Epilepsy Forum - When Do You Tell?????
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When Do You Tell?????
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dixxie916

New User, Becoming EHEALTHy
Joined: 31 Dec 2003
Posts: 1
Location: Sacramento
When Do You Tell?????
Posted: 12-31-03 02:02am
Question
my best friend has a 14 year old son who is about to start
high school next year, he has epilepsy, and she has never told
him. Unfortantly his best friend just killed himself, and I am
afraid that this extra stress will cause him to have an attack.
I have told her many times that she needs to tell him, he is also
very over weight and I believe that this needs to be kept an
eye on for his sake. I don't know enough about epilepsy
(actully very little) and I dont think that she does either. Where can
i go to get her the information that may change her mind. I realize
that I might seem incredibly nosey, but I worry for his health.
Any advice will be great.... Thanks
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phil dennison

Experienced User , Rather EHEALTHy
Joined: 14 Nov 2003
Posts: 71
Location: illinois
Why
Posted: 01-06-04 05:01am
The boy needs to know who he is.
Life will be easier if he knows.
Mommy why is school so hard? Son part of your brain is dead.
Mommy will I get better ? No son
mommy what will be when I grow up ? Son you be a good person.
Mommy what the best way to live with this. No no no no stress.
Mommy should my friends know. Yes everyone should.
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mbrumitgm

New User, Becoming EHEALTHy
Joined: 08 Jan 2004
Posts: 4

Posted: 01-08-04 13:49pm
Tell my child that part of her brain is dead??? I don't think so because it simply isn't. It just works differently that a "normal" persons. Dead??? Ask you neurologist please or read a book about it. It's not dead it just misfires.
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phil dennison

Experienced User , Rather EHEALTHy
Joined: 14 Nov 2003
Posts: 71
Location: illinois

Posted: 01-08-04 20:35pm
Your wrong

i hate the neurologist.

They do nothing for you.

I would be shocked, if your doctor knows you from the last visit.

I am 36 I had brain surgery.

I am free, free at last.
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bubble1

New User, Becoming EHEALTHy
Joined: 17 Jan 2004
Posts: 16
Finding Out More About Epilepsy
Posted: 01-18-04 14:53pm
Hi dixxie

a good way of finding out more about epilepsy is to visit www.Epilespy.Org.Uk

i hope your friend does tell her son that he has epilespy. I had epilespy for 3 years before it was diagnosed and it was a very confusing and scary time. When I was diagnosed, I was so releived to find out what was wrong with me. I have no doubts that your friend's son will be feeling very confused and the web-site i've given you has information for parents whose children have epilepsy.

Hope this helps.
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san54

Experienced User , Rather EHEALTHy
Joined: 28 Dec 2003
Posts: 227
Location: Virginia
When Do You Tell
Posted: 01-18-04 15:52pm
He needs to be told now. He is old enough to handle it and he needs to start being pro-active with his illness.
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MickeyFan

Experienced User , Rather EHEALTHy
Joined: 28 Jan 2004
Posts: 73
Location: Algonac, Mi.
Thanks: 1
Thanked:0
It's Something You Can't Hide From.....
Posted: 01-28-04 15:34pm
If you have a seizure disorder you can not ignore it. You need to educate yourself and your family and friends about it. (schools too if its a child) there are many places to get info from here are just a few:

epilepsyfoundation.Org

or call them at 800-332-1000 they will help find the info your looking for, I have called them myself many times asking questions about different things. Mostly about my meds and the side effects.

Epilepsyinstitute.Org/
epilepsytoronto.Org/index.Html

i hope this helps.....
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jamal

Experienced User , Rather EHEALTHy
Joined: 05 Nov 2003
Posts: 60
Location: oroville,Ca
Please Tell Him
Posted: 01-29-04 15:14pm
Get on the efn ca@epilepsynorcal.Org website and look up amy sturdevant story. It will help you and your child. I have epy to it hit me when I was 38 now i'm 44. God bless jamie
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jamal

Experienced User , Rather EHEALTHy
Joined: 05 Nov 2003
Posts: 60
Location: oroville,Ca
Please Tell Him
Posted: 01-29-04 15:15pm
Get on the efn ca@epilepsynorcal.Org website and look up amy sturdevant story. It will help you and your child. I have epy to it hit me when I was 38 now i'm 44. God bless jamie
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Alice in Wonderland

New User, Becoming EHEALTHy
Joined: 07 Feb 2004
Posts: 46

Posted: 02-07-04 19:08pm
Another good site is http://www.Epilepsy.Com

aiwl
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