Epilepsy Forum - Phenytoin Withdrawel's

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Q: Phenytoin Withdrawel's

asked by: shelbe on February 13th, 2006

New User

Hey there.Recently I started to reduce my dose of 300mg phenytoin per day (on the advice of my doc).Things were going well for 3 weeks but suddenly things started to go wrong.I never expected it to be plain sailing but what I have experienced over the past 2 weeks has been hell.And I can only put it down to my body having withdrawel symptoms through not receiving the phenytoin.I have been having 2 siezures every other night,i'm walking around with what I can only describe as a constant head rush,i feel i'm gonna fall all the time and I can't be alone.
Has anyone else who has came off phenytoin,suffered anything like this? :cry:

Replies(1)

shelbe

replied on February 14th, 2006

New User

Hey Cwe

Hey cwe,thanks alot for your reply.It was a real interesting read.One thing I have learned over the past couple of years.....The doc's/consultants are only useful for mild advice.To be honest,at the moment I feel like a human guinee pig.My consultants wants me to stop this/try that,at first I thought it was all good.Only now iv realised something,my doc is only interested in changing my meds to help him in his career.When I say its not working for me,he's not interested.I have to scream and shout to be listened to. :cry:

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