Im so sorry that things have gotten worse for you I bet your very frightened not knowing whats going to happen to you,i havent been on line much, still looking after my dad and then by the time I get home bath etc its time to watch the soaps and go to bed.Please let me know what the outcome of your visit with the specialist, do you have a date yet?.Its a terrible illness to have you need your joint for so many things and when its got something to do with your face its worse. Please keep in touch and the best of luck with your hospital visit. Welsh judy.X

Sammi,

i sincerely hope all is resolved for your right joint-do let me know how you get on!!

R x

I went to meet my tmj surgeon on monday and he thinks he can help me trouble is hes got a 2 to 3 year waiting list. Because of the way things are with my dad at the moment I said id wait but he said that if I have any problems I could go up and see him. How many specialists have you seen? Ive seen 3 now, 1 in bradford one in liverpool and the latest one in birmingham.Perhaps you could have a second opinion like ive had. The dr in birmingham is the best in the field thats probably why his list is so long. There must be someone who can help you somewhere, I really hope so anyway.You have gone through a lot its a horrible thing to have.Have you got any appointments with your specialist? And is there one in scotland?.Looking forward to your reply, take care judy.

Have your heard how marylee got on with her surgery back in early january??

I am waiting for an appointment to see a specialist regarding the right tmj, I never thought I would be here again, as my maxillofacial surgeon was adamant that it was the arthritis caused by a fracture 12 years ago that was the cause of the degeneration of the joint. But I have pain, and clicking, locking etc now in my right joint, I am so fed up you would not believe. I am scared that it may take some time to be seen and the longer it takes the more damage is being done. My gp has pulled some strings so hopefully the hospital will see me quickly. The thought of living without both tmj's is terrifying. I keep hoping they are gonna come up with some sort of replacement joint which does not involve any metal at all. I am sorry you are having to wait all this time to see somebody who can help you. From diagnosis to my first surgery was about 18 months, with a total of 4 years back and forward to the hospital. It gets very depressing at times. I would love a "quick fix solution" but that aint gonna happen, anyway enough doom and gloom.........

Take care judy and keep in touch
sammi

Know what?? I am so annoyed, fed up, in pain and would love to just give up and accept this as part of life....Only I know I can't go on like this!!!! I think that a year from now we should organise a "tmj uk" reunion type thing.....We all seem to be scattered all over the uk. Judy from wales, sam from scotiland and well i'm a yorkshire lass!!! Sick of my face being in spasm :(

oh well the upside is I get some sleep tonight (diazepam and codeine together!!!)

good night people, have a good weekend and chins up

rex xx