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Q: Sensory Integration And Eating
asked by: mks on March 9th, 2006
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I have read a lot about sensory integration. I found out about this disorder when I was searching "textures and food". I am an extremely "picky" eater. There are only a few foods that I will or have ever eaten. I do not mean picky like, "i don't eat green beans" I mean picky like; I have never eaten a hamburger, hotdog, pizza, vegetable, etc. I am not "choosy" to lose weight or avoid weight and do not consider my disorder anorexia or bulimia but for me it is an eating disorder and I can't find help for it, or anyone else with it, nor a name for it. I have been told to see a psychiatrist and I did. After one visit, he diagnosed me with ocd tendencies and wanted to give me a rx which I did not take. I do have ocd tendencies like counting, organizing, cleaning but they are not out of control or in control of my life. I am just a clean and organized person. I am however, out of control and frustrated with my non-eating. Doctors tell me that I am healthy and if I tell them I am picky they just tell me to take vitamins to make sure I am getting all of the nutrients that I need. Well, that is fine, but at this point in my life it is more of a quality of life issue than anything. I can only go to two fast food places when my friends go because only two have the chicken nuggets or grilled cheese that I will eat. My husband will eat anything, but for us to go to a restaurant we have to go to one of the very few that will let me order off the kid's menu which has chicken strips/nuggets or a grilled cheese. And, the fact that I have eaten a grilled cheese sandwich or chicken nuggets every single day for as long as I can remember, would be an understatement to say that I am tired of them. I don't like thick chicken nuggets or soggy buttered bread either.

I can not make myself eat other foods though. I do not want mushy food, I do not eat vegetables and the only fruits I eat are apples and banannas on occasion. I will eat cereal but not if it has too much milk or is already soggy. My mom said that even as an infant I would only swallow two or three baby foods no matter how many she tried to give me. My parents and brother eat "normally". Mom also said that if I could "squish" the food with my finger (highchair age...) I wouldn't eat it. I think that my issue is the texture of foods or maybe there is something wrong with my stomach or intestines, etc. Someone once jokingly said that I have overactive tastebuds. Maybe that is it. All of the research I have done about the sensory integration sounds like me though. The kinds of things that are borderline ocd stuff which makes me feel like I was misdiagnosed. I hate tags/seams on clothes to rub me. I have to go to the extreme to feel satisfied in life or to get a thrill (like with skydiving, flying, skiing). Any advice is welcome. This is so odd that most doctors won't sit long enough to hear it all or they do not even know about Dr. Aeyers (sp?) sensory theories.
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Users who thank mks for this post: momofpickyeater 
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weathergirl47
replied on December 17th, 2007
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Sounds Sort of Like Me
Some of the things you describe sound a lot like me (need, clean, hate seams on clothing, only eat grilled cheese, chicken nuggets, ordering off the childrens menu, etc). I am now starting to have a bigger problem with food because I moved to another country and the food sucks. Now I am losing weight with an already very low BMI; now my appetite is almost completely gone. I choose to try and solve my own problem before seeking medical attention because the doctors are not very good here.
By no means am I qualified to express my medical opinions, however, I agree with the fact that it sounds like you do not have OCD.
If I come across anything that may help us out, I will forward it to you. Thank you for sharing your story.
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purrfection
replied on January 1st, 2008
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I have kind of similar problems. My parents have always laughed it off and it has become like a joke in my family. Most foods I can't eat because I either think its too old (I cant eat something more than a day old it has to be just bought from the shops or made) before I eat something I have to examine it and if I see something that looks like mould or just something that I decide is a bit odd (even if everyone reassures me it is meant to be there I cant eat it) I was at a restaurant last night and I couldn't eat my food because I convinced myself the cutlery andn plate were dirty and the food just disgusted me for some reason.

One of the main things is that I decide foods or even water has a taste to it and i cant eat it... Like I will say "I can''t eat this it tastes like dust" or "it tastes like sweat or mould"

Even if I really want to eat the food i cant bring myself to do it. Sometimes I just end up not eating anything or I have to resort to a safe food like a new packet of biscuits.

