my husband was diagnosed with progressive
ms last year --he is 57. We have had a
very poor marriage prior to his illness,
with me suffering a lot of
verbal/emotional abuse and occasional
physical abuse from him. It has been this
way, on and off for the past 30 years of
our marriage. I am now comtemplating
leaving him, but the ms diagnosis is
causing me a significant amount of
guilt/agony. No one can tell us how this
disease will affect him long-term. He is
still mobile, walks with a cane and goes
to work. Will he ultimately end up in a
wheelchair? I can't find much useful info
on ppms and the doctors are noncommital.
Does anybody have any information on ppms?
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aura
New User, Becoming EHEALTHy
Joined: 17 Dec 2005 Posts: 33 Location: Belgium
Outside Help Posted: 01-01-06 13:07pm
You will suffer more otherwise. Saving
the marriage? I know what you mean. It
seems beyond the mere interpersonal.
Regarding guilt and ms. It is a matter of
setting things up for the future, whether
you divorce or not. You will still need
help one way or another. If it is a habit
of abuse that cannot be stopped then the
answer for me is simple, and maybe this is
his payment. Not very merciful but people
gotta learn, right? Do you think you are
provoking anything which can be changed?
Again therapy can help in this radically.
He may change radically. Ms has a way of
altering the personality. His weakened
state may provoke resentment as you become
more powerful as well. It depends upon
how enlightened the both of you are in
this. If the spouse is definitely
hopeless and abusive then...But if there
really is a way - it would be nice to have
a decade or so of freedom I must admit -
to remain together harmoniously, well
divorce is very complicated and expensive,
and you never break free completely. But
in separation - which can be without
divorce - you can visit and leave at will.
Almost any marriage counselor knows the
ropes. Call the ms society on this issue.
They can refer you to specialized
counselors. You went here for outside
help, right?
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aura
New User, Becoming EHEALTHy
Joined: 17 Dec 2005 Posts: 33 Location: Belgium
Ppms Posted: 01-01-06 13:24pm
Sorry, I missed that point. This can be
very slow allowing many years of
functionality. Or it can result in a
sharp decline. Doctors cannot commit
because predicting the outcome of ms is
impossible. Some radical ppms just
disappears on am mri. Also ppms can
suddenly become excaerbating-remmitting
ms. The problem is that ms is a mechanism
where lesions appear anywhere they want to
whenever. Not to scare you, but this is
simply a fact. Take it from someone
standing and working after almost 20 years
with these forms. This is the strangest
disease around probably, so expect the
unexpected. Take each day as it comes and
make sure the rest of the body is healthy
with a lot of pure water and good balanced
diet. Www.Andrewweil.Com
- www.Watercure.Com.
Also, prep yourself as a care giver. You
have to be twice as physically together -
a good excuse to cut down on donuts and
coffee. For him vit. B complex (strong).
400 units vit e and omega3 daily. You
will be in my prayers tonight. It always
helps to know someone loving is out there
can really cares for just you even if we
haven't met.
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mugs
New User, Becoming EHEALTHy
Joined: 22 Dec 2005 Posts: 4
Thanks For Your Reply Posted: 01-03-06 13:05pm
Aura:
it was kind fo you to respond. Do you
have ppms? I wish you all the best as i'm
only beginning to understand all the
ramifications of this terrible disease.
Husband is so far pretty highly
functioning - has some significant
weakness in both legs - especially the
right one. Probably should be using a leg
brace but is not ready for that -
emotionally -- yet. No cognitive
impairment but I gather that' s not one of
the features of ppms.
I pray that whatever happens with our
marriage he will find support - I would be
willing to be there for him but doubt he
would accept me post divorce. This is why
I agonize about leaving. I know some of
these people end of as "quads" which
really scares me - others have only
moderate deficits.
I put us in god's hands.
