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Myoclonic Epilepsy?

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johnnnie

New User, Becoming EHEALTHy
Joined: 11 Jan 2006
Posts: 7
Location: scotland
Myoclonic Epilepsy?
Posted: 01-11-06 14:18pm

I suffer from jerks in my head and neck and when they happen they make feel like I am very dizzy and away to collapse.Ialso feel very fatigued after this could I get some sort of thoughts from what u might think this is myy eeg has not shown much so far as I have not suffered these frightening jerks during them thank you
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kayakmom

Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004
Posts: 252
Location: Conn
Thanks: 2
Thanked:0

Posted: 01-13-06 10:07am

I am sorry this is happening johnnie....Not sure if it would be myoclonic, there is usually not fatigue afterward....

I saw on another thread that you have a slightly abnormal eeg, but treatments have not helped. What treatment have you tried? What does your doctor think these are? Do you see a neurologist?

I am not sure how long this has gone on. I hope you can get answers soon. It sounds like these interfere with everyday life. Keep looking for answers. I cannot say what they are, I am not a medical person. It does sound concerning and you need it to stop, though....
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johnnnie

New User, Becoming EHEALTHy
Joined: 11 Jan 2006
Posts: 7
Location: scotland

Posted: 01-15-06 11:28am

Hi kayak I am on epilim 2000mgs per day and lamotrigine they have varied medicines and dosages but to no avail I have suffered for about 8 years but it is very bad at present there is a chance it could be heart related as I used to suffer from palpitations and when I jerk when trying to sleep when heart and chest tightens very frightening. I am seeing neurologist and he thinks something else maybe causing it so I am due another eeg sleep deprived so hopefully we can catch this when I am jerking
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kayakmom

Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004
Posts: 252
Location: Conn
Thanks: 2
Thanked:0

Posted: 01-18-06 01:28am

I hope you get answers! Have you seen a cardiologist yet? Hoping you can find the cause and have the jerks stop!
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johnnnie

New User, Becoming EHEALTHy
Joined: 11 Jan 2006
Posts: 7
Location: scotland

Posted: 01-21-06 10:20am

No I have not seen one I am a bit curious why hte doctor has not answered my question on here
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