I also can't eat anything that is in a can or tin... I don't know why.
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Users who thank purrfection for this post: momofpickyeater 
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momofpickyeater
replied on August 8th, 2008
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Doctors won't take excessive picky eating seriously
I have two boys ages 3 1/2 and 10. My oldest son has always had sensory processing issues. He had severe acid reflux also. I have always been told that he would grow out of it. It has gotten to the point that I am starting to take him to see a food pychologist. My three year old is following in the same pattern. Chicken nugget, french fries, yogurt, apple sauce etc. I mean I have to really get creative to get them to eat what they do. They even eat so much of what they do like that they get sick of it. I have tried all the tricks: faces on the plate with food, rewards, and letting them go hungary. It has become a major issue. Both boys tell me they do not like something just by looking at it. I have heard of Automatic Negative Thought process that makes people automatically not want to try something. They do not eat with us because they do not want to see, smell, or taste "our food". Help!
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ccinla
replied on February 16th, 2009
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I can relate to so much of what was written here. I am sensory defensive and so are my two daughters. One has a pretty severe eating issue and started seeing an Occupational Therapist in December of 08. For my stuff, I have adapted, however with my daughters eating issues, it's so much more complex. I found a few books on this and were recommended a few by the OT. It's helpful just knowing that there are other people like me in the world.
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bluigirlncancun
replied on October 18th, 2009
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I feel like I have finally hit the jackpot reading these post. I have a five year old daughter that has a severe tactile disorder. It started with food, then seems,tags and shoes. Now smells and loud noises bother her as well. We went FAITHFULLY to OT for a year and no progress on her part. But I learned alot about SID and it made my life a little easier dealing with her. I have always wanted to get some info from adults with this . She has lived on poptarts, chicken nuggets, and cheetos for 3 years now. Shopping for clothes and shoes or eating in a restaurant are absolute nightmares for her. I sure would like to hear what I could do to make life easier and some other form of early intervention. What would you have wished your parents have done or not done to help you? what do you do now to get relief? Please respond to a desperate mother
thanks
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bexlax09
replied on November 20th, 2009
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Eating disorder-texture
I have a 13 year old son that eats identical to the woman who started this thread...it is extremely frustrating. I have another son, 2 yrs older that ate the same way until he was 10 or 11 and then finally he just started eating the dinners that I made with the rest of the family...hooray! But, my youngest son is really having difficulties. He is the smallest of my four sons by a foot and 1/2 atleast..I attribute this to his lack of eating healthy food all of these years. We eat at the dinner table every night...I cook dinners with meat, vegetables, starch etc...nothing crazy..no spicy foods...nothing fancy, just regular food..but he will sit there and stare at the food, cry, ask a million times what is in it, heat..reheat..reheat..reheat over and over, saying that he is going to eat it and never does. Right now, he is still claiming that he will eat his dinner and has asked that I not throw it away, but the rest of the family ate 3 hours ago and his now looks disgusting even to me! He's gone to the bathroom a couple of times, re-arranged the chairs, complained of a stomach ache, checked on his brothers who went to play games long ago...but keeps coming back to the plate moving the food a little bit and staring some more. My heart breaks for him...a 13 yr old boy that is a great athlete and popular at school during the day, but a sad and confused little boy every night at home. I made an appointment with a psychologist in 2 weeks, but they don't specialize in eating disorders (but do list it as something they treat). I wonder if they will be able to help..I have been diagnosed with OCD, but mild...I have a 14 yr old with OCD and Tourette's and his twin has tics, but not Tourette's. My 15 yr old had Tourette's as well, but he outgrew it. My husband also has had tics. Has anyone heard of any of these diagnoses having anything to do with an eating disorder? We are a very twitchy kind of family, but the child with the eating problems is the only one that has never been "twitchy" at all. I hope that maybe this ties together something for anyone experiencing the same problem, maybe we could piece together these symptoms to determine what might be causing it and hopefully someone might have some kind of idea about what has helped in the past. One last thing, we have never eaten pork or beef in our house and it seems that plenty of people eat all kinds of things that I would never touch...dates are huge for me too and if it is even close to the expiration date, I toss it...But I do eat...plenty Smile!
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kyle12346
replied 9 hours and 33 minutes ago
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i think i have the same problem. i have mild aspergers and it says one of the symptoms is sensory integration dysfunction. im a 16 year old guy and have been eating pizza and chicken nuggets for 8 years. i only drink water. i wont wear clothing that has any thing on it. i have tried other foods that lots of people of i know like and most of the time ill end up spitting it out because it feels weird. ill eat cereal without anything like milk on it. i will not eat cheese by itself but i will eat pizza with cheese. ill eat pepperonis only on pizza but wont eat them if there square pepperonis. i hate eating out and it makes me feel uncomfortable because of the little amount of things i eat. i grow sick of foods and end up eating something similar. whats worked best for me is rotating between which foods i eat during the day so i don't get sick of them as fast. i really want help with this but cant find anything. i wish i could eat normally like everyone else i know it would make life a lot easier.
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