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AlinaMartinez

New User, Becoming EHEALTHy
Joined: 23 Jan 2006
Posts: 3
Location: San Diego
Weird..
Posted: 01-23-06 01:20am

My boyfriend who means the world to me recently told me that when he was 15 (4 years ago) his doctor told him that he has a very big chance of developing leukemia and not being able to live past 25.
He went in to the doctor last thursday to see if he has it. He has not had health insurance for a long time, and can't afford treatment.( his uncle is paying for the recent appointment). But he seems fine to me, and barely has any leukemia symtpoms.
How did that work out? I read that if a person has leukemia and it goes untreated, that person could die within months and its been almost a year, maybe two since he has had treatment.
I'm so confused..Is this normal? Also, tonight he developed a fever and has been throwing up and his face is numb.
He said that he thinks it has to do with his possible sickness. He told me that that is how his friend who had cancer died, he just kind of faded away.
Does that happen with people who have leukemia??? Or is this maybe some kind of weird cry for sympathy :?:
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LIBlondie45

New User, Becoming EHEALTHy
Joined: 02 Aug 2004
Posts: 12
Re: Weird..
Posted: 01-23-06 06:48am

alinamartinez wrote:
my boyfriend who means the world to me recently told me that when he was 15 (4 years ago) his doctor told him that he has a very big chance of developing leukemia and not being able to live past 25.
He went in to the doctor last thursday to see if he has it. He has not had health insurance for a long time, and can't afford treatment.( his uncle is paying for the recent appointment). But he seems fine to me, and barely has any leukemia symtpoms.
How did that work out? I read that if a person has leukemia and it goes untreated, that person could die within months and its been almost a year, maybe two since he has had treatment.
I'm so confused..Is this normal? Also, tonight he developed a fever and has been throwing up and his face is numb.
He said that he thinks it has to do with his possible sickness. He told me that that is how his friend who had cancer died, he just kind of faded away.
Does that happen with people who have leukemia??? Or is this maybe some kind of weird cry for sympathy :?:


what kind of illness did your boyfriend have at age 15? Did he ever have a form of leukemia? I know of no doctor who would tell someone they can come down with leukemia 10 years in advance. No one could predict this so where did he get his information?

Find out if he has had problems with his white blood cell counts in the last few years. Also, did he have problems with anemia or any problems with his red blood cells or platelets?

Vomitting and fever are symptoms of a lot of other things, like flu, etc.

His friend who had cancer just didn't "fade away."

it sounds like your bf is playing some kind of sick joke on you and it's not really funny because leukemia is a very serious illness. It isn't always a death sentence.

Most important things are to find out his wbc and rbc counts currently and in the last couple of years. Find out what childhood illnesses he's had, especially when he claims the doctor said something to him at age 15.
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AlinaMartinez

New User, Becoming EHEALTHy
Joined: 23 Jan 2006
Posts: 3
Location: San Diego

Posted: 01-23-06 15:23pm

Yea he's told me that he has it and that his prior visit was to see if it went away, or whatever. He says he is on some kind of pills for it- I guess his healthcare ended in september, not a year or two ago like I thought. Thats when he got those pills and I guess he still has about a week left to take them. He got that ten year in advance info from some doctor he went to with his mom. I dont know about the blood cell counts but he hasn't had anemia- I would have known this he always talks about something hurting or being sick with something. About the vomitting and what not, it didn't sound like it had to do with leukemia either, but I don't know much about it, and that's what he told me he though it was...I kind of sometinmes think its a "joke" too, but he seems to know lots of facts about it...Maybe he just researched it or something. Also, his mom has told me he has a high chance of deceloping it..I dont really know why..She mentioned something about when he was being born, he was born on the street or something, and something went wrong and thats why he may get it..That didn't make much sense to me..I pray this is some kind of twisted humor but sometimes it seems unlikely that his mom would be in on it too.I dont know..Thanks for responding so quickly..! Yea i'll find out what he's had as a kid and post it.
Thank you!
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LIBlondie45

New User, Becoming EHEALTHy
Joined: 02 Aug 2004
Posts: 12

Posted: 01-23-06 15:39pm

alinamartinez wrote:
yea he's told me that he has it and that his prior visit was to see if it went away, or whatever. He says he is on some kind of pills for it- I guess his healthcare ended in september, not a year or two ago like I thought. Thats when he got those pills and I guess he still has about a week left to take them. He got that ten year in advance info from some doctor he went to with his mom. I dont know about the blood cell counts but he hasn't had anemia- I would have known this he always talks about something hurting or being sick with something. About the vomitting and what not, it didn't sound like it had to do with leukemia either, but I don't know much about it, and that's what he told me he though it was...I kind of sometinmes think its a "joke" too, but he seems to know lots of facts about it...Maybe he just researched it or something. Also, his mom has told me he has a high chance of deceloping it..I dont really know why..She mentioned something about when he was being born, he was born on the street or something, and something went wrong and thats why he may get it..That didn't make much sense to me..I pray this is some kind of twisted humor but sometimes it seems unlikely that his mom would be in on it too.I dont know..Thanks for responding so quickly..! Yea i'll find out what he's had as a kid and post it.
Thank you!


i never heard of a story like yours before. Something just doesn't add up. It is possible he can have cml or cll (a leukemia) like the actor ryan o'neal of "love story" has had for many years and takes pills (gleevsec). Ask your boyfriend the name of the pill. If it's gleevesec, then he is correct about his condition because he wouldn't know about this pill if he were healthy.

Chronic leukemia can be lived with for many years while acute leukemia needs to be treated immediately.

Being born on the street has nothing to do with leukemia. Find out more. Ask for copies of his blood tests. Normal wbc should be between 4,600-10,000. If he has like 20,000, he has leukemia or a severe infection of some sort.
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AlinaMartinez

New User, Becoming EHEALTHy
Joined: 23 Jan 2006
Posts: 3
Location: San Diego

Posted: 01-23-06 16:39pm

Thanks sooo much for taking time to think about and respond to my problem. I'll be sure to ask about the blood his blood tests, alot of it doesn't seem to add up to me too..Once again thank you!
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LIBlondie45

New User, Becoming EHEALTHy
Joined: 02 Aug 2004
Posts: 12

Posted: 01-23-06 19:08pm

Glad you felt I could help. Ask questions, see his blood tests. Good luck!
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Sweetne$$

New User, Becoming EHEALTHy
Joined: 23 Dec 2005
Posts: 3

Posted: 03-02-06 08:05am

Hello there... I was diagnosed with chronic m. Leukemia this year in january. I am on gleevec every day. If your bf is being honest and he is on gleevec, he really needs to stay on it or it could become worse and more resistant to treatment. Gleevec is really expensive ($100.00 a pill) but sometimes you can get help from the drug companies or check with the leukemia society. There is help out there but he needs to seek it and now! With some leukemias you have no symptoms. The different kinds have different prognosis. It is not a death sentence if you get treatment. I am a rn and had no symptoms other than being exhausted all the time. They found mine during a routine blood test that showed my white blood cells skyrocketed. Leukemia does not have anything to do with how you are born or raised. Its a chromosone disorder which they do not know what causes it. Try to pin him down for some answers. If he is lying then you need to know. That would be very very sick and he better think about what he is doing. Take it from someone whose life has been turned upside down from this disease. Take care and god bless!
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