Hi there.I started having siezures 6 years ago,after I gave birth to my daughter.I was pescribed a load of drugs,1 including phenytoin.I have never been diagnosed as epileptic but I have taken many aed's.
Recently I have started to see a new neuro.He has started to change my meds.Something he is desperate to do is get me off the phenytoin.I am on 300mg a night.The begining of last month I tried to reduce it,100mg a time.For 3 weeks I was fine but then I started to have some really bad siezures,2 a night.As a result I am back up to 300mg phenytoin.My neuro thinks I have reacted so bad because I have been on this drug for so long.It is very addictive,therefor very hard to stop taking.The thought is there that my body has got used to taking a bunch of drugs it doesn't really need.
I'm sorry if this isn't what you wanted to hear and I suppose every individual is different.But what I have learned is that phenytoin is a dangerous drug in the long run.
Good luck.