Joined: 06 Aug 2003 Posts: 1 Location: Battle Creek, Michigan
Infant Seizures Posted: 08-06-03 14:39pm
Hi everyone! My son has not actually been
diagnosted with epilepsy but as I
understand the definition it is any one
having had more that one seizure. I was
just wondering if there are any other
parents out there who have been through
this or are going through it currently.
My son, cadin, is 2 months old and he has
been having seizures since he was 2 days
old. Our nuerologist has told us that
these are not infantile spasms. He has
had 4 ct scans, mri, mra, spinal tap 5 or
6 eegs and still no diagnosis. We are
taking him for a video eeg and a p.E.T.
Scan next week. He is currently taking
phenobarbital, dilantin and topamax.
After adding the topamax his seizures have
finally come under control. He only has 2
or 3 a day now, lasting just a few
seconds. Without meds he has seizures
every ten minutes lasting between 1 and 2
minutes. These seem to be partial simple
seizures, I think. He has no loss of
consciousness(spelling?) and they always
start in his left arm and sometimes they
spread to his right arm. Other than these
seizures he is a perfectly healthy baby.
Sorry I rambled on and on, but so far I
can find nothing written anywhere that
sound like this. If anyone out there can
give me some insight, that would be great.
Thanks.
Virginia
|
mancinifla
New User, Becoming EHEALTHy
Joined: 13 Sep 2003 Posts: 4 Location: sw florida
Sooooooooo-how Are You Posted: 09-16-03 23:12pm
Sounds like my son but his first one was
at almost 20 months. He is on only
phenabarb currently & I think we might
have it under control at a therapeutic
level of 38...
|
Anne Grress
New User, Becoming EHEALTHy
Joined: 16 Sep 2003 Posts: 2 Location: GA
Infant Seizures Posted: 09-17-03 00:08am
Dear virginia,
when my second son was born, he had
"tremors" that looked like seizures. My
doctor took some blood and found out that
it was calcium deficiency (this was in
1972, long before extra calcium was
routinely recommended in pregnancy). We
had liquid drops to put in his formula,
and by the second week, there were no more
tremors/seizures. This is just a thought,
because the medication you describe him
taking is a lot of different neurological
"depressants" (for lack of better word).
Best wishes, prayers and love
electronically sent your way,
anne
|
bbbecki78
New User, Becoming EHEALTHy
Joined: 28 Jan 2008 Posts: 5
Posted: 01-28-08 20:33pm
I can absolutly relate. My son began
having siezures as 4 months (he is now 5
1/2 months) and he also has developmental
delays. He is not playing with toys,
smiling or rolling over. He has had one
abnormal EEG and has another one scheduled
along with an MRI, hearing test, vision
test and birth to three services. He was
on 60 mg of phenobarb and was switched
today to topomax as he has been still
having about 20 siezures per day. It is
so devestating to watch and hard to stay
positive but I am doing the best I can.
It is encouraging to know that I am not
alone. My son has not been diagnosed yet
besides being told he has epilepsy as that
is only the act of having mulitple
seizures, what is causing them we don't
know.
|
Ginge31
New User, Becoming EHEALTHy
Joined: 29 Jan 2008 Posts: 5 Location: , England
seizures Posted: 02-03-08 19:02pm
Hi i have a web site that i have found
useful in the past. it is an english site
but i receive a news letter from them
every month. sometimes they have good
stories and advise.
hope you find something useful. they may
even be able to give you an american site
if you ask them.
|
truckdad
New User, Becoming EHEALTHy
Joined: 26 Feb 2008 Posts: 1
New member-describe seizures? Posted: 02-26-08 10:48am
Hi all,
I'm currently in the beginning "tests"
stages with no diagosis yet for my 1 month
old.
I was wondering if any of you would
consider describing what you are seeing in
your infants when you indicate seizure?
I have a one month old with some very
vague, hard to categorize symptoms, but on
most forums/sites there are no actual
descriptions by parents of very young
infants of what they are seeing.
I apologize if this is inappropriate - but
we are just trying to gather as much info
as possible.
|
sarasmom
New User, Becoming EHEALTHy
Joined: 27 Mar 2008 Posts: 2
Describing seizures Posted: 03-27-08 16:01pm
when my daughter just turned a year old,
she had a seizure. her arms were
twitching, pumping her hands. her eyes
were rolling in around in her head and her
breathing was a short quick breath every
20 seconds or so. She was unresponsive to
her dad's voice and turned blue. This
happened again almost 4 months to the day.
It was the second time that the doctors
actually diagnosed it a seizure. Test
after test, they found out it was her low
iron which was causing the seizures. Iron
is what helps give you the oxygen to
breath, from what i understand.
I implore everyone with seizing children
and no diagnosis of why to get their iron
checked!!! I hope this helps truckdad.
|
sarasmom
New User, Becoming EHEALTHy
Joined: 27 Mar 2008 Posts: 2
Describing seizures Posted: 03-27-08 16:03pm
I forgot, my friends daughter had a
seizure, but it was a silent seizure. She
wasn't able to keep herself up, her
heartrate was really fast and so was her
pulse. She was staring off into space and
wasn't acting herself. This kind of
seizure i think is the worst because it's
not very detectable.
|
pfsnashville
New User, Becoming EHEALTHy
Joined: 07 Jun 2008 Posts: 1
seizures Posted: 06-07-08 22:44pm
My mom, my sister, my daughter and my
nephew all had seizures as infants all
caused by calcium defiencies. They tested
for calcium but it was a specific calcium
that came in low. They all were
medication until the calcium was built up
then the medication reduced. All are fine
and no more seizures since.
|
Kristin Leopoldino
New User, Becoming EHEALTHy
Joined: 14 Jun 2008 Posts: 1
Infant seizures Posted: 06-14-08 20:26pm
Hi Virginia... I am responding to you
because I, too, have a 2 month old
daughter who has been having the same
thing since she was 6 weeks old. She, too,
is a normal happy baby when she is not
seizing or completely drugged up. She is
on Phenobarb and we just recently started
Topomax just yesterday. I was curious how
your son has taken to that and what your
dosage is? How much Does he weigh? we have
had all the tests and every thing has come
back normal. This is absolutley
devastating and we are thinking of going
to boston childrens hospital for a second
opinion. Did you get one? I am interested
in hearing back from anyone about this
topic. We currently have about 5-7
seizures a day, mostly when she is going
to sleep or coming out of it. They have
only recently gotten a bit longer in
nature. Doc thinks she will grow out of
this? Is that what yours says?
|
patsuse
New User, Becoming EHEALTHy
Joined: 04 Jun 2008 Posts: 2
infants Posted: 06-15-08 04:47am
Does anybody have an infant who has
panhypopituitarism, optic nerve dyplasia
and epilepsy, our babe is 8 months old,
would really like to share info. Ta Pat
The site is not a replacement for professional medical opinion, examination, diagnosis or treatment. Always seek the advice of your medical doctor or other qualified health professional before starting any new treatment or making any changes to existing treatment. Do not delay seeking or disregard medical advice based on information written by any author on this site. No health questions and information on eHealth Forum is regulated or evaluated by the Food and Drug Administration and therefore the information should not be used to diagnose, treat, cure or prevent any disease without the supervision of a medical doctor. Posts made to these forums express the views and opinions of the author, and not the administrators, moderators, or editorial staff and hence eHealth Forum and its principals will accept no liabilities or responsibilities for the statements made.
Schizophreniahealth
This page was last updated on June 11, 2008
