Hi
if there is anyone who can give us advice or any info on childhood seizures this would be greatly appricated. Let me tell you our story-
my 5 1/2 yr old son went camping sept 27 with my sister and our parents. We got a call saying shane got hurt on the playground and everyone thought he hit his head on a spring type horse ride caue he was unresponsive and not all "there".(my bro-in-law found him laying on the ground). My sister and mom rushed him to the local hospital and the er ran an cat scan and it came back fine. Shane did not have a skull fracture or any marks/goose egg on his head(which we all thought that was weird if he hit his head on the horse when he fell down). We followed up at family dr and then 12 days later I heard a noise in his room and he was having a seizure(we know that now) and so we could not get him to respond we rushed him to our local er and he had a grand mal seizure there. We then was rushed to our local children's hospital 40 min away. He has had 3 eeg's and 1 mri, the dr said that she saw some scarring from the mri and she said he might have had a intro utro stroke before he was born since the cord was wrapped around his neck 2 x's. Since he has had more than 2 seizures in 2 weeks she said that he has epilepsy.So since oct 2nd he has been on trileptal(now off it) depakene-up to 8 ml 3x's a day and now this last week the nero dr has started him on keppra 2ml 2 x's a day along with the depakene. We have noticed a big change in his behavior and he seems more drugged and slow. We have also used diastate to stop the seizures if they last more than 5 min or if his breathing is affected from the seizures. Last week he had to have the diastate 2 times! When we was at the dr dec 7th I questioned her on all the times i"ve had to use the diasate and she seemed not concerned and we really did not want to put him on the keppra and keep drugging him up. We have an appt in cincinnati, oh children's neuro dept in jan to get a second opnion. I guess what we would like to know is are we doing the right things with shane and is there any long term side effects to him being on all this med and taking the diastate. His dr told us that since we still don't have his seizures under control he can now get congotive learning problems. We don't want that and I also read on one of the postings that someone's child died from epilepsy?? :( could someone tell me about that and is that something that we need to keep an eye out on!!!! Please help!!!! :cry: