Epilepsy Forum - Need Help! Please Thank You!
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cool2005

New User, Becoming EHEALTHy
Joined: 25 Nov 2005
Posts: 34
Location: nottinghamshire
Need Help! Please Thank You!
Posted: 11-26-05 10:33am

Hey everyone here I hope we are all well!

I am caroline bowman 21years old

3weeks ago I was not feeling very well and I was a sleep in e bed I woke up about dinner time and I started shaking for abouot 3-4 mints I could not stop shaking and now my heads and arms legs will start to shake all on there own! On the wensday of the same week I was tiyed I was laying on my boyfriends bed I staying shakeing or somthing it was ridling! And I can all ways remmber this I sometime wakes me up from my sleep then the next day I am all ways very tiyed

can anyone help me out!

I have been to the doc's too

caroline










i have a few qusitons for ask you if you can help!
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kayakmom

Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004
Posts: 252
Location: Conn
Thanks: 2
Thanked:0

Posted: 11-26-05 11:59am

Caroline this sounds scary. Did the doctor run any tests? Sounds like having an eeg and maybe see a neurologist to see what he thinks this could be?


I hope you find answers. If you have another you might try going to an er to see what they feel is going on.....
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cool2005

New User, Becoming EHEALTHy
Joined: 25 Nov 2005
Posts: 34
Location: nottinghamshire
Hi Thanks You
Posted: 11-26-05 14:04pm

Hey thanks you for writing back to me! Yer it was very scarying for me I was all alone too so eve more worring thought! Do you have epilepsy then could I chat to you! About it! My heands and arms somtime just start shakig and sometime do not stop!

Caroline!

Rep back please thanks you
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kayakmom

Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004
Posts: 252
Location: Conn
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Posted: 11-26-05 15:44pm

My son has had it for over 7 years, half his life. His sister went through a brief time of seizures for around 1.5 years which has now found remission. No, I do not personally have it, but I know quite a bit through reading and experience with my kids.....

Did you get to a doctor? Have an eeg?

G
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cool2005

New User, Becoming EHEALTHy
Joined: 25 Nov 2005
Posts: 34
Location: nottinghamshire

Posted: 11-27-05 07:16am

Hey thanks you for that I have some called water on the brian so I have to ct scan a lot! But the doc's say to go back if it haped agine

caroline
so I do not know what to do!
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kayakmom

Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004
Posts: 252
Location: Conn
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Thanked:0

Posted: 11-27-05 07:54am

Hey caroline, if it happens again, ask your doctor for a referral to a neurologist to get it all checked out. Is it hydrocephaly that you have? That can be a cause of seizures and headaches.....
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cool2005

New User, Becoming EHEALTHy
Joined: 25 Nov 2005
Posts: 34
Location: nottinghamshire
Hey Thanks For This Rep
Posted: 11-28-05 06:47am

Hey I do have hydrocephaly I have it all my life! I have very bad headaces there called menigies thought! And last night something happed to me I was told after I woked up I have a seizure and I did not no nothing about ti nothing at all he said to me this is my boyfrined he was going to ring an 999 for me I am under a neurologise surger at the hostapl any way! I have been told that seizoues can be course by having a fits and I k now you can get very bad headas too!

Bye for now caroline

ps what can I do now that I have had a nother fit I am going to be on by one for a few night he has to go home and I be on my own how will I know I am safe!

Can you get back to me please today if so!
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kayakmom

Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004
Posts: 252
Location: Conn
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Posted: 11-28-05 08:58am

I am so sorry you will be on your own. I am sure it is very scary. Time to talk to the doctor about going on anti seizure meds maybe. Have a friend or relative call to check in with you each morning would be a start.

Ask your doctor what you can do to be safer....
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cool2005

New User, Becoming EHEALTHy
Joined: 25 Nov 2005
Posts: 34
Location: nottinghamshire
Hey Thanks You
Posted: 11-28-05 11:55am

Hello I am not sure of your name but thank you for all your advice I know I should be going to the docs but I thought I could see if it happed in the next week or so my heads and legs and arms keeping going mad this moing when I have had the fit becouse I woke up after

could I talk to you thought emila mine is

caz bow2005@hotmail.Co.Uk

i would llike to chat to some all about what I am going thoght!

Please get back
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kayakmom

Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004
Posts: 252
Location: Conn
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Posted: 11-28-05 12:40pm

My name is ginny. Sorry I no longer give out my email. Had a problem with a forum member here who forged my email to try and get me into hot water.

I am more than happy to post like this and try and help though.....


Sorry you are having more problems in the morning. Some seizures do tend to come in the early hours....

Take care!
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cool2005

New User, Becoming EHEALTHy
Joined: 25 Nov 2005
Posts: 34
Location: nottinghamshire
Hello
Posted: 11-28-05 13:34pm

Hi thats is ok I would not send you emaill address to anyone but that is ok I send post like this! Yer I am it happed this moring when I was in bed could a been about 2 ocl and I do not know what to I am scared about beeing on my self!
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kayakmom

Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004
Posts: 252
Location: Conn
Thanks: 2
Thanked:0

Posted: 11-28-05 13:39pm

Please call your doctor. He needs to know what is going on and give you answers and help....
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cool2005

New User, Becoming EHEALTHy
Joined: 25 Nov 2005
Posts: 34
Location: nottinghamshire

Posted: 11-28-05 13:51pm

Hello yer I know that I whated to know what other people thought it was first becouse I had been to the doc's and there did not what to do anything for me!
Caroline

get back to me!
Are you on the board at the momet
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