How Different Is Treatment For Cf Around the World? Posted: 12-18-05 18:12pm
Hi, I have a son with cf age 13 and I was
just wondering what sort of treatment
everywhere else gets. We are in uk and
at the moment he has a flutter for
breathing exercises. He's also on
augmentin duo for coughts which he stays
on for 3 weeks. I suppose it varys on how
well they are but it's interesting to know
how everyone are treated. Also has anyone
got any advice or tips or anything that
could help my son cope with cf. Thanks
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cwegemer
New User, Becoming EHEALTHy
Joined: 27 Jun 2006 Posts: 3 Location: US
Posted: 06-27-06 21:24pm
Hi, I also find it extremely interesting
i think the average person at my care
center in philadephia in usa is on the
vest machine 2 times a day (or chest pt)
your son is lucky if he is doing well on
just the flutter
i have heard that norway and sweden have
very interesting methods
i dont know the details, but they are very
focused on using athletic excercies, ie
wheelbarrows up stairs, to reduce mucus
a group of cf patients from sweden came
and ran the nyc marathon
i have also ran a marathon and strongly
believe that staying in shape is the main
reason why I am healthy today; encourage
your child to play every sport he can,
dont buy video games for him!
I have also heard that older patients
across the us dont even rely on machines
or gismos, but rather just do breathing
exercises, ie autogenic drainage
i would love to hear from others what
types of unique treatment they are on
Hi, my son has cf and he has the vest.
He has the flutter and he does that once a
day. The vest he does one to two times
aday. At his school, he can keep his
emzymes with him (he doesn't have to go to
the nurses office to take them). He goes
to the doctor's office every 3 months.
He drink scandishakes everyday. That
helps him gain weight. Hiya, did you
ever hear of scandishakes? I live in the
usa. I use to give him cpt, but the vest
does a better job. He has been doing the
vest for about 7yrs. What kind of
treatments does your son do?
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