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Q: Benign Ms

asked by: bag351 on November 18th, 2005

New User

Hi,
i was diagnosed in november 2003. I had what was diagnosed as uveitis during summer of 2003 and experienced tingling on entire left side (not the face) in november 2003. I was treated with steroid drip. Mri showed multiple lesions. Spinal fluid showed no antibodies. I started on betaseron in january 2004. Six weeks after starting the betaseron I experienced sensory symptoms (lost temperature sensation) in right hand. At this point I have a lot of numbness on large parts of my body and I experience persistent tingling in my left hand (and loss of some strength and dexterity in that hand). I may be experiencing some decline in cognitive processes but i'm also getting older. My question...Has anyone else experienced only sensory symptoms and feel you may have benign ms? Did you start/are you staying on your abc drug? Have you discussed the issue with your neurologist? Would love any feedback or discussion. Thanks. Beth

Replies(7)

deric

replied on November 26th, 2005

New User

Hi I was dx in spring of 2000 with on, had an mri..All my sensory sx are very weak and only last minutes at a time ie numbness, needles/pins..Think i'm between benign/rr 2 symptoms i'm not sure about attaching to the ms are ear ringing and some erectile dysfunction that I later learned could be ms symptoms..I take no abc drugs just have used diet/supplements, my neuro told me to wait on the meds as did my gp. Deric

bag351

replied on November 27th, 2005

New User

Benign Ms

Deric,
thanks for your input. When I was diagnosed the abc drugs were a given. My neurologist never suggested waiting to assess the course of my illness. I'm seeing another neurologist this week who thinks that you can predict the course of a patient's ms. He believes millions of dollars are spent treating patients who's ms would follow the same course with or without the medication.
I've heard that ed can be a consequence of ms. Ear ringing sounds like it could be a consequence of ms. Best of health and post more about your use of alternative medicine if you get a chance. Beth

oopoopoop

replied on November 29th, 2005

Extremely eHealthy

Two years ago I was diagnosed with severe optic neuritis. Although I am at high risk for ms, because my father had it, my consultant advised me to wait to see if any other symptoms develop before doing any tests. No drugs at all were prescribed.

Since then, I have been taking high doses of vitamin d, plus linseeds, lecithin, and essential fatty acids. So far (touch wood) I have had no other symptoms, other than very poor short term memory which may or may not be related.

It does seem, if you look around, that a lot more people have some minor versions of symptoms associated with ms than are actually diagnosed with it, no different from what some of the people with "benign ms" seem to have, but without having bothered to look into it. The either/or of ms may be wrong -- it seems that there is a very big continuum of symptoms, and some of the people who are being medicated might never have had any progression.

deric

replied on November 29th, 2005

New User

Hi poo, mine was severe on too! I have taken to a veg diet since dx and use hempseed oil as my essential fatty acid atleast twice a day. I agree my gp even said how do you know if your treating a remission and praise the meds. For benign ms I feel the best cases never become a stat because they never see a Dr.

luckyMSgirl

replied on November 3rd, 2007

New User

Anyone Like Me?

Was diagnosed in 1978, sole symptoms were numbness, tingling and optic neuritis. No follow-up symptoms until August of this year -- yeah, close to 30 years symptom-free. Tingling and numbness only this time, responding nicely to preds.

Has anyone on this network had this sort of experience? Just curious.

Users who thank luckyMSgirl for this post: AnnieO

AnnieO

replied on May 21st, 2008

New User

Lucky MS girl

I was so relieved to read your letter. 32 years ago I was diagnosed as having MS after a bad bout of numbness and tingling but wasn't TOLD of the diagnosis. I was a young mum of 22 so the doc decided to tell me I had some viral complaint and see what happened. Three years later I began to loose my hearing and have bouts of vertigo but I had changed doctors & moved to the other end of the country and no reference was ever made to that earlier diagnosis. I finally got hold of my own medical noted just a few weeks ago and read the truth. Now I can track all the little episodes of vertigo, gradual loss of hearing, leg pains etc over the years, but my present doctor refuses to consider MS as she says I am too well!!! At the moment I'm going mad trying to get someone to take me seriously.
Who can I talk to???

lialia

replied on May 10th, 2009

New User

benigng ms and sweating

I have had only temp visual problems and tingeling on left side, but lately I have found that it is very easy for me to sweat

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