Teen Pregnancy Forum - Dylan Is Back In the N.i.c.u. It's a Scary World In There...

Pregnancy Forum > Teen Pregnancy Forum > Dylan Is Back In the N.i.c.u. It's a Scary World In There...

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Q: Dylan Is Back In the N.i.c.u. It's a Scary World In There...

asked by: Carrie-Lucie on March 1st, 2006

Experienced User

Dil took a step back last night when they could not extubate him after a collapsed lung (pneumothorax) - he is still intubated now. He has moved back to the critical care neonatal intensive care unit as a ct scan diagnosed a grade 3 (iii) intraventricular hemorrhage. He also had two seizures in the night, I would have given anything to see him out of pain.

This morning they tried extubating him and failed, he also made little response to painful stimulation. The grade of hemorrhage and tests the next day (today) show that he could be either severely or mildly disabled... These could include blindness, deafness, loss of movement, slow speech, behavioural problems etc. There is a 70% chance he will have some kind of disability only time will tell. I'm in shock, I am finding it very difficult to be at the hospital with him even though I know I should be. I keep bursting into tears at a nappy advert on tv or seeing a baby or pregnant lady as I just want dil to be ok.

Sorry for venting it all here - I am so deeply shocked I dont think it has properly hit me yet. Thanks, carrie

Replies(8)

Kimmeh

replied on March 1st, 2006

Active User, very eHealthy

I'm sorry carrie! Sounds like scary stuff!! I hope that everything will be okay for you guys though, and I have a feeling he'll come through to the other side exceeding everyones expectations. He's a fighter and I think he has plans on shocking everyone, for a long time to come.

yellow ribbon

replied on March 1st, 2006

Especially eHealthy

Carrie im so sorry I had to put macy down and couldnt listen to u vent! I know it hard not to worry but uve got to know uve done all ucan and its in medical science and .Gods( if you believe) hands now. Ill pray that the little fighter makes it!

~*~Jillian~*~

replied on March 1st, 2006

Extremely eHealthy

Aww im so sorry to hear that...Just keep your head up ..And yeah I know its hard...But im sure things will be great in the end...He is a strong lil man :wink: I will be praying for you and baby!!

Jolie_3110

replied on March 1st, 2006

Extremely eHealthy

Carrie stay strong, I am sorry to hear about your little man, try not to be so hard on yourself, yes your baby does need you for support but you need someone too. Good luck to you and dylan!

Carrie-Lucie

replied on March 2nd, 2006

Experienced User

Dil Is Off the Vent...

Well dil today was ok(ish) off the vent - he is also scoring higher on the muscle tone tests - like when they push against his leg and see if he reacts, he now has a miminal (how comes I have so much trouble spelling that word???) reflex... Apparently thats a good sign.

He is also making more of an effort to stop them poking him - like; they tried to canulate him and he was aware of it cos his pulse changed - another good thing as (even though I hate to see him distressed) he was able to feel it. These new things basically rule out things like motor disablility (severe) and lack of pain sensation.

So far all good news. I held him again today :) and so did his dad and we were even more in awe of him... He's definitely stubborn.

Lalee

replied on March 2nd, 2006

Active User, very eHealthy

Good for him! The doctors are taking care of him... You and your hubby take care of yourselves. You need to be strong to be there for him. But it sounds like he's charging right through! What a trooper. ;)

michelle1981

replied on March 2nd, 2006

Supporter

Oh carrie, this can only make you, your husband and that beautiful little boy stronger!

I'm so happy and relieved for you all that some of the extremes have been ruled out.

You all are in my thoughts and prayers!

yellow ribbon

replied on March 2nd, 2006

Especially eHealthy

Im so happy! Thats great that hes doing so much better and I no it sucks to see any baby yours or not in pain but just remember babies have short memories and he wont remember a thing (about the pain I mean im sure he knows who u are cuz he heard ur voice in utero)

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