My niece who is only 13 had a tumor in her
breast area, which was removed as it had
been growing rapidly. They said it was
not cancer, but sent it on to another lab
for further research, stating that they
saw perhaps precancerous cells. Now with
results back, they are putting this out to
the board of the hospital as for what to
do as they have never seen this in someone
so young as my niece's age. Stating that
they saw thyllodes which classifies the
tumor as border, reacurrance statis: high.
My question is, what is thyllodes, as I
cannot find anything online for that word,
it is spelled correctly according to my
sister as she repeated it to me via her
doctor giving her the correct spelling.
He did not go into any real details for
her, stating that he was not so sure
himself. Mind you all that this is a
very, very good hospital, known throughout
the united states yet it does not seem
that they are telling or giving any real
information. Does anyone out there know
this word and/or what it means,
thyllodes???
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lacyworks
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Thyllodes Posted: 01-22-04 18:42pm
I am in the same situation as you, but it
is my sister that had a lump in her breast
removed on monday (1/19/04) and it was
determined to be this "thyllidoes" word.
She is in texas, and her physician said
the same thing as far as knowing
information about this condition or
"tumor." she will undergo more surgery on
the 29th of this month that will remove
that breast since this word is related to
cancer. Will you let me know if you hear
of any different information? My sister
is not as young as your niece is, but she
is 45. Still our whole family is trying
to research this. I will also post on
here if I run across any other
information.
Thanks,
debbie
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lacyworks
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New Information. Posted: 01-22-04 20:08pm
After searching more and more I have
discovered that thyllodes is actually
spelled and pronounced "phyllodes." there
is tons of information when searching this
word.
Good luck!
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darlene prater
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Thyllodes Posted: 12-03-07 01:38am
I found out thursday that I had a tumer
call thyllodes;can any one tell me more
about it please. thank you Darlene
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Ivy25
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Posted: 02-09-08 21:51pm
This is what I found.. Phyllodes tumors
are rare solid lumps that usually present
as a mass found during a woman’s breast
self-examination or on a routine physical
examination. Smaller masses may be
detected mammographically. Phyllodes
tumors appear very similar to a benign
lump known as a fibroadenoma. These lumps
are usually well circumscribed and
painless. Imaging evaluation including a
mammogram and ultrasound is usually
performed and when a solid lump is
identified a biopsy is important to obtain
tissue for accurate diagnosis. A phyllodes
tumor cannot be differentiated from a
fibroadenoma by a needle biopsy. This
means that your doctor may not be able to
accurately tell you whether a solid lump
is a benign fibroadenoma or a phyllodes
tumor. Risk factors for phyllodes tumor
are rapid growth and size greater than 2
cms at the time of the evaluation. In many
cases your doctor may recommend complete
surgical removal of this mass to ensure
that it is not an underlying phyllodes
tumor.
Phyllodes tumors are not all cancerous.
Many will be classified as benign and not
require further evaluation. A skilled
pathologist is needed to distinguish a
benign phyllodes tumor from one with more
aggressive malignant potential. In any
event, women who undergo surgery for
removal of a phyllodes tumor require close
surveillance with followup mammogram and
physical examination at regular intervals.
Malignant phyllodes tumors are best
managed with a wide excision of normal
breast tissue around the tumor to obtain
clean margins. In most cases, radiation
therapy is not required. Very large
malignant phyllodes tumors may require
complete removal of the breast for
management.
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