Hello everybody. For the past 8 years I have had these two tumors on the back of my head. I have a condition called neurofibromatosis. This condition causes binine tumors to grow at random places on the body, and the tumors are often very painful. :( ive had pretty much constant pain with these tumors over the past 8 years, im 25 and the sharp pain I get is so terrible that I am bedridden. I cant go to work let alone get up out of bed. Unfortunatly opioids are the only meds taht seem to work. I hate taking them cuz of how addictive they are but its better than spending my life in bed. I recently moved to the phoenix area and do not know of any credable drs that can treat this condition and would appreicate anyone who knows of any to please reply.
Ali