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Conditions and Diseases > TMJ Forum > Degenerative Joint Disease (long--but Need Help)
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Q: Degenerative Joint Disease (long--but Need Help)
asked by: OwItHurts on January 20th, 2006
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Okay, it all began when my dd hit me under my chin a few days before thanksgiving. Within a week, I was in severe pain on my right side. My jaw joint was hurting, but so was the side of my head, the side of my face, and my teeth. I could not chew or bite on anything, and I was talking through clenched teeth.

Within another week, I could only open my mouth the width of 1 1/2 fingers.

After consulting my gp and my dentist, I was referred to an orofacial pain specialist. After an initial (expensive) exam, he decided that I had joint effusion and articular disc disorder.

After 2 weeks of meds and physical therapy, the joint effusion was gone. All of my radiating pain was gone. I still had the severe pain right in the joint, and I still can't open my mouth very far.

Op doc suggested mri to see where exactly my discs are. Results: my discs are right where they are supposed to be, but they are severely degenerated. Dr. Says he doesn't know what this means, that my case is so rare that it doesn't even have a name. He doesn't know how to proceed with treatment.

At this point, I feel like he's jerking me around. I've seen him four (very expensive) times, and I still don't have a diagnosis or treatment plan.

I started doing research on the net and found "degenerative joint disease." now, i'm no expert, but it sure does sound like what i've got. I think there's also a possibility of ankylosis (loss of joint movement resulting from fusion of bones within the joint or calcification of the ligaments around it).

If I could find this info so easily, what is his problem. I wasn't kidding when I said this guy is a specialist.

I apologize for this being so long, but i'm at my wits end. If you have any ideas, comments, or suggestions, I sure would appreciate them!!!

I should have mentioned earlier....I have had no prior problems with tmj, and I don't fit the "profile." i've had no clicking or popping....Joints have never been displaced. My injury from dd did not cause this. I also have never had a problem with clenching or grinding, and I see my dentist twice a year. Also, I am in my 30's and do not have any other forms of arthritis.
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catswold
replied on January 21st, 2006
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I'm sorry, but I have to disagree with you. I definitely believe that the blow from dd set off the problem. You don't necessarily have the typical tmj that most of us get because most tmj is caused by grinding and clenching. Then there are others who develop jaw problems (muscle, ligaments, disc or bones) by other reasons (injuries, wisdom teeth pulled, etc.) tmj is a very complicated disorder and most people only hear about the popping, headaches and pain, etc. But an injury like yours would cause different symptoms and more than likely you would need different treatments.

The degeneration that is shown of your disc is actually not all that abnormal. Many people have similar problems as the jaw disc is the most used cartilage joint in the body (eating & talking). Studies have even shown that even when an mri shows a disc out of joint, the patients has absolutely no symptoms of tmd and vice versus. I told you it was complicated.

In your situation, all your research could very well mean something, but also not mean anything (don't get mad at me). But I say this because right now I think you need to concentrate on fixing the pain in the joint and getting your mouth opening more. It sounds like the pain specialist may have done all he knows how to and you might try a tmj specialist or a different pain doctor. My tmj specialist has put shots directly into my joint. That could help you. I also think that continuing physical therapy but changing the focus to getting your mouth opening without pain. I don't know if that means going to a different pt or the same one.

I also apologize for writing so much. You are a complicated case mostly because your problems were "caused" by an injury. Caused isn't the right word but i'm not sure what other word to use. For now, I would use lots of moist heat directly on the joint and surrounding muscles, eat only a soft diet (no gum or ice chewing), continue pt (or massage therapy), and maybe see a tmj specialist.

Oh, i'm also going to suggest something that you might try that I normally do not suggest. That is to see a chiropractor. Over my long tmj years, I have only found one chiropractor who helped so i'm always hesitant, but I do think that if your neck is worked on, it might help. But chiros always seem to want to work on your back and I don't allow that after one chiro would crack my back every visit and my back just started to hurt and didn't help my tmj at all. The one good chiro only worked on my neck and massaged inside my mouth for a few seconds. Actually, if you could find a pt or mt who could massage inside your mouth that might be your absolutely best bet. Sheesh, I should have thought about that at the beginning of the posting.

Well, I hope anything I have said can help.
Carol
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