i also see your words
offensive kayakmom. Its not your
business on how the contribute there
moneys.
Caringmom....
i am new. I was recently diagnosed with
epilepsy and as indicated by my post above
was interested in any means of promoting
awareness. Anyone I tried to talk to
about my dx seemed to only know inaccurate
information about it. All I asked was a
simple question and instead all I see is
more fighting and some weird pm telling me
how evil someone is who I don't even know.
I didn't even know if I wanted to come
back here! Why are you so bent on
attacking her? I am not stupid and I
know how to use google so I did some
research myself and let me tell you~ I
might be new to epilepsy but I am not new
to internet message boards and I don't
like what I see here. This kind of bs
shows up on every message board I have
been a member of... I thought health
boards would be different but I guess I am
wrong. What I found confirms what I have
seen on pretty much everywhere- the ones
that come out attacking people and flaming
people about ot crap that has nothing to
do with the thread at hand are usually the
ones that are the jerks and not the other
way around. What does this have to do
with awareness? Do you really think this
is going to make friends?
And caringmom- have you ever seen the
definition of a nonprofit organization in
legal terms? It most certainly is
anyone's business where their donations
go. With all the dishonest people out
there that prey on innocent people, it is
not unreasonable to want to know where
your money goes! No one here has said
they are not legit, my goodness what was
wrong in asking?
|
mom2_4kids
New User, Becoming EHEALTHy
Joined: 03 Feb 2005 Posts: 16
Posted: 12-03-05 15:37pm
Heaven help us.
I see the queen b is back tormenting this
family again.
If you dont' like them why don't you be
the wonderful person you claim to be and
leave them alone. Hold on.... (sorry I
was choking on my last comment about her
being wonderful)
it seems you always start either around
dannys birthday or the 26th of dec when he
died.
This shows that yes you are very much ill
as others state.
How hurtful and hateful can you be to
torment them in times you should be
supporting them
what a wench
|
kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
Thanks: 2
Thanked:0
Posted: 12-03-05 18:22pm
I am sooo glad you posted that link. If
you read, none of my posts are edited yet
you claim in my edited one it says I have
had charges pressed against me for
munchausen.
I have not ever had any charges against
me. Yes I did have a couple of doctors
discuss if this is possible. My ped did
not ever go further with is. If he had
any doubt he would be legally responsible
to do this. My son is now treated by an
epi has has seen for over a year and a
half. My daughter has seen her neuro for
almost a year. Both are being treated as
minimally as possible.
Yes, emmy I know who you are. You are not
very subtle. I do not blame you for
believing lies that have been told to you.
It just makes me very sad.
If you really read this thread, there is
no sign of me bashing anything. You all
are bashing and lying about me.
I do not post negatively about her. I
just asked a simple question. Any one who
gives to a non profit has the right to
know how money is used.
I do not attack her at this time each
year. I am the one under attack.
God knows my heart, my intent and what I
have done.
Emmy did a wonderful job in linking that
thread. It shows I accused no one. I
posted it because it was requested. Other
posters did make accusations on it about a
poster.
Read and you will know. Sad that you feel
the need to be nasty.
|
mom2_4kids
New User, Becoming EHEALTHy
Joined: 03 Feb 2005 Posts: 16
Posted: 12-03-05 18:58pm
Unreal you were right hit the nail on the
head
dance puppet dance. :lol:
i believe it was stated that anyone could
email jen
i too have done searches and see that this
kayakmom,is nothing but trouble I am so
glad others see this.
|
*michelle*
New User, Becoming EHEALTHy
Joined: 20 Nov 2005 Posts: 6
Posted: 12-03-05 20:33pm
Quote:
i too have done
searches and see that this kayakmom,is
nothing but
trouble
show us, please. All of you like to
rant but I am not seeing much of any
substance. Don't insult my intelligence
here by thinking I will be naive enough to
just believe you because you'll scream
loud enough about it.
If any of this is true- what the hell does
munchwhatever have to do with the wader
family? What does her child have to do
with the waders? What does her
children's neuros have to do with the
waders? What does anything she was
accused of elsewhere have to do with the
waders? Why are all of you so freaking
intent on shoving aside the main topic of
this thread and anything that the waders
actually are doing? It is so
interesting how that is being ignored
here.
Listen, I don't have the benefit of
knowing who any of you are. All I can
say in googling this lady is that she's
been part of the online communities her
name pops up in as far back as 2001.
From what I can tell of everyone here and
on the other sites where she has come
under similar attack, the worst of it has
come for the most part from user names
that have only been around for the last
year or so. That tells me something.
