i can't believe my bad luck, I have had 3
operations on my left tmj which resulted
in the joint being removed, and now I am
having problems with the right joint
(pain, clicking, locking) it was
originally presumed that my left tmj
problems were caused by a fracture years
ago which led to arthritis in the joint.
Obviously this was only a contributing
factor as now the same thing is happening
to my right joint. A rib graft and a
titanium prothesis have both failed, so
that kind of surgery is not a option, I am
terrified that it may result in removal of
the right tmj. Does anyone know anybody
living successfully without either one or
both tmj. I have been referred straight
away to a dental hospital, as a priority
case due to my history of problems with my
tmj, so I will let you know how I get
on.
A very scared sammi from scotland
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tealady
New User, Becoming EHEALTHy
Joined: 23 Mar 2004 Posts: 36 Location: uk
Sammie Posted: 01-29-06 06:41am
Im so sorry that things have gotten worse
for you I bet your very frightened not
knowing whats going to happen to you,i
havent been on line much, still looking
after my dad and then by the time I get
home bath etc its time to watch the soaps
and go to bed.Please let me know what the
outcome of your visit with the specialist,
do you have a date yet?.Its a terrible
illness to have you need your joint for so
many things and when its got something to
do with your face its worse. Please keep
in touch and the best of luck with your
hospital visit. Welsh judy.X
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digby_uk1
New User, Becoming EHEALTHy
Joined: 13 Feb 2006 Posts: 5 Location: West Yorkshire, UK
Posted: 02-13-06 19:31pm
Sammi,
i sincerely hope all is resolved for your
right joint-do let me know how you get
on!!
R x
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tealady
New User, Becoming EHEALTHy
Joined: 23 Mar 2004 Posts: 36 Location: uk
Hi Sammy Posted: 02-15-06 18:39pm
I went to meet my tmj surgeon on monday
and he thinks he can help me trouble is
hes got a 2 to 3 year waiting list.
Because of the way things are with my dad
at the moment I said id wait but he said
that if I have any problems I could go up
and see him. How many specialists have
you seen? Ive seen 3 now, 1 in bradford
one in liverpool and the latest one in
birmingham.Perhaps you could have a second
opinion like ive had. The dr in
birmingham is the best in the field thats
probably why his list is so long. There
must be someone who can help you
somewhere, I really hope so anyway.You
have gone through a lot its a horrible
thing to have.Have you got any
appointments with your specialist? And is
there one in scotland?.Looking forward to
your reply, take care judy.
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sexyscot76
Experienced User , Rather EHEALTHy
Joined: 01 Oct 2005 Posts: 66 Location: SCOTLAND
Thanks: 1
Thanked:0
Hi Judy Posted: 02-17-06 07:47am
Have your heard how marylee got on with
her surgery back in early january??
I am waiting for an appointment to see a
specialist regarding the right tmj, I
never thought I would be here again, as my
maxillofacial surgeon was adamant that it
was the arthritis caused by a fracture 12
years ago that was the cause of the
degeneration of the joint. But I have
pain, and clicking, locking etc now in my
right joint, I am so fed up you would not
believe. I am scared that it may take
some time to be seen and the longer it
takes the more damage is being done. My
gp has pulled some strings so hopefully
the hospital will see me quickly. The
thought of living without both tmj's is
terrifying. I keep hoping they are gonna
come up with some sort of replacement
joint which does not involve any metal at
all. I am sorry you are having to wait
all this time to see somebody who can help
you. From diagnosis to my first surgery
was about 18 months, with a total of 4
years back and forward to the hospital.
It gets very depressing at times. I
would love a "quick fix solution" but that
aint gonna happen, anyway enough doom and
gloom.........
Take care judy and keep in touch
sammi
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digby_uk.
New User, Becoming EHEALTHy
Joined: 14 Feb 2006 Posts: 8 Location: West Yorkshire, UK
Hey Peeps!! Posted: 02-17-06 18:41pm
Know what?? I am so annoyed, fed up, in
pain and would love to just give up and
accept this as part of life....Only I know
I can't go on like this!!!! I think that
a year from now we should organise a "tmj
uk" reunion type thing.....We all seem to
be scattered all over the uk. Judy from
wales, sam from scotiland and well i'm a
yorkshire lass!!! Sick of my face being
in spasm :(
oh well the upside is I get some sleep
tonight (diazepam and codeine
together!!!)
good night people, have a good weekend and
chins up
