Hello everyone.
I hope my little but some what long story will help all of you!
I am 31 and for the past 14 years I have been dealing with same pain as all of you have described. It's all seemed to have started when I was 18 years old. I was also having a sudden sharp pain in the ear,eye and top of head area. It seemed like someone had just shoved a knife in my ear and it was coming out my eye. My eye would feel like it had just sunk into my skull. The pain at first would only last a few minutes then slowly fade away. It wasn't until I was about 20 when I finally went to the doctor for the first time. I was sent to a neurologist and I was diagnosed with trigental neuraglia. (don't know coreect spelling) I was put on neurotin. The medication was doing nothing. For the next 4 years I spoke to tons of neurologist and pain clinic doctors. They finally gave up on me and said they that I was making up the pain. For 4 years I was living on pain killers that I got so immuned to that they were doing nothing for me. I then one night sat at my computer and just happened to do a search on trigental neuroliga, and a doctor from the pittsburgh area where I am from was on there. He happened to develop this operation to relieve the pain from patients dealing with this unrepairable diagnoses. I couldn't believe that io had finally found a doctor that might be able to help me after all these years. Afterall the pain had gotten so bad over the years, the pain seemed to have never went away. I made a appointment with his office, and told his nurse about the problem I have been having. Within a few minutes from hanging up the phone with her, the doctor had called me himself to tell me to get to his office asap. The first thing he did was perform a cat scan and mri. The following week when my results were back, I was back in his office getting a real diagnoses. I don't really know what the medical term is, but he called it rosner's syndrome. What is it? When you get old, everyone's brain sinks, but it is nor supposed to sink below a certain level. Mine brain on the other had was too big for my head. (that's what he told me folks) my brain had sunked so low that it was crushing my spinal stem in half. He said that my brain was to big and the pressure from all the fluid and blood had no where to go, so it was pushing the brain further done into my neck. We then discussed operating, to fix the problem. I underwent the operation 6 years ago, march of 1999. It changed my life. It wasn't the most easiest thing I had to indure, but I must say, it took my pain away. I have been healed now for 6 years and it feels great. Now I do have to say, that when I had my first child, the pain did come back 1 week after giving birth. It was caused my the pressure for the epidural. The pain only lasted for about 1 month or so.
So please I hate to hear about all your pain. I only wanted to share my story with you, because I know how much pain I was in, and there was only one doctor, that was able to take care of me. So please all go to the doctor and tell them you want a mri and a cat scan, to make sure your brain is not pushing on something it;s not supposed to.
P.S. I don't believe, you have migrains. I really think you need to get mri's! Please post back to let me know if my story helped anyone out. Or if you have any other questions.
Good luck to all
