Caroline this sounds scary. Did the doctor run any tests? Sounds like having an eeg and maybe see a neurologist to see what he thinks this could be?


I hope you find answers. If you have another you might try going to an er to see what they feel is going on.....

Hey thanks you for writing back to me! Yer it was very scarying for me I was all alone too so eve more worring thought! Do you have epilepsy then could I chat to you! About it! My heands and arms somtime just start shakig and sometime do not stop!

Caroline!

Rep back please thanks you

My son has had it for over 7 years, half his life. His sister went through a brief time of seizures for around 1.5 years which has now found remission. No, I do not personally have it, but I know quite a bit through reading and experience with my kids.....

Did you get to a doctor? Have an eeg?

G

Hey thanks you for that I have some called water on the brian so I have to ct scan a lot! But the doc's say to go back if it haped agine

caroline
so I do not know what to do!

Hey caroline, if it happens again, ask your doctor for a referral to a neurologist to get it all checked out. Is it hydrocephaly that you have? That can be a cause of seizures and headaches.....

Hey I do have hydrocephaly I have it all my life! I have very bad headaces there called menigies thought! And last night something happed to me I was told after I woked up I have a seizure and I did not no nothing about ti nothing at all he said to me this is my boyfrined he was going to ring an 999 for me I am under a neurologise surger at the hostapl any way! I have been told that seizoues can be course by having a fits and I k now you can get very bad headas too!

Bye for now caroline

ps what can I do now that I have had a nother fit I am going to be on by one for a few night he has to go home and I be on my own how will I know I am safe!

Can you get back to me please today if so!

I am so sorry you will be on your own. I am sure it is very scary. Time to talk to the doctor about going on anti seizure meds maybe. Have a friend or relative call to check in with you each morning would be a start.

Ask your doctor what you can do to be safer....

Hello I am not sure of your name but thank you for all your advice I know I should be going to the docs but I thought I could see if it happed in the next week or so my heads and legs and arms keeping going mad this moing when I have had the fit becouse I woke up after

could I talk to you thought.

i would llike to chat to some all about what I am going thoght!


Please get back

My name is ginny. Sorry I no longer give out my email. Had a problem with a forum member here who forged my email to try and get me into hot water.

I am more than happy to post like this and try and help though.....


Sorry you are having more problems in the morning. Some seizures do tend to come in the early hours....

Take care!

Hi thats is ok I would not send you emaill address to anyone but that is ok I send post like this! Yer I am it happed this moring when I was in bed could a been about 2 ocl and I do not know what to I am scared about beeing on my self!

Please call your doctor. He needs to know what is going on and give you answers and help....

Hello yer I know that I whated to know what other people thought it was first becouse I had been to the doc's and there did not what to do anything for me!
Caroline

get back to me!
Are you on the board at the momet