God bless
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steveandmarla
New User, Becoming EHEALTHy
Joined: 14 Jan 2006 Posts: 17 Location: North Texas
Posted: 01-15-06 01:12am
Mugs,
have you and your husband considered
looking at alternative treatments
(non-drug) for treating the ms? Send me
a private message or an email if you would
like to know a possible treatment i'm
aware of for this.
God bless
|
all4him
New User, Becoming EHEALTHy
Joined: 08 Sep 2007 Posts: 2 Location: ,
Empathize With You Posted: 09-08-07 08:05am
I can empathize with your situation. My
husband was diagnosed 14 yrs ago with MS.
Currently his means of mobility are a
walker and wheelchair. I, too, have been
unhappy for the last several years and
have been considering divorce.
I would like to know more of your
situation, that is if you desire so to
share with me.
|
mugs
New User, Becoming EHEALTHy
Joined: 22 Dec 2005 Posts: 4
Posted: 09-09-07 06:09am
Well it's two years later and I'm still
with my H. His MS has of course progressed
and althought he can still walk with a
cane, he really needs a walker or wc for
outdoor excursions. I am still struggling
every day with the decision to leave him.
He was never a good husband to me when he
was healthy bit if course now that he has
MS he thinks I should stay. But staying
for me means giving up on my happiness for
ever - alife without intimacy, passion or
fun. We haven't had sex for 20 years and
he has no interest in changing things and
won't go to counselling.
I couple of years ago I reconnected
(innocently at first) with my childhood
sweetheart and we had a three-year affair
( now over). It showed me what a normal
relationship with intimancy and passion
could be like and now I can't see settling
for anything less. I have decided to try
and seprate again next spring, but I don't
know what shape H will be in by then.
It's a very horrible place to be in --
please feel free to PM me if you need to
talk.
|
TaoWarrior
New User, Becoming EHEALTHy
Joined: 01 Sep 2007 Posts: 16
Well Posted: 09-09-07 20:47pm
I don't want to pry but if your
relationship has been that bad for 20
years why did you stay so long?
I don't think that there should be any
guilt involved, the MS is a side issue and
if he plays emotional games with you he
will surely use it, so be prepared for it.
Marriage can be very tough I know I have
had to put extra effort into it since I
was diagnosed. I have a tendency to have a
short temper which never happened before
MS and to get very quiet and withdrawn. I
also have so much on my mind that I have
been less interested in sex, so being a
good husband and not alienating my wife
has become work not just something I do. I
have to consciously focus on talking to
her, not getting angry with her for
nothing and making her feel sexy even when
I don't feel up to it.
If I have to work at it now when it always
came easy in the past I would imagine that
a man who was never good at it would get
even worse because he won't put the effort
out.
However in some the feeling of dependency
could cause an otherwise un caring husband
to step up with graciousness and
gratitude. After two years you, I'm sure,
have a much better idea of how this will
play out and ultimately only you can
decide what is right for you.
However if you are already decided and
just need your guilt assuaged let me tell
you coming from the sick husbands
perspective, it sounds like he has brought
this on himself without any help of MS so
walk away guilt free.
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QuantumGravity
New User, Becoming EHEALTHy
Joined: 24 Jul 2007 Posts: 9 Location: Chicago
to Mugs Posted: 09-10-07 07:52am
Hi Mugs,
I disagree with TaoWarrior that MS is a
separate issue. In my case at least... my
wife's MS has drastically affected her
personality. I am certain the decreased
mobility and discomfort (fibromyalgia
pain) have taken its toll... and brought
her depression... but in the end... she
has lost a lot of brain matter to atrophy
and has the brain of 90 year old (she's
44).
I do not know how you coped without
physical intimacy for 20 years! My wife
and I haven't been intimate in 2 years and
even when we were intimate, it was deeply
unsatisfying. She was always in pain
during love making... having sex always
had the anticipation of failure in it.
I began having panic attacks in april when
I was coming to the realization (or facing
the facts) that I don't love her in a
romantic sense anymore... and that for my
own sanity I have to leave. She mistreats
me and is verbally abusive. To add to the
stress, we have a severely autistic
daughter.
