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Q: Concerned Mother
asked by: small on October 12th, 2005
New User
I stumbled upon this site after doing alot of research so i'm hoping someone has maybe experienced what we are going through.

About 2 weeks ago, I