viral menanjitis on spine Posted: 01-20-06 14:18pm
Hi, i'm aubrey and i'm 18. I've been to
doctor after doctor and no one can seem to
tell me whats wrong with me.
Ok, about 6 months ago my right side of my
face went paralyzed and then numbness
spread to my whole face. An ambulance was
called and when I arrived at the hospital,
the doctor saw me for about 2 minutes,
diagnosed me with bells palsy(sorry bout
spelling) and put me on steroids. 2 days
later I started experiencing tremendous
pain so again I went to the er. After
being there for about 10 hours and running
several tests including a spinal tap they
sent me home. For 3 days the pain was
intensifying at a rapid rate and we got a
call saying the spinal showed I had viral
menanjitis and they wanted to hospitalize
me for pain management. By the time I got
there I was in a wheelchair and barely
coherent. My symptoms increased and more
tests were run. Several days later my
face went back to normal and I was sent
home with no answers. Here it is almost 6
months and 8 doctors later and im still in
the dark. Its gotten to the point that
ive had to quit my job and am struggling
through school because I cant sit there
all day in the pain im in. The pain
started in my back and has spread to every
part of my body, (it feels like its in my
bones not a muscle hurt). They dont
really seem to understand that and just
keep telling me my back muscles are weak
from the menanjitis and just giving me
more medication that does nothing but make
me sick, and then brush me off. They also
say my kidneys are starting to shut down
and when I ask why, I am never given a
clear answer. Every day I am getting
progessively worse and I feel I have no
where else to turn. I honestly feel like
im dying, like my body is rapidly
deteriorating and no one can tell me why
or if I can fix it. Im to the point that
I would do anything to get better! Ive
been to neurologists, chiropractors,
physiatrists, etc. Im prescribed
hydrocodone, percocet, vicoden, torodal
shots etc and have found nothing that
even dims the pain. Im extremely
desperate and I would appreciate any input
and ideas to whats going on. Thank you
for listening when it seems like no one
else is hearing me.
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steevo
New User, Becoming EHEALTHy
Joined: 13 Oct 2005 Posts: 41 Location: desoto mo.
Posted: 01-23-06 08:57am
I wish I could give you a good answer but
I can't. All that I can do is give
advice, keep looking for answer's by
yourself on the internet, look up any word
that relate's to you, try other forums,
"spine and beyond" is a good one, i'm sure
you have, but ask lot,s of question's, let
the doc's know what is and what is'nt
working. I know how they can be, doctor's
come in to see you for about 1 minute and
say "here, try this, and if that does'nt
work call for another appointment". Don't
let them go, make them work for that 100
dollar's a minute, all's their doing is
talking anyway. Steevo
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Tamadrummer
Active User, Really EHEALTHy
Joined: 15 Oct 2004 Posts: 710 Location: Zephyrhills,Fl
Posted: 01-23-06 19:09pm
As far as pain management is concerned
there is a whole lot more that they can be
doing to make your life more liveable
while trying to make a correct diagnosis
and treatment plan.
You might as the doc about the fentanyl
transdermal patches along with
non-acetamenophin containing oxycodone
instead of percocet because if you are
going to end up in long term treatment,
you are going to want to be avoiding
tylenol as a daily medicine.
As far as the symptoms go, you have
classic symptoms of menengitis but they
should never have let you go until they
knew it was under control and you were
well on your way to better health.
Let us know how it goes,
brian
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strawberryfields18
New User, Becoming EHEALTHy
Joined: 20 Jan 2006 Posts: 2
Thanx For Listening Posted: 01-27-06 02:26am
I really appreciate your advice. Im still
at a loss but its nice to know that
someone out there is actually listening to
me. I will try to keep you posted on
whats going on. Right now im exactly the
same if not getting worse. I have
honestly given up hope on the docs, they
have no idea what theyre talking about,
but maybe they would if they would
actually ask me whats going on lol. Thank
you so much and if you happen to stumble
upon anything sounding familiar to what im
going through an update would be great.
Im still searching and thanks again for
being there!
