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What Could It Be?

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Kris10Leigh

New User, Becoming EHEALTHy
Joined: 12 Dec 2005
Posts: 3
Location: Missouri
What Could It Be?
Posted: 01-29-06 13:32pm

Does this sound like endo? Something else?

In jr. High/high school I had horribly heavy periods. They were so bad that I had to sleep with a folded towl under me at night because I would bleed so much it would leak out overnight. I had to use the thickest pads day and night. I've alway had cramps but I don't remember them being unbearable in high school.

After I went on birth control pills (age 19) my periods got so much lighter and I had almost no cramps at all. Although lately my cramps have been pretty bad. Like curl up on the couch and try not to move-bad. But, when I started my period thursday, I had some cramping but not real bad. I took some meds and it was fine.

I started having pain during intercourse when I was about 21-22. That still continues. It's horrible. I don't enjoy it all because of the horrible pain. I can feel it inside. I just can't stand it. It's unbearable. I stopped taking my birth control pills about 2-3 months ago because I thought maybe that was the problem...It's not. I've gone off of them before for like 6 or 7 months and the pain was still there. It even hurts getting a pelvic exam.

I have been to several doctors about my pain but none of them have been able to help me or figure out what is causing it. I had been taking elavil for the pain but it doesn't really work.

At the beginning of last year I went to the doctor for gas, bloating, constipation, and frequent urination. He just said I probably have ibs. He did a full urinalysis and all was normal. Those symptoms have gotten a little better over time. But what is strange is that when they do show up, they seem to occur mostly while I am at work. I have a desk job.

With the frequent urination I usually have a sense of urgency. I've never had a problem making it to the restroom but if I wait too long to go once I feel like I have to go, it starts to become uncomfortable and hurt like I have been holding it for hours.

I don't have any pelvic pain but I do get some bad cramping in my lower back sometimes before my period. And I have started noticing that sometimes when I urinate during my period it is painful.

I had an ultrasound/transvaginal ultrasound last summer because my gyn said my right ovary felt enlarged but the ultrasound was clear.

I'm tired of going to doctors and not finding answers. I just want to know what is wrong. I don't know what kind of doc to go to...Ob/gyn, gi, urologist? If anyone knows of any good dr's in missouri i'd greatly appreciate it! Thanks for listening.
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sandyallen

Extremely EHEALTHy
Joined: 02 Feb 2004
Posts: 4580

Posted: 01-29-06 15:35pm

I am no Dr. And I do not know of any dr's in your area, you might check out a college that has a lot of medical in it such as ca has u.C.L.A or possibly a pain mangement physicians which are a lot of times advanced anestheiologists but their are a lot of good ones but I would definitely get a second opinion for your pain during sex, do you use lubricant, foreplay as I have found out that when I am dry, sex hurts too but I have had a hysterectomy but we are all different.
I know that I used to suffer with cramps a lot I used to drink hot water with ginger, not too hot though and put my feet up for about 1 hour and it helped me, it tasted nasty though, gagged ne a couple of times.
Ditropanxl has heped me alot with my rushing to go pee and my sem-incontinent problems, I also do some keegal exercises, I believe that is what you call them when you are squeezing your legs together tightly and then relax because when you sit awhile your muscles can really mess you up down their.
I do not remember if you said that if you have had a urinalysis or not as I went through a period where I was getting a lot of u.T.I's.
Sorry I could not be of any better help to you but I tried.
The best to you!
Keep us posted!
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SydneyGirl

New User, Becoming EHEALTHy
Joined: 14 Apr 2006
Posts: 23
Location: Sydney
Sounds Like Endo to Me
Posted: 04-14-06 16:36pm

Hi kris 10 leigh, it does sound similar to endo to me. I had all the same symptoms and i've had endo since I was 18 and am now 41. It will be better when you're on the pill.

Find a gyn that specialises in endo/ademo is my advice.

Don't delay. You can have surgery to remove the endo although you will need several ops to keep doing this as it returns. But you will get relief from each removal.

A diagnosis is made usually going on your history and it does sound to me very similar to endo. I did a web search and found a leading expert here in sydney and he did my surgery. Very good guy.

Something I didn't know all those years ago .... If I had had a hysterectomy when I was younger the endo would not have been able to spread ... However I was told I wouldn't have children after many years. I was offered a hyst at 26, and then 30 something. I accidently fell pregnant at 35 and having gorgeous girl of 5 now. So you just can't say never ?!?
Hope i've been a little helpful, my thoughts are with you, it's very painful and confusing.
Compassionately, sydneygirl
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