Hello dreamerinkw
saw your message, have just joined forum myself.Suggest you have a look further down the list of topics in this section, header: wpw ablation, seems like alot of useful info and experiences there. Personally i've had it since birth and am 44 now, only been on meds for the last couple of years but I am considering ablation, that's to say burning away the wrong electrical pathway, seems fairly painless and at least 90 % successful. Anyway take a look, catch you later.
Paul

Paul....I did read a lot of info re abalation.

What I want to do is talk to someone else who has wpw and sounds like that's you.
Can you tell me, you are 44 and what are your experiences with wpw?

How many times do you have attacks, problems?

What are your problems like? Racing heart and other things?

Were you born with yours or did you find out later in life?
The message board can be difficult for me to remember to sign into.

thank you

Hi- I just joined this forum to meet people who have wpw like me. I'm 21 years old and was diagnosed with wpw one month ago. Since being diagnosed with wpw I have had the ablation surgery. I had the surgery two weeks ago and unfortunately it was unsuccessful. So now I am on a heart monitor for a month to see if there is a pattern to when I get my abnormal heart beat. I don't want to be on heart medication for the rest of my life. Has anyone out there had an unsuccessful ablation and then had another ablation that has worked? Thank you!

Dear kkrieger47......
If you were just diagnosted a month ago with wpw, why did they do abalation right away? Was medication not an option?
What were all your symptoms with this?

Thank you! Dreamer

Dreamerinkw~ I was put on toprol and flecanaide for two weeks, my electrophysiologist told me surgery was the best option because I am an avid runner. Another reason is because I would faint at least once a month with my attacks. It was also interrupting me with my school and work. How are you doing?

Hello, here come a quite old wpw sufferer. I'd my first palpitation at 6 yrs old. I just live with it (one palpitation per year) medication: quinidin started at 15 yrs old. 1st pacemaker in 1982. Ablation in 1985 (2nd pacemaker). 1994 3rd pacemaker with 2 leads (pacer failed end up with complete heart block). 2002 4th pacemaker (pcd). 2005 a-fib found. Oct-05 found out i've wpw type b and the 1985 his bundle ablation left with a anterograde accessory pathway. Dr prescribed flecainide but didn't take it now. It is not working and my blood result is a mess. This is why I give permission to myself not to take.

I'm also in "heart ablation - wpw syndrome". Feel free to ask questions, I would answer if I had or I know. Take care all wpwers.

Pika.

In the beginning of 2009 I was diagnosed with WPW but have had symptoms for over 15 years that had caused me to alternate my lifestyle. I mentioned the symptoms to my PCP several times and she said that I needed to exercise more because I was out of shape. The symptoms were provoked by exertion so I just adjusted my life to prevent the symptoms which were quite severe when they presented. Finally, when I went to the hospital for another procedure the EKG showed WPW and I was referred to a cardiologist who got the ball rolling and I met with the EP and had my ablation done about three weeks ago. I was so worried about the possible complications especially heart block and I know poor EP was probably annoyed with all my questions and worries. The procedure was so comfortable although it took 5 hours. I did not even get sedated expect when my heart was paced. Post-procedure, I felt great and within two days I was jogging and doing all the things I hadn't done for years. No matter how much I provoke my heart, I am not able to reproduce the symptoms. I feel like a new person. It is the best decision I have ever made.

I was diagnosed with WPW about 13 years ago. At the time I was getting episodes every month or so. They felt like my heart was racing, I was a bit dizzy and my chest/neck felt a bit "wierd". I found on my own that laying on the floor and taking a deep breath helped me to stop the episode almost immediately. During diagnosis I had all the usual investigations including an EP test to locate the accessory pathway. The eventual conclusion was that I wasn't particularly high risk, and so should not have an ablation done. So I've lived with it for the last 13 years (without any medication either). I have always wondered though, do other WPW sufferers feel constantly tired? I do, and it's generally worse after exercise.

Martin

Our son was given a diagnosis about 6 years ago at the age of 14 after a sudden onset of symptoms. He had an ablation a month later and were told it was successful. My question is this, has anyone who has ever had the ablation experienced chest pain or heaviness much after the surgery, I am talking a couple years after and then progressively since maybe once yearly? Each time he has sought treatment he was told there was no problem.

my 9 year old son had the ablation done in april. we went back last week for a follow up and the ekg shows wpw has returned. we go in a couple of weeks to discuss our options. i am not sure why right after surgery he would have a normal ekg now its not a normal ekg.

let me know what they intend to do for him, thats too bad it was not successful. good luck

Hello, I am a 21 year old female who has been diagnosised with wpw since I was 4 years old. I have not had a fast heart rate since I was very young. However, I have palpatations and fluttering at times. I run every day and just recently had my second ablation done. They ablated my heart 26 times. I had it done around may 1 2009. On sundays when I go a little bit farther I become short of breath, have chest pain, feel nausous, and one time had wheezing....(you must understand I am a marathon runner, I have run two of them)....this running a little farther shouldn't be a problem for me. It seems when I get too hott, or if its humid out I have these symptoms. What do you all think? I am seeing my cardiologist on friday the 31st. Thanks!

I should also explain that my ablation was not successful....He could not get my heart to go into the arrythmia and says it has become weak and shouldn't be a concern but to keep up with a cardiologist....I also have mitral valve prolapse.....

i think seeing the card is a good idea. did they ablate on the left side of your heart?

the more recent EKG show no sign of wpw....still having chest pain when running in the warmer weather. I had wheezing one time and nausous a few times....waiting till July 31 for check up....any ideas what it could be??

hi all,
I was diagnosed 3 yrs ago after suddenly having palpatations faint/dizzy spells. I was told I was born with it but ageing (41 yrs at diagnosis) stress probably brought it on. I tried ablation surgery 2 yrs ago as I have always been an active person didn't like feeling worn out most of the time. After over 2 hours under local anesthetic I didn't want to go on as the burning hot waves from my chest up my throat got unbearable. 2 yrs later I tried again under general anesthetic which after 5 hours surgery my doctor said he was glad I had chosen to be put out as it was a long difficult procedure but they had been successful. Post surgery symptoms were heavy chest which felt it had been used as a punch bag lol tiredness. But 2 months later I am still feeling worn out have had some minor palpatations. Worried now that my wpw has repaired itself. My surgeon said I needed to come back 3 months after surgery to check all is still ok but it feels to me like I am the same but it's nice to to hear most op's are successful worth going for. I am just one of the unlucky ones unfortunately.
Best wishes all...

Sue

Hello all, My son is 18 now when he was 17 last dec he was diagn with wpw he was rushed to surgery he had the ablation did great for 3 months started having some symptoms took him back to hosp it had returned so we had another ablation done he is doing ok that was in march except he has been real tired latley and a little mean anyone one know if this has anything to do with wpw

Hi wolfemom, The reason I knew something was wrong with me 3 years ago was because of the tiredness. I had always been a busy person by choice never one for lounging around and over the course of a year I became tired and lazy not having the energy to do the things I wanted to do. I thought it was just viruses I was fighting off over the year until I had the palpatations and was then diagnosed.
I think lack of energy is mine and a lot of others main symptom so this could be the case with your son. He is however still in his teens so it could just be hormones and stuff. It wouldn't hurt to get him checked out with an ECG.
Hope everything is ok though, take care...

hi.I am A DOC with WPW syndrome.can answer your querries.
If you have questions,you can put it up.