sure you have the right facts from these doctors.
I wish you all the luck in the world grannymac. You might want to check on the www.Thyca.Org site for detailed info on thyroid gland diseases. Have a peak at this web site also http://larry.Dedjoker.Googlepages.Com/canc
for my story and the process involved, of course remembering that everyone's situation varies.
Yes too all concerned surgery was a success and will follow up in about a month with rai @ cm mass removed from left side of neck and went well according to doc. Was told very happily that this type of cancer is not the type you will die from. Feeling pretty positive right about now you all and thanks for your support!!
i don't know you but thank you for your prayers because they really helped. I went to fox chase on the 29th of aug amd was told the tumor in my lung is a secondary papillary thyroid tumor which measures 1 inch and is not a primary lung cancer tumor as I was led to believe hear in reading. I must go back down to have it removed but I am so very relieved that it is not stage 1 lung cancer and can be treated. Also there is no thyroid cancer anywhere else in my body so of course I am also relieved there. Once again I thank you for your prayers and yes there is a god eh????
just wanted you too know the surgery in my neck was negative for thyroid cancer. The biopsy was a false positive they told me down in philadelphia at fox chase and if you read any of the recent posts you will see what they did find . I thank you all for your kind prayers and support throughout this stressfull time in my life. I will continue to go down to phila. For surgery and all follow up treatment. Just did not like what they were putting me through here at home and had to travel.
God bless you and hope all is well with you
i am so happy that all is well with you, or should I say better than anticipated. As I read your reply I had goose bumps go all over me. Been so long since I have been checking these posts. It's good to hear from you though. I thank you for the update and sppreciate you still communicating with me.
As far as I am concerned, it's been a rough ride as you surely know yourself. Getting used to the idea that it did happen to me. Finally. Still have a few struggles once in a while. But the right side of my face is coming around real fine. Very encouraging. They, I think, finally adjusted the synthroid on a proper level. So things are smoothening out. Over all, I still consider myself lucky. Still have my family and most of my health lol.
Again, it's wonderfull to hear from you again.
Take care pat
Hey tapcrav! Just thought you might like to hear from a long term thyroid cancer survivor who's alive 'n' !**@!' after many years. We take a licking and keep on ticking. Good luck with it all.
Love and prayers,
richard day gore
Hi All. Thank you for sharing your experience and thank you Larry for sharing your personal experience on your site. You all are so so brave to have endured this cancer with grace. Not so sure i can...
I discovered a bump on my neck a year ago and was referred to a endocrinologist. I had an blood test (normal), ultrasound (2 nodules) and a FNA biopsy which came back benign....phew! However, I went in for my annual check up recently and had another blood test (normal), ultrasound (which showed no changes) & a 2nd biopsy (which showed cells consistent with papillary carcinoma). I was called at work and given the news that results showed atypical cells and recommendation to refer me to a head and neck surgeon for thyroidectomy. I tried to ask some questions about how definitive the results were and got no where. I made an appointment with a surgeon on May 10th and hope that he/she will be able to answer questions and also give me other options... I am scared to death of having surgery (thyroidectomy) and have even considered that it may be worth not to as I am not sure what my quality of life will be like.....
I have done a lot of on-line research which does not answer the many questions I personally have. For example, how reliable the pathology results are of my biopsy or would it be worth if for an initial surgery to just remove the tumors to exam for accuracy of cancer... I am hoping that I will be able to drum up enough courage to get through this as I find myself crying at the mere thought of having this cancer and how this will change my life.
Hey JK, good to hear from you.
Don't forget that you are the only owner of your body. If you're not sure, in myopinion, you should not do anything. I would want to know what is going on with my body. You also have the option to a second opinion. Just like bringing your car to a garage for repairs. are you going to let the mechanic start changing parts without you knowing why????
Hang in there. Results were negative so far so hope for the best
I so stressed out right now. 4 months ago my pcp found a nodule on the lower right lobe of my thyroid. all blood work was normal except for elevated thyroid antibodies. followed up with uptake scan which showed a 7 x 11 mm nodule recommended biopsy. i was sent to an endo and he wanted to watch it for three months because of its size. four months later her we are and it has grown to 8.4mm x 12.1. ultrasound was done and my endo said he really did not like what he saw on the ultrasound and a fnb was done right then. today he called with the results. he said the pathologist (several looked at this) would not tag it as cancer but said it was very suspicious. it is multicellular. i asked what cells were present and he did not want to answer but i pressed him anyway and Hurthle cell was one that was mentioned. he would not tell me any others. he is referring me to a surgeon and i have the option of removing half with the possibility of having to remove the other half or the entire thyroid. what do you all think?