Ok mommies and daddies. You are not alone. In fact, we have THREE little ones with this problem. For all of them it started about a month after they got teeth and could bite. It is possible it has been happening before teeth, but they cant gum their tongue and make it bleed.
We have a two year old and twin 10 month olds.
Like others, we have been to pediaticians, ENTs, dentists, and a top neurologist. Sleep studies found nothing wrong with our oldest. We just had a sleep study with one of the twins. This week the other twin started and drew blood. broke pur hearts. The first twin with the issue has taken a chunk out of his tongue and has permanent damage.
Our neurologist put the oldest on a low dose trial of 0.25 mg of clonazepam before bed. We saw results after a few weeks and she hasnt drawn blood in months. She HAS woken up and said she bit her tongue a few times, but no blood. Knock on wood.
The first twin is on the same med, but now three times a day.
This is the first time I have heard of low iron as a possible cause. We will get iron checked first thing next week.
We will keep you all posted as we know how helpless this feels.