Give some proof or grow up.
|
kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
Thanks: 2
Thanked:0
Posted: 12-03-05 20:55pm
Lie # 1 [q]as far as other statements made
yes she has sent me nasty emails. She
has been banned form 2 sites I belong to
because of her disposition and
rudeness[q]
i am not banned from any site, ma'am.
Lie # 2 [q]interesting you use the term
grow up this is what I have asked ginny
for five years now[q]
i had not heard of you before you joined
efa in jan of 2004 or around that
time.....Not quite 5 years.
Yes, this thread shows many people saying
all kinds of nasty things about me. I
just asked, how the money helps people
with epilepsy and that question remains un
answered.
|
Kathie3
New User, Becoming EHEALTHy
Joined: 03 Dec 2005 Posts: 2 Location: USA
Backstabbing Is Rearing Its Ugly Head-go Figure Posted: 12-04-05 00:09am
You agree not to post any abusive,
obscene, vulgar, slanderous, hateful,
threatening, sexually-oriented or any
other material that may violate any
applicable laws. Doing so may lead to you
being immediately and permanently banned
(and your service provider being
informed). The ip address of all posts is
recorded to aid in enforcing these
conditions. You agree that the webmaster,
administrator and moderators of this forum
have the right to remove, edit, move or
close any topic at any time should they
see fit. As a user you agree to any
information you have entered above being
stored in a database. While this
information will not be disclosed to any
third party without your consent. The
webmaster, administrator and moderators
cannot be held responsible for any hacking
attempt that may lead to the data being
compromised.
Hmmm.
The above words are taken verbatim from
the core rules of etiquette, yet it would
appear that nothing more than profound
backstabbing is occuring here. Many
people in the "epilepsy" thread need to
get their own lives and stop living
vicariously through the lives of others.
You can do it j and d, I know you can. A
person looking for support does not do so
in a kind manner that is needed, by
showing nastiness to others. Time to
grow up. Move on and stop dwelling on the
past. Don't understand that statement?
Think about it; maybe it'll come to you;
that is unless your entire being is so
full of hatred for anything and anyone who
doesn't play your head-games.
If this post doesn't make it to the
boards, then so be it. I only signed up
to get my point across. I close my
letter by saying...Go pound salt.
Understand that. :d
now, that being said, ban me. I have no
desire to see, hear of, or be involved in
anything regarding this obvious attempt at
megalomania. Put this post whereever, I
honestly don't care.
Bye-bye
|
Banister
New User, Becoming EHEALTHy
Joined: 03 Dec 2005 Posts: 4
Posted: 12-04-05 08:26am
I want to make something very clear. I
am not a single persons puppet. It
appears that kayakmom has many dancing in
her loft. I have noticed though that the
more searching I do, the more her story
changes, very interesting. I found this
statement quite interesting to read,
considering the link that I posted below
states that she is still trying to "prove
that what we see is seizures" posted in
june of not 2004 but of 2005, and the
second link states that her son was just
put on medication this year as well, any
epileptoligist I know who is treating true
epilepsy for over a year and a half surely
would have had these children on
medication alot sooner.
I think we can honestly say the truth is
in the open.
kayakmom
wrote:
my son is now treated by an
epi has has seen for over a year and a
half.
edited: I decided that I should add the
actual quotes in case kayakmom goes in to
edit her remarks on these links: the full
version is here
link #1
kayakmom posted on: 2005/6/20 1:40
just popping in
joined: 2005/6/19
from:
posts: 5 re: new problem for our daughter
hi hellen, I am so sorry that your little
girl has had so much to deal with!!
Aspergers or autism carries with it a
higher risk of developing epilepsy by
10-20 %....Normal eeg does not alway
exclude a diagnosis of epilepsy but it
sure complicates things. My son has this
issue. After being treated for several
years a slightly abnormal eeg and
subsequent normals have take his treatment
away. We are still trying to prove that
what we see are indeed seizures.
The adhd symptoms can also come from not
treating seiuzres, so sometimes, if you
control those you will see the other
things decrease. Concerta is supposed to
be one of the safer meds for children who
have had seizures, but you are the best to
choose whether to medicate with that or
not.
My son also has adhd and for him, I give
him 6-8 ounces of a caffeine drink (coke
for him, others use coffee) in the morning
and it does seem to help him keep better
attention. He is less hyper as well. You
can repeat this in afternoon. I limit
caffeine at other times. It is a
stimulant so can help with some kids.
Depakote is another name for the
medication you are using. It can have
mood stabalizing affects for some and is
ok for seizures. These seizure meds are
really individual and it can take time to
find the right one for your child that the
side effects are not too bad and that
control the seizures.
Www.Epilepsy.Com is
a great source for info, they have good
info on medications too.
Www.Efa.Org is also a
great place for info....
Take care, hoping you find better answers
for her...
G
link #2
kayakmom posted on: 2005/11/20 20:53
just popping in
joined: 2005/6/19
from:
posts: 5 re: to medicate or not to
medicate?
Kit, I am so sorry she is having
seizures!! One reason to medicate is to
calm down that abnormal activity before it
goes further into other generalized
seizures like myoclonics or tonic clonics,
atonics, or tonic seizures are all scarier
and have a lot of impact.
Absence is a problem if she is unaware and
riding her bike or climbing she can fall
and get hurt....It also interupts learning
if she has blank time during the day! She
would keep missing things and it can make
it harder to learn.
My son, who does not have absence
seizures, but many other kinds.....He went
unmedicated for 3 years before being put
back on medicine this year. He has become
harder to treat in that time. His
learning was really impacted alot with
memory issues and thinking problems as
well.
I hope the mri went well for her and you
can find a good answer for her...
Absence only seizures are the most
frequently outgrown and often will respond
to medication easily.
|
Banister
New User, Becoming EHEALTHy
Joined: 03 Dec 2005 Posts: 4
Posted: 12-04-05 09:26am
kayakmom
wrote:
i am sooo glad you posted
that link. If you read, none of my posts
are edited yet you claim in my edited one
it says I have had charges pressed against
me for
munchausen.
what she said was:
emmy1
wrote:
i will submit a link for all
to view but of course it was edited about
the doctor telling this person she needs
to stop using this type of illness for her
own use.
and I personally went to that link, to see
if you had edited it to remove where you
stated you had been accused of this
syndrome...
And I found this:
complete posting:
kayakmom
posts: 21136
joined: 10/17/2001
"i posted a thread awhile ago and cannot
find it right now....Here is a copy and
paste of the med help article I can
find....
Quote:
------------------------------------------
--------------------------------------
munchausen by internet: detecting
factitious illness and crisis on the
internet.
Feldman md.
Department of psychiatry and behavioral
neurobiology, university of alabama at
birmingham, 35294-0018, usa.
Within the past few years, the internet
has exploded into a medium of choice for
those interested in health and medicine.
Along with the promise of immediate access
to authoritative resources via websites,
the internet offers "virtual support
groups" through formats such as chat rooms
and newsgroups. These person-to-person
exchanges, typically focusing on a
specific topic, can be invaluable sources
of information and compassion for patients
and their families. However, individuals
may misuse these internet groups at times,
offering false stories of personal illness
or crisis for reasons such as garnering
attention, mobilizing sympathy, acting out
anger, or controlling others. I present
four such cases and, based on experience
with these and other cases of "virtual"
factitious disorder and munchausen by
proxy, summarize indicators of factitious
internet claims and the reactions that
participants usually experience once the
ruse is recognized.
Quote:
-------------------------
ps 27:14 wait on the lord; be of good
courage, and he shall strengthen your
heart; wait, I say, on the lord!
Zonegran 300 mg
sam's veeg book
edited: 09/02/2005 at 09:41 pm by kayakmom
"
:roll: amazing!
John starr
|
HennieSnyman
New User, Becoming EHEALTHy
Joined: 30 Oct 2005 Posts: 24 Location: Arusha, Tanzania
Posted: 12-04-05 11:28am
How many epilepsy support group members
does it take to screw in a light bulb?
None.
They're outside, (in the dark) arguing
about who forgot to pay the electricity
bill, where the money went and why there's
no record of it.
:-)
|
caringmom
New User, Becoming EHEALTHy
Joined: 03 Dec 2005 Posts: 4
Posted: 12-04-05 12:06pm
What?????? Didn't understand that last
post at all!!
Caringmom
|
cool2005
New User, Becoming EHEALTHy
Joined: 25 Nov 2005 Posts: 34 Location: nottinghamshire
What Is This About Posted: 12-04-05 12:07pm
Hi there could somone on here who is nice
and evything cold exmale in short what you
all going on about I have just join here
so please be nice to me!
Caroline
|
*michelle*
New User, Becoming EHEALTHy
Joined: 20 Nov 2005 Posts: 6
Posted: 12-05-05 00:38am
Ok, let me clarify a few things here:
jennifer: when I referred to googling, I
was not googling you. I googled your
organization when I first replied to this
thread and I know how long it's been
around and why it was formed. Your
family has endured a terrible loss but
what is going on here has nothing to do
with your son so lets not confuse matters.
When I saw the character assassination
going on here with kayak I googled her.
She is the one I saw affiliated with
websites as far back as 2001 whereas most
of her attackers- whether here or on other
websites- have been usernames that have
only been around a short time.
