I stumbled upon this site after doing alot of research so i'm hoping someone has maybe experienced what we are going through.
About 2 weeks ago, I picked my then almost 8 mo old son up from his carseat as he was waking up from his nap. He started shaking. His head was bobbing back and forth like someone with parkinsons disease. I put my hand on the back of his head and he calmed within seconds. It lasted all of 30 seconds if that. I was freaked out and concerned but decided to watch to see if anything like this happened again since nothing like this had ever happened before.
Yesterday morning my son (now 8 mos) was napping in his bouncer. He woke up and I went in to get him...He'd been up about 5-10 minutes by the time I got to him. He was playing with his toys and seemed very awake and happy. I took him to his room to change his clothes. I opened up his closet door and again his head started shaking. He doesn't lose consciousness, his eyes don't roll back in his head, he doesn't seem stiff after, and he's not foaming at the mouth or sticking out his tongue or anything of that nature. I immediately called the ped's office who got him right in. I told them about the two episodes I had witnessed. He checked his reflexes and asked me about developmentally where my son was at with different things. My son has always been ahead developmentally. He crawled at 4 mos, he sits up on his own, he pulls himself up, and has even tried to walk with a laundry basket in front of him. Our ped is very encouraged by his development and stated outwardly he appears to be a healthy, happy, responsive little guy. He did suggest that we get an eeg done on his brain to see if anything is actually going on as what i'm describing is apparently not a typical seizure. Our eeg is tuesday...My son has to be sleep deprived for 4 hours before he gets the test.
I guess i'm beside myself as he appears to act and develop normally. Everything i've read on infant seizures or spasms has a poor prognosis and what my son is experiencing isn't necessarily inline with the descriptions of the episodes. I'm wondering if any other parents have experienced this with their infant or if anyone knows anything about infants having epilepsy? Is it always a poor prognosis?
Thanks in advance for any stories or advice you can give.