Epilepsy Forum - When Do You Tell?????

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Q: When Do You Tell?????

asked by: dixxie916 on December 31st, 2003

New User

my best friend has a 14 year old son who is about to start
high school next year, he has epilepsy, and she has never told
him. Unfortantly his best friend just killed himself, and I am
afraid that this extra stress will cause him to have an attack.
I have told her many times that she needs to tell him, he is also
very over weight and I believe that this needs to be kept an
eye on for his sake. I don't know enough about epilepsy
(actully very little) and I dont think that she does either. Where can
i go to get her the information that may change her mind. I realize
that I might seem incredibly nosey, but I worry for his health.
Any advice will be great.... Thanks

Replies(8)

phil dennison

replied on January 6th, 2004

Experienced User

Why

The boy needs to know who he is.
Life will be easier if he knows.
Mommy why is school so hard? Son part of your brain is dead.
Mommy will I get better ? No son
mommy what will be when I grow up ? Son you be a good person.
Mommy what the best way to live with this. No no no no stress.
Mommy should my friends know. Yes everyone should.

mbrumitgm

replied on January 8th, 2004

New User

Tell my child that part of her brain is dead??? I don't think so because it simply isn't. It just works differently that a "normal" persons. Dead??? Ask you neurologist please or read a book about it. It's not dead it just misfires.

phil dennison

replied on January 8th, 2004

Experienced User

Your wrong

i hate the neurologist.

They do nothing for you.

I would be shocked, if your doctor knows you from the last visit.

I am 36 I had brain surgery.

I am free, free at last.

bubble1

replied on January 18th, 2004

New User

Finding Out More About Epilepsy

Hi dixxie

a good way of finding out more about epilepsy is to visit www.Epilespy.Org.Uk

i hope your friend does tell her son that he has epilespy. I had epilespy for 3 years before it was diagnosed and it was a very confusing and scary time. When I was diagnosed, I was so releived to find out what was wrong with me. I have no doubts that your friend's son will be feeling very confused and the web-site i've given you has information for parents whose children have epilepsy.

Hope this helps.

san54

replied on January 18th, 2004

Experienced User

When Do You Tell

He needs to be told now. He is old enough to handle it and he needs to start being pro-active with his illness.

MickeyFan

replied on January 28th, 2004

Experienced User

It's Something You Can't Hide From.....

If you have a seizure disorder you can not ignore it. You need to educate yourself and your family and friends about it. (schools too if its a child) there are many places to get info from here are just a few:

epilepsyfoundation.Org

or call them at 800-332-1000 they will help find the info your looking for, I have called them myself many times asking questions about different things. Mostly about my meds and the side effects.

Epilepsyinstitute.Org/
epilepsytoronto.Org/index.Html

i hope this helps.....

jamal

replied on January 29th, 2004

Experienced User

Please Tell Him

Get on the website and look up amy sturdevant story. It will help you and your child. I have epy to it hit me when I was 38 now i'm 44. God bless jamie

jamal

replied on January 29th, 2004

Experienced User

Please Tell Him

Get on the website and look up amy sturdevant story. It will help you and your child. I have epy to it hit me when I was 38 now i'm 44. God bless jamie

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