And lets clarify something else- when I
asked you "show me proof or grow up", I
was not asking for links about your
organization, I was asking for proof that
she has attacked you. Instead of giving
me any proof you and your buddies go on
and on and on about munch or whatever that
is and neuros and meds. What does this
have to with you? Are any of you here
actually trying to imply that how many
doctors she's taken her child to or what
medication he takes has any bearing on
your family? Who cares about her
personal life?!? You & your friends
like to say she hates you and stalks you,
but with all the personal information all
of you are searching out about her to post
here, it sounds to me like it's the other
way around. At the very least, before
you go on and on about someone hating you
and attacking you, i'd think real hard
about how you are acting- you are doing
your fair share and more of attacking and
rallying as many people as you can to join
you. What I cannot understand is why-
why associate awareness with so much
hatred? Is that the legacy you want?
For the rest...
Banning from internet sites does not have
to rely on user names at all. If you
are truly banned you can try to log on
under any number of names but still not be
able to get on. Ip address!
Kathie3, well said.
Banister, I don't know when you bookmarked
those links, but they are broken now.
And where is the md after your name?
She said he's been seen by the epi for the
last year and a half, not treated. Have
you never heard of testing? She's
posted abundantly about the extended
testing he was put through. If these
are the straws you are grasping at to
prove this lady to be a "liar" than you
are on shaky ground indeed.
|
*michelle*
New User, Becoming EHEALTHy
Joined: 20 Nov 2005 Posts: 6
Posted: 12-05-05 09:33am
jennifer_wader
wrote:
michelle
seeing you shose to get in this you may
read the following link where all this
woman does is attack me
ok, I read your link, so in the interest
of fairness I also read the links in that
thread. It looks like you decided to
throw the first stones there by deciding
to publicly humiliate another family.
Quote:
if she dislikes
our family then she needs to ignore any
posts concerning
us.
if you dislike her so much, I would
suggest the same.
Quote:
you claim to be
new to epilepsy sites so I don't
understand why you are even getting
involved here. Unless those puppet
strings are getting
pulled.
i would suggest you not insult my
intelligence this way. I have a brain
and know how to use it. as I already
posted I may be new to epilepsy,
but I am not new to internet boards
and this kind of bs just angers me off.
I also originally posted as someone
interested in awareness, or did you even
forget that was your main purpose here
too? That was what my post was inquiring
about originally but instead I was
embroiled in this. I got involved
because emmy decided to try and privately
bring me over to her side after my first
post here by warning me about kayak. I
found that rather insulting and it
inspired me to do a little research about
all the people here involved.
And jennifer- yet again- you fail to
explain to me how any of kayak's personal
life has any relevance to you or your
family but in what I have found of your
posts- you, not just your buddies, you
continually harp on her and her care of
her child.
And when it comes to all that, I have to
say, I find it rather amusing that you
accuse her of harrassing you when it is
you that seems obsessed with dragging out
all the details of your life. I've not
seen her to that to you.
Quote:
ps kathie leigh,
keep in mind as you post we used to talk
and you yourself have complained about the
abuse of this
woman.
i would suggest you not insult her
intelligence either, whoever she might be.
Maybe she sees something different now?
Maybe you have gone too far here and
maybe she has seen just a little too much
of this kind of thing from you. (i know
I have.)
|
mom2_4kids
New User, Becoming EHEALTHy
Joined: 03 Feb 2005 Posts: 16
Posted: 12-05-05 09:40am
Why don't you mind your biseness michelle
if you are new to epilepsy you have not
been around to see the hurtful hateful
things this kayakmom,guitarmom,
guitarmomma, or kayak2mom has done to
other.
lmao just look at all her names so when
others see her for the snake she is she
changes neames and slithers back.
Jen I am so sorry you once again have to
put up with this immiture gargabe from an
internet troll who is very very ill.
|
caringmom
New User, Becoming EHEALTHy
Joined: 03 Dec 2005 Posts: 4
Posted: 12-05-05 11:43am
Mom2_4kids very well said!!!!
It seems that it doesn't matter how good
of an example that banister gives or jen
herself, its not getting through to the
ones that wanting to get there strings
pulled.
I think michelle should mind her busness
and so should kathie3.
Kathie you mention the core rules of
etiquette and say you all follow them.....
Well is picking someones posts and there
life apart etiquette???
Is sticking your nose where it doesn't
belong proper etiquette???
Is bullying over someone proper
etiquette???
That is what kayakmom,guitarmom,
guitarmomma, or kayak2mom or whatever else
she goes by does on a daily basis!!! And
you can not say any different!!
No I don't have to show anymore examples
because why should I when banister and jen
showed good enough ones earlier...
I also suggest that you stop suggesting
people do things ...
