My son is 15 months old. He has been having period of blue/purple extremities. This started about 2 or 3 months ago. He does not have difficulty breathing during these periods. A chest xray was done in december and all looked "normal" then. He went for an ekg on saturday and some blood work. The blood work was not completed because his veins kept "blowing". I am waiting to hear about what the next step will be. The doctors seem to feel all is okay but seem baffled as to why he is turning shades of purple in his hands/feet/ and at times around the mouth. His tongue and gums remain pink. It seems to worsen when he sits for long periods of time. His pulses are good. The doctor had written on the lab order the diagnosis of peripheral vascular disease, but everything i've read about that seems to be for overweight, over 50, and smokers.... I just feel like if it was truly "okay" then they would be able to tell me why this is happening. The blood work was for rheumatological stuff. He also turns bright pink sometimes in his face and extremeties.....Very baffling. First they thought it was viral. They had me record his episodes. The doctors have been very kind and seem genuinely concerned about the why of all of this. I just want to know the why so that I can believe them when they say all is well........
Thanks for any input. '
sincerely, tyler's mom!!!