Epilepsy Forum - Trgretol...photosensitivity.....and...normal Eeg Reading.

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Q: Trgretol...photosensitivity.....and...normal Eeg Reading.

asked by: sami_1982 on December 14th, 2003

Experienced User

Hiya everyone,
im on tegretol, I have recently been diagnosed with epilepsy I am 21yrs old. The tegretol isnt working I have been told I have a rare temporal lobe epilepsy because I am photosensitive also. Although I have no known abnormalities so far. But I am still having what they call grand mal and absence seizures daily. I also get weird squiggles in my eyes and headaches that go from front to back of my head. Then I feel like I am really weak or light headed dizzy and like I am having dejavu sometimes my feet feel strange also like tingles all over. Anyone else feel like this. Question

the photosensitivity part is I cant look at a t.V or a p.C screen on an angle or look at the trees flicker with the sunlight or handle and flickering lights at all or camera flashes. Camera flaches make me have grand mal seizures with in 2 minutes or less usually I get no warning found this all out when I was out with my family for dinner I was so Embarassed

anyway hope someone out there can help me.
Thankyou sam Smile

Replies(2)

jamal

replied on December 19th, 2003

Experienced User

Meds

Hi sami
im on the same page as you. Only i've had brain surgery in june of 2002. I was diagnosed w/ epy in 98 and trying several meds and seeing 4 neuros. Finally after they all suggested b.S. I ended up at u.C. Davis. After trying several meds with allergic reactions to alot of them the same ones you talk about. I got worse and worse over those 4 years. My boss let me go, could'nt drive anymore. So I decided to go thru the b.S. After several trips back and forth to sac from oroville for a little overa year with alot of testing I finnally had the surgery. I'm much better. So you take care jamie

replied on December 22nd, 2003

New User

Hi sam
tegratol is he main drug used to treat front/temporal lobe epilepsy. Normally it is not taken alone and is complemented with another aed depending on severity and seizure types.
Photosensitivity is very common and you are not alone. Strong fluorecent light are the main culprits to trigger seizures (like the ones in shopping malls - they make everything look white)
i was unable to sit infront of a pc monitor without having a seizure now I am a software designer and spent most part of my day in front of a pc monitor.
Unfortunately, treatment of epilepsy relys on trial and error as epilepsy can be as individual as the person who has it.
You are not alone
jc

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