Son Has Down Syndrome, Help W/question

Hello,

I have a 13 year old son with down syndrome and I could really use anyones help, please. My son hurt himself about 2 years ago. He broke his neck and was rushed to the nearest hospital where they did a rush operation to fuse his upper neck. His neck healed fine and is still this very happy and smiley little boy.

The problem is, that he has stopped walking. From the moment we left the hospital 2 years ago, we have taken all the steps recommended by the Dr. We did the physical therapy, nerve testing and everything. We tried bringing him to different Dr.'s but the issue with this is most Dr..'s find it hard to figure what is wrong. Partly, because he does not talk at all and cannot tell you where his pain is.

I feel most Dr.'s are not real familiar working with down syndrome children. We live near nyc, about 25 min away. I mention nyc because I thought maybe the best help might be there, but if nj or anywhere else happens to be the best choice...Please let me know.


I want to thank you so much for taking the time and hopefully helping out. If this post is in the wrong forum, please let me know the correct place, I was not sure where to post.

Sincerely,


lisa kesh