Joined: 10 Aug 2003 Posts: 2 Location: so cal-north county
Reactions And Alternatives?????? Posted: 08-10-03 01:59am
Hello,
i am a 20 year old woman who has had
seizures since I was about 4 years old
my docs arent sure if its from the head
injury I had or if I was just born with
it
all the meds I have been on have not
helped it
i have had all the tests from mri
eeg(sleep deprived and ambulatory)cat and
so on
only 3 have shown an abnormality in my
brain
why when it shows some times that it wont
show other times like there is nothing
there?
Why havent any med stopped them?
Are there any other things I can do to
stop it?
Also, as I am sitting here right now, I
have severe swollen feet and ankles, is
this normal for my meds? Dilantin and
trileptal?
I cant even see my ankle or feet bones and
it hurts so horribly to walk
i have also been todl I have "pseudo
seizures" and this term has been explained
to me several different ways-one being
that I fake them, another being that they
are stress induced so on and so forth
as if they are not real
so my question t othem is always this-
faked? As if I like having to spend more
than half my life in a hosp that my own
home, as if I like being stuck with
needles 3 times a week to try to control
this, not to mention how many times im
stuck when I have to go to the hosp, as if
I like having to take so many meds and
then being even more sick with the side
affects from them, well, you get the
point
and then stress induced?--ok now this
really doesnt make sense because I dont
know any 3/4 year old that has that much
stress in their life to start having
seizures
so if all this comes down to the seizures
"not being real" then why the medication
for them?
Malpractice?
False abnormal results on the tests?
Make any sense to anyone out there please
let me know
write me back because I need help with
this
thanks a million :d
|
teal007cat
New User, Becoming EHEALTHy
Joined: 10 Aug 2003 Posts: 1 Location: Winnipeg,MB
Question of My Own! Posted: 08-10-03 09:56am
I am
so sorry to hear your delema!!! I am
ignorant of this condition except the very
basics. I am trying to do some reserch
myself as my brother has suffered some
grand mal seizures over the years. A bad
marrage and the stress related to it might
have had something to do with it. How
ever they are seperated now and he seems
so much happier and allert. When he had
his first seizure he was enrolled in a
computer course where he me his intended.
It was discribed to me and is a classic
textbook grand mal. The doctors, for some
reason, have associated it to drinking the
night before. He has quit drinking for
years now and has had a few more since the
first one. I know this is pitiful
compared to what you are suffering but I
read somewhere that computers can induce
seizures. He was working on one when he
had his first and the last one cost him a
large piece of his tongue. It grew back
but it was pretty gross. They had
purchased a computer prior to this. I
have tried to tell him that I think he
should maybe avoid computers but he has
been thinking about getting one and he
lives alone. Is there any information
that you have come across in your recearch
that might help me to convince him to not
to get one. I am afraid he will suffer
one of his seizures while he is alone with
no one to help.
Janet b
|
angie3980
New User, Becoming EHEALTHy
Joined: 08 Aug 2003 Posts: 2 Location: omaha
I'm Sorry! Posted: 08-10-03 12:48pm
I feel your confusion. I hate the answer
from the doctor maybe, maybe not. I am
an analyzer anyways. So I am constantly
trying to reason out why at 32 I started
having seizures. I've heard stress, lack
of sleep, etc., or you just have it. My
main question all the time is if it's my
lifestyle shouldn't I be trying to change
it, rather than medicate it. Maybe I
need a nanny and not dilantin! I have 5
boys and my hubby is traveling all the
time.
If it is this pseudo thing, why don't they
take you off the drugs?!!! Like you said
at 4!!! Give me a break!! I feel for
you so much.
Your ankles are swollen? I have never
heard of that as a side affect. What
does your doctor say about that? Maybe
you need a new doctor. Do you feel
rushed by him when your there? I had one
like that and swithched and feel thank-ful
that at least he listens to me even if the
answer is maybe, maybe not.
Good luck, angie
|
smartchick
New User, Becoming EHEALTHy
Joined: 24 Aug 2003 Posts: 1
Medication Sucks Posted: 08-24-03 02:45am
Hi
i am 37 years old and had my first seizure
at 33. I also swapped doctors because he
didnt listen to me. Although I dont
always like what my new doctor tells me I
feel she listens and understand what I am
going through.
My question (to save my sanity) is there
any medication that makes you feel normal.
All medication seems to dull my senses,
I cant think fast or logically. The
medication stops the seizures, but at the
cost of my mind, I dont know what is
worse.
I am
so sorry to hear your delema!!! I am
ignorant of this condition except the very
basics. I am trying to do some reserch
myself as my brother has suffered some
grand mal seizures over the years. A bad
marrage and the stress related to it might
have had something to do with it. How
ever they are seperated now and he seems
so much happier and allert. When he had
his first seizure he was enrolled in a
computer course where he me his intended.
It was discribed to me and is a classic
textbook grand mal. The doctors, for some
reason, have associated it to drinking the
night before. He has quit drinking for
years now and has had a few more since the
first one. I know this is pitiful
compared to what you are suffering but I
read somewhere that computers can induce
seizures. He was working on one when he
had his first and the last one cost him a
large piece of his tongue. It grew back
but it was pretty gross. They had
purchased a computer prior to this. I
have tried to tell him that I think he
should maybe avoid computers but he has
been thinking about getting one and he
lives alone. Is there any information
that you have come across in your recearch
that might help me to convince him to not
to get one. I am afraid he will suffer
one of his seizures while he is alone with
no one to help.
