Carpal Tunnel Syndrome Forum - Before I Go Jump Off a Bridge....
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Before I Go Jump Off a Bridge....

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TikkiRo

New User, Becoming EHEALTHy
Joined: 11 Feb 2006
Posts: 2
Location: Belfast N. Ireland UK
Before I Go Jump Off a Bridge....
Posted: 02-11-06 10:35am

Metaphorically speaking - as suicide isn't in my code of beliefs but have to say it's the first time in a decade of chronic pain conditions including cancer and bone pain, that i've been debating the fact that if I wasn't a christian, I would be considering my options on how to leave this world early on account of the unreal, absolutely dire, horrendous (and 20 other major descriptors) pain i'm undergoing just now. I've a hx of lupus, sjogren's syndrome, fibromyalgia and a load of other problems incl avascular necrosis (which causes the bone pain) and just this week been diagnosed with cts. My problems with the latter started suddenly just 3 months ago, and have seemingly escalated during that short space of time to now be so severe as to require surgery. Daytime I have the usual hand numbness & pins/needles etc, but minimal pain apart from a more recent shoulder problem that's just adding in to the mix. Like many others here no doubt, my real and severe problems start within 15 mins of going to bed or more precisely of settling down to sleep. From there on it's like ww10 begins in my arms and hands, with the worst pain (told it's nerve) imaginable welting in and torturing me. This is despite being on 30 mg of oxycontin, 10 of oxynorm (the fast acting), and 300 mg of lyrica along with ibuprofen (minimal as i've problems taking it - so rarely manage more than 400 mg) and finally lathering myself with all the anti-inflammatory gels of the day. At the onset of the problems when it was considered to be a possible brachial plexus issue, I was given a soft neck collar which did alleviate some of the pain overnight - now for whatever reason, it escalates it! Having just spent most of last night in tears trying to find some position to alleviate the dire deadness in my hands, and firewall pain in the arms to no avail, I truly don't know how to consider going to bed again tonight, yet am utterly exhausted from this onslaught. The bone pain of multiple infarcts in the right arm isn't helping much either, as the lack of sleep is exacerbating those, along with the fms pain too, so pretty miserable all roads. Anyone else have this type of experience (to any degree) and can it be purely indicative of severe cts as the ncs indicated? And would you reckon a doc might have anything better in his arsenal to provide me to alleviate some of this madness perhaps? Truly need some encouragement on this problem, as it's the first one i've run into with nothing helping me. At least the oc works for the bone pain fairly well, but nothing is denting this much, atlhough again, I should perhaps clarify that the lyrica did seem to work really well the first 3 nights I took it (at the lower dose of 75 mg!) yet now isn't working even on the higher doses!! Anyone provide me with some measure of sanity in this insane situation please :cry: :cry:
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IMShirl

Experienced User , Rather EHEALTHy
Joined: 30 Mar 2005
Posts: 204
Location: Wisconsin, USA
Thanks: 1
Thanked:0
Looking For Support?
Posted: 03-16-06 17:34pm

Come check us out at. :d we are a wonderful group of supportive people. We are called spine and beyond and can be found at:

http://spineyat42.Conforums.Com /
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TikkiRo

New User, Becoming EHEALTHy
Joined: 11 Feb 2006
Posts: 2
Location: Belfast N. Ireland UK
Tks
Posted: 03-16-06 17:42pm

Thank you so much for taking the time you have to reply. Just subscribing to that forum as I write here. Since I wrote that msg thankfully my gp had some sense and put me on a short course of steroids for 2 wks, but sadly now 2 wks off them i'm pretty much back to where I was a month or two ago, although perhaps not quite at that dire place yet where I want to contemplate jumping off any bridges soon :d. And since it seems nobody else on this forum was interested in supporting me too much in my deepest time of need, i'll move on to yours instead :) . Thanks again.
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IMShirl

Experienced User , Rather EHEALTHy
Joined: 30 Mar 2005
Posts: 204
Location: Wisconsin, USA
Thanks: 1
Thanked:0

Posted: 03-16-06 17:47pm

You are so welcome! I just posted a welcome to you over there. :wink:
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