Joined: 19 Jan 2006 Posts: 2 Location: charlotte, NC
Panic Attacks From Mvps Posted: 01-19-06 08:01am
Hi...I am so sick of these
non-understanding ..Non-caring know it all
doctors I could throw up....We have such
real symptoms and every time it is a
frickin hassle to get them to understand
us,,,i just called in my little refill for
xanax.... .25 mg's 30 of them..I haven't
had them refilled since july...They wont
fill it....Have to see me again..I get so
sick of this crap.....I just saw him six
months ago....I got off of the anti
depressants ...I use mag and co-q 10 and
inderal 10 mgs twice a day..And xanax when
the panic starts...And rescue remedy all
the time..I have had this condition all my
life and the syndrome started at 30 I am
54 now..I think I know what I need to get
by on.... We should compile a list..I
tried to at the last board to get
recommendations of doctors who understand
mvps//// any body out there have any??? I
am in nc ...And so far none here..I have
only been here a year//// so let me
know..And we could start the list for
everyone else too..So pass on the doctors
if anyone has any.. Thank you my
friends...
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Stevesy
New User, Becoming EHEALTHy
Joined: 05 Jan 2006 Posts: 16
Posted: 01-19-06 15:36pm
I was just diagnosed with mvps and it
seems like it's a pretty debated subject.
Some say it doesn't cause the symptoms
like heart palpitations, chest pain,
lightheadedness, anxiety, depression,
panic attacks, but some say it causes so
much more than that.
It seems to be causing almost every single
thing that's going on with me right now,
so those doctors can shove it for all I
care. I'm not going on any kind of
medication, and just knowing that I have
it is actually making me feel better. I
just hope you can find a doctor that will
give you what you want/need to get by.
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rfied112
New User, Becoming EHEALTHy
Joined: 17 Jan 2006 Posts: 5
Posted: 01-22-06 22:08pm
I am about same age as you, same deal with
mvps since teens, I know its frustrating
when u just take a xanax every month or so
but they wont refill w/o appt. Mvps is
controversial, have you ever tried the
stand up test and take your pulse, it
should jump 30 bpm which is a good sign
for any dr that mvps/dysautonomia is
present. I take magnesium taurate and
hyrate 8 glasses a day , hang in there man