I am 40 yrs old and have been dx for 3
yrs. I had very little problem until
aug. 2003. I got a kidney infection
and it went down hill from there. I had
oral sterolds and i.V. Steroids. That
cleared up the double vision but other
things got worse.
I became very dizzy and my balance
didn't exist.
I felt water logged at first then my
speech became very slurred.
The puzzling part was that it came
like in waves, i'd sound normal and then
in about 3 min. I'd sound like a drunk.
I also felt like I was about 4 beers in
most of the time. No one seems to
understand why it came in waves. I'm
doing better now but it still happens less
frequent ly but still in waves and less
severe. These spells only last about 10
seconds and have lasted the same from the
beginning.
My neur. Suggested I see a psych.
And a speech theropist. I figured the
psych. May help but I have skipped the
speech theropist. I have lost my job
and insurance so I can't afford to play
hit and miss. I am on rebif for the m.S
and lexapro for the depression. I also
take neurontin which is an anti seizure
drug. It feels like maybe i'm having
very mild seizures. But I don't know.
My neurologist hasn't suggested an eeg
but i'd like to know what's going on when
this happens
has anyone ever heard of this minute to
minute deal. I understood i'd have good
days and bad days but not good minutes and
bad minutes.
I need some answers or some help.
Someone please respond.
Thanx
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Joanmaire
New User, Becoming EHEALTHy
Joined: 23 Apr 2004 Posts: 6 Location: Vermont USA
Relapsed Posted: 04-23-04 09:21am
Hi jackieh
there will be good and bad days and
minutes I have found. I have had ms for
17 years and you never get use to it you
just learn to live with it and cope. As
you know ms does what it wants to do.
One minute we can be walking down the road
and the next we can have a limp and not
be able to walk right I have found that to
be true in me. I am not trying to scare
you but everyone is difference. You just
need to learn how the ms effects your
body. I have written down when new things
happen to me so I will know when they
happen I know if the ms.. So just
listen to your body and you will know the
signs to watch out for. I wish you good
luck .......And put it in jesus hand
because by his strips we are heal!!!!!
Love your
friend joan
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Bookjunky
New User, Becoming EHEALTHy
Joined: 15 Apr 2004 Posts: 13 Location: Ohio
Posted: 04-25-04 00:31am
I was on nuerontin very briefly and the
only thing I remember for the two week
period was as I was coming off of it.
Preventative maintanance broke something
on my toilet as they were repairing it and
spent the whole afternoon in my bathroom
with the light connected to the exhaust
fan on while my head was trying to
explode. I have done much better on
depakote.
For some reason there is no mention of
seizure activity as possibly being related
to ms but I keep encountering people with
ms who never had any type of seizure
activity before the ms.
As for balance - I have a problem with
that and take antivert for it.
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san54
Experienced User , Rather EHEALTHy
Joined: 28 Dec 2003 Posts: 227 Location: Virginia
Relapsed Posted: 04-25-04 03:09am
Jackie, a speech therapist wouldn't hurt.
What if the slurred speech lasted longer
than a few seconds. I would do whatever
it took. Good luck.
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TEM
New User, Becoming EHEALTHy
Joined: 13 Jun 2004 Posts: 5 Location: Canada
Posted: 06-13-04 23:23pm
Hi jackie.
I just wanted to say that I totally
understand what you mean by minute to
minute. In the last few weeks or so, I
also have slurring that comes and goes. I
can almost feel it coming - I get a weird
tingly sensation through my body, and
everything (especially my arms) gets weak,
and I have an awful time spitting my words
out. Its very frustrating, and
embarrasing. Luckily it does only last
for a minute. Some days it can come and
go many times, and other days it only
happens a few times. I find that the
tingling sensation and the weakness
happens throughout the entire day, but the
slurred speech often only happens during
the first few hours of when I get up.
Just thought i'd relate.
T.
