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Cml... Anyone???

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I was diagnosed with cml 1/12/06. I am taking gleevec and my wbc went from 69,000 to 5,000 since on gleevec. I would love to hear from other people with cml and how they are doing. I am doing pretty good but on an emotional roller coaster some days. In 6 months I am having another bone marrow biopsy to check for changes in my chromosones. I pray that the numbers are down. Nothing prepared me for this and it was such a shock. I went to the dr the friday before xmas for severe diarhea(viral infection unrelated to cml) and they did a cbc at that time. My white count was 60,000 and they sent me to the lab for more tests. A few days after xmas I am at the oncologist being told he thought I had cml. A couple days later a bone marrow biopsy was done and then the "official" dianosis. Somehow I knew though as soon as they said that about my wbc the first day. I am a nurse but have never worked oncology. But I knew I was not sick other than fatigue, and I had a round of elevated wbc last year that came back down with antibiotics. I feel blessed to have caught it early and to have medication that can help control it. I am trying to cope with all the unknowns. Its a waiting game and I am not a patient patient. Sometimes I wake up scared remembering I have cml. Most of the time I cope well. I really need some feedback from others with this disease. Thanks for your time......
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replied November 13th, 2009
hello Sweetne$$
are you still visiting this forum?I have cml also since june 2009 and would like to talk to someone else, i am on glivec also.
thank you
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replied May 22nd, 2010
hi Sweetne$$...
I am having cml since october 2007. When it was diagnosed, my wbc was in 3,20,000. I am having Glivec 400 mg...now by God's grace everything is normal. I do BCR/ABL test once in 6 months... Got 0% this time... By God's grace, everything is fine... Belief in God and in myself has given me the strength to fight against the disease...Completely trust in Him...He can take away any illness from us... Go Bless...
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replied May 22nd, 2010
hi Sweetne$$...
I am having cml since october 2007. When it was diagnosed, my wbc was in 3,20,000. I am having Glivec 400 mg...now by God's grace everything is normal. I do BCR/ABL test once in 6 months... Got 0% this time... By God's grace, everything is fine... Belief in God and in myself has given me the strength to fight against the disease...Completely trust in Him...He can take away any illness from us... Go Bless...
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replied June 3rd, 2010
hi sweetness
im oce, i v got cml since june 2004. i still use hydrea 500m 3 times a day.
now im fine.

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