Epilepsy Forum - Infant Seizures
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Infant Seizures

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radar135

New User, Becoming EHEALTHy
Joined: 06 Aug 2003
Posts: 1
Location: Battle Creek, Michigan
Infant Seizures
Posted: 08-06-03 14:39pm

Hi everyone! My son has not actually been diagnosted with epilepsy but as I understand the definition it is any one having had more that one seizure. I was just wondering if there are any other parents out there who have been through this or are going through it currently. My son, cadin, is 2 months old and he has been having seizures since he was 2 days old. Our nuerologist has told us that these are not infantile spasms. He has had 4 ct scans, mri, mra, spinal tap 5 or 6 eegs and still no diagnosis. We are taking him for a video eeg and a p.E.T. Scan next week. He is currently taking phenobarbital, dilantin and topamax. After adding the topamax his seizures have finally come under control. He only has 2 or 3 a day now, lasting just a few seconds. Without meds he has seizures every ten minutes lasting between 1 and 2 minutes. These seem to be partial simple seizures, I think. He has no loss of consciousness(spelling?) and they always start in his left arm and sometimes they spread to his right arm. Other than these seizures he is a perfectly healthy baby. Sorry I rambled on and on, but so far I can find nothing written anywhere that sound like this. If anyone out there can give me some insight, that would be great. Thanks.

Virginia
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mancinifla

New User, Becoming EHEALTHy
Joined: 13 Sep 2003
Posts: 4
Location: sw florida
Sooooooooo-how Are You
Posted: 09-16-03 23:12pm

Sounds like my son but his first one was at almost 20 months. He is on only phenabarb currently & I think we might have it under control at a therapeutic level of 38...
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Anne Grress

New User, Becoming EHEALTHy
Joined: 16 Sep 2003
Posts: 2
Location: GA
Infant Seizures
Posted: 09-17-03 00:08am

Dear virginia,
when my second son was born, he had "tremors" that looked like seizures. My doctor took some blood and found out that it was calcium deficiency (this was in 1972, long before extra calcium was routinely recommended in pregnancy). We had liquid drops to put in his formula, and by the second week, there were no more tremors/seizures. This is just a thought, because the medication you describe him taking is a lot of different neurological "depressants" (for lack of better word).
Best wishes, prayers and love electronically sent your way,
anne
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bbbecki78

New User, Becoming EHEALTHy
Joined: 28 Jan 2008
Posts: 5

Posted: 01-28-08 20:33pm

I can absolutly relate. My son began having siezures as 4 months (he is now 5 1/2 months) and he also has developmental delays. He is not playing with toys, smiling or rolling over. He has had one abnormal EEG and has another one scheduled along with an MRI, hearing test, vision test and birth to three services. He was on 60 mg of phenobarb and was switched today to topomax as he has been still having about 20 siezures per day. It is so devestating to watch and hard to stay positive but I am doing the best I can. It is encouraging to know that I am not alone. My son has not been diagnosed yet besides being told he has epilepsy as that is only the act of having mulitple seizures, what is causing them we don't know.
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Ginge31

New User, Becoming EHEALTHy
Joined: 29 Jan 2008
Posts: 5
Location: , England
seizures
Posted: 02-03-08 19:02pm

Hi i have a web site that i have found useful in the past. it is an english site but i receive a news letter from them every month. sometimes they have good stories and advise.

www.epilepsyresearch.org.u k

hope you find something useful. they may even be able to give you an american site if you ask them.
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truckdad

New User, Becoming EHEALTHy
Joined: 26 Feb 2008
Posts: 1
New member-describe seizures?
Posted: 02-26-08 10:48am

Hi all,

I'm currently in the beginning "tests" stages with no diagosis yet for my 1 month old.

I was wondering if any of you would consider describing what you are seeing in your infants when you indicate seizure?

I have a one month old with some very vague, hard to categorize symptoms, but on most forums/sites there are no actual descriptions by parents of very young infants of what they are seeing.

I apologize if this is inappropriate - but we are just trying to gather as much info as possible.
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sarasmom

New User, Becoming EHEALTHy
Joined: 27 Mar 2008
Posts: 2
Describing seizures
Posted: 03-27-08 16:01pm

when my daughter just turned a year old, she had a seizure. her arms were twitching, pumping her hands. her eyes were rolling in around in her head and her breathing was a short quick breath every 20 seconds or so. She was unresponsive to her dad's voice and turned blue. This happened again almost 4 months to the day. It was the second time that the doctors actually diagnosed it a seizure. Test after test, they found out it was her low iron which was causing the seizures. Iron is what helps give you the oxygen to breath, from what i understand.

I implore everyone with seizing children and no diagnosis of why to get their iron checked!!! I hope this helps truckdad.
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sarasmom

New User, Becoming EHEALTHy
Joined: 27 Mar 2008
Posts: 2
Describing seizures
Posted: 03-27-08 16:03pm

I forgot, my friends daughter had a seizure, but it was a silent seizure. She wasn't able to keep herself up, her heartrate was really fast and so was her pulse. She was staring off into space and wasn't acting herself. This kind of seizure i think is the worst because it's not very detectable.
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pfsnashville

New User, Becoming EHEALTHy
Joined: 07 Jun 2008
Posts: 1
seizures
Posted: 06-07-08 22:44pm

My mom, my sister, my daughter and my nephew all had seizures as infants all caused by calcium defiencies. They tested for calcium but it was a specific calcium that came in low. They all were medication until the calcium was built up then the medication reduced. All are fine and no more seizures since.
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Kristin Leopoldino

New User, Becoming EHEALTHy
Joined: 14 Jun 2008
Posts: 1
Infant seizures
Posted: 06-14-08 20:26pm

Hi Virginia... I am responding to you because I, too, have a 2 month old daughter who has been having the same thing since she was 6 weeks old. She, too, is a normal happy baby when she is not seizing or completely drugged up. She is on Phenobarb and we just recently started Topomax just yesterday. I was curious how your son has taken to that and what your dosage is? How much Does he weigh? we have had all the tests and every thing has come back normal. This is absolutley devastating and we are thinking of going to boston childrens hospital for a second opinion. Did you get one? I am interested in hearing back from anyone about this topic. We currently have about 5-7 seizures a day, mostly when she is going to sleep or coming out of it. They have only recently gotten a bit longer in nature. Doc thinks she will grow out of this? Is that what yours says?
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patsuse

New User, Becoming EHEALTHy
Joined: 04 Jun 2008
Posts: 2
infants
Posted: 06-15-08 04:47am

Does anybody have an infant who has panhypopituitarism, optic nerve dyplasia and epilepsy, our babe is 8 months old, would really like to share info. Ta Pat
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