This is a duplicate of what I posted under "painfull intercourse....." but this is probably the better topic (please see my other posts at that topic as well).
But here is what I have used to help combat this problem:

ok...I was prescribed to do the following -
lidocaine 2.5% and prilocaine 2.5% (emla) (placed on the area about 20min before intercourse) it really helps to ease the pain
also:
low oxate diet and take calcium citrate pills (i will post on the diet at a later post)
and....The elavil (anti-depressant)

after using all three I still have pain...But just not as severe as it used to be. There is still no cure for vulvodynia...But they have found some treatment to make you more comfortable during sex.

I only skimmed some of what was written and I am a bit horrified. I have had my diagnosis for 7 years and one of the very first things I was taught was that steroid creams were already found out to be a huge no no for us. They knew at that point that they cause a bounce back syndrome. Vulvodynia has so many causes and each woman needs to work with their practitioner to figure out what is her particular underlying cause for the disease. This goes for vestibulitis too. I can't say that everything that worked for me will work for you. What I can tell you is that alternative medicine treats the body as a whole not a part and because of that if you find a good acupuncturist/herbalist?Reiki practitioner you can begin the process and start healing. I have dedicated the last 6 years to running the site vulvodyniasupport.Com there is a lot of information there to be found including support groups worldwide, doctor listings that were direct recommendations from other patients, a message board, and a call to action page to sign. There is also a small blog and articles from healthcare practitioners and patients who have been through this before your diagnosis and might offer some insight. Sometimes it just takes finding the right person's story that you can relate to and then following their path to get you the help you need. What I can tell you is that you must be careful with creams because they create a moist host that is ripe for creating yeast infections, yeast infections cause many of us adhesions, then we are raw because of the infection and it becomes cyclical. I have been 99% pain-free for many years now. I make modifications when I work to help this stay that way. I have a special chair at work and a special cushion at home. I do not wear jeans anymore. However, simply doing only that probably would not make you better. Those are things that help prevent it from getting worse once under control. You can feel free to email me any time or check out the site I run and scour it for information. Make sure you check out the links page. If you find great links for me to add please let me know. Wishing you pain-free days! Lauren

Thanks for the information. Where did you get the special chair for work and cushion for home? I can only sit in a Stressless chair at home and want a cushion to sit on while travelling. Would appreciate any information
Zephyrhills

Hello,
I appreciate your website. I suffer from vestibulitis as well, and mine came on sunddenly when I was 20. ( I am 21, now). I wanted to share with you my experience with treatment. I have tried estrace, steroids, and other topical treatments. However, I found that half the time I would get random flare-ups for no reason at all, and no matter how much i put on the medicine, the vestibulitis would come back. So, here's the good news. I discovered that my family has a susceptibility to delayed food allergies, called IGG allergies. They are very "hush hush" because medical doctors and allergists don't support them like the typical, immediate food allergies (IGEs). Many homeopathic doctors, however, swear by it and say it is scientifically proven that IGG allergies are real. I can say, as well as my family, that I, too swear by it. I got this test done by my OBGYN because he was open to the test. It's a blood test, and you are required to eat a variety of foods before the test so that many foods are in your system. When the results came back, I foudn out I have a delayed allergy to casein, a protein found in milk. This test was done after numerous negative allergy test done by traditional allergists for IGE allergies (immediate allergies). I have eliminated casein for 2 weeks now, and my rash is almost gone completely. I thought back to when my symptoms started, and it was when I was in a different country drinking milk three times a day (their water was bad). It all makes sense. I researched casein allergies, and found that one of the most common symptoms is a rash, sometimes occuring days, hours, or weeks after ingesting the food. I can't tell you how nice it is to have found a simple solution to this horrible problem. I would advise if you haven't already, get the IGG antibody test! Nutritionists or homeopathic doctors will give them to you. Any delayed allergy could be causing this rash.....it's worth a shot. Anyway, Thanks for listening to my testimony. Let me know if you find out anything. good luck!
Ali

Anyone on the pill or any type of Birth control? check this out! It has made me more hopeful. But who knows. I'm sure there may be different causes for different people. But I'm going to try going off the BC pill because it has the same stuff in it as in this post

http://ehealthforum.com/health/topic110221 .html