I need to save myself so I can focus my
attention on my daughter. My marriage is a
lost cause...
QG
|
holman
New User, Becoming EHEALTHy
Joined: 22 Sep 2007 Posts: 3 Location: Worthing, west sussex England
Ms And Divorce Posted: 09-22-07 16:34pm
Hi I am 63 years old . I gave up work 7
years ago to care for my wife who has ms.
Since about a year after this my wife
started to change and exhibited some
dramatic mood swings . She made great
efforts to keep any of my old friends at
bay and would make excuses to avoid my
children visiting us whilst at the same
time stopping me talking to hers ( we are
second marraige ) Recently I took a two
week break (the first away from her for 12
years)after arranging outside help which
she declined stating she would make her
own arrangements.During the 5 weeks prior
to my break she made my life very
difficult with both verbal and physical
abuse ,she changed all our banking
passwords and redirected her dla away from
our household accounts and this situation
still continues causing extreme financial
problems.I pressed on and had a fantastic
time doing nothing! Upon my return to this
angry and uncomfortable house I realised
that it was so important to have time to
oneself and so I requested one weekend off
in four ,this set her off again to the
point that she is seeking a divorce and to
sell the house and she threatens to claim
the majority of the equity on grounds of
her illness. Any ideas?
H
|
san54
Experienced User , Rather EHEALTHy
Joined: 28 Dec 2003 Posts: 227 Location: Virginia
Ms And Divorce Posted: 09-22-07 17:06pm
I was told by my doctor that it is very
unusual for people over 50 to get MS. I
have Relapse/Remitting MS. It may be
years before he starts to get worse, if at
all. He may even get worse verbally with
you trying to deal with the day to day
struggles of MS. You both need to talk to
someone. If you are not happy in your
marriage even with the MS, don't stay in
it. Talk to your Pastor or find a doctor
that really knows about MS. They are few
and far between. Don't be discouraged.
|
QuantumGravity
New User, Becoming EHEALTHy
Joined: 24 Jul 2007 Posts: 9 Location: Chicago
Holman.... Posted: 10-03-07 08:08am
Holman... I have an uncle who had a wife
with mental illness... he stayed with her
like a trooper... and it put him in an
early grave. He died before he was 60. The
stress and grief and sedentary lifestyle
killed him. You might want to consider a
divorce and let your wife's care be
handled by professionals.
Living with a spouse with M.S. (and
exacerbating that with a daughter with
Autism)... has become torture. Her own
family has remarked so many times that
they don't know how I've stuck it out...
and my family fully supports my decision
to leave. I tried for seven years in this
negative and abusive environment.. and I'm
exhausted. There's nothing left to do but
to divorce and see that her living needs
are met... while still being able to
accommodate my daughter's needs.
She has threatened to take EVERYTHING in
the divorce... including custody, but she
is clearly too frail and incompetant for
custody of a nine year old autistic. I'm
petitioning for custody and an equitable
share of marital assets... and if she's
cooperative, I'll see to it that she finds
a good place to live (independent living
community???) I'm getting little to
cooperation from her extended family.
They're living in denial and it's not
helping anybody.
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mugs
New User, Becoming EHEALTHy
Joined: 22 Dec 2005 Posts: 4
Posted: 10-04-07 15:22pm
These posts have been helpful to let me
know I'm not alone.
My husband can still walk (though not very
well and only a short distance) and can
still take care of himself so I know I
should leave before he becomes too
dependent on me. I just feel that the
stress and unhappiness involved in taking
care of someone who has not been good to
me in the past will leave me bitter, sick
and old before my time.
I just don't know how to tell him -- he
will be angry and crushed at the same
time. But staying means a slow death for
me.
|
akn
New User, Becoming EHEALTHy
Joined: 26 Oct 2007 Posts: 3
Relationships With Ms Posted: 10-26-07 14:41pm
Hi! I just wanted to let you know about a
program given by the National MS Society.
It's a program that works with couples
living with MS. It's free! So it's worth
checking out, right?