to Those Living With Cholinergic Urticaria.... Posted: 03-09-06 18:18pm
I wanted to start a thread wondering how
you guys go along your daily lives. I'm
21 and have only had it for a couple
months but its getting so bad that my life
has pretty much stopped. I had to quit my
job for now, i'm not going to school, and
I can barely leave the house. I can't go
out with friends anymore because it's
gotten so bad. Stress/anxiety has a lot
to do with mine and can trigger it
anytime. It went from being a discomfort/
itchiness to the worst physical pain i've
ever felt. It's spread to my legs and the
pain is unbelieveable. How do you guys
live your lives like this?
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pimnation
New User, Becoming EHEALTHy
Joined: 22 Mar 2006 Posts: 3 Location: Waterloo
Posted: 03-22-06 18:38pm
Hey cfm7, I also suffer severely from
cholinergic urticaria. They have yet to
stop my life as much as they have yours,
but then again I have very accepting
friends and i've come to terms with
looking sort of weird every now and then.
As far as living with it I really haven't
i've had it since about grade 11 and i'm
now in my 2nd year of university. I was
hoping by now they would have disappered,
but no luck. Recently with the end of
winter, they have gotten much worse but I
believe it is due in part to the thawing
of the ground, putting all the crap that
was frozen in the snow airbourne. Also
the budding of trees and renewal of
growing season for most allergenic plants
probably worsened the reacitons, which now
occur in severe forms over 3 times a day.
As far as a cure, well i've seen every
specialist and tried every method and
nothing works. I am soon entering
homeopathic regimens and i'll keep you
posted with the results. As far as
medicational regimens depending on
seasonality the following worked for me:
1. Winter: zaditen (ketofen fumuarte) 6
tablets daily - 3 before bed, 3
mid-afternoon
2. Rest of the year: benadryll (3 a day)
and allegra (24 hour non-drowsy - 2
tablets before bed and 2 mid afternoon)
hope some of this helps you and at the
least gives you comfort knowing you are
not alone.
Sincerely
... Pim brouwers
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ehealthforumuser
New User, Becoming EHEALTHy
Joined: 28 Nov 2004 Posts: 39
Posted: 03-24-06 23:12pm
I can tell you for nearly 95% of the
urticaria people I have talked to on this
forum, they all get fixed when they start
getting rid of laundry detergent.
Use baking soda to wash your clothes and
toss away all your old clothes. Buy all
new clothes, bed sheets, pillow cases
anything that touch your body.
My best guess right now is that the
laundry detergent residue stays on your
skin and are practically invisible. And
when you go under heat/high temperature,
the residue falls right in while your skin
pores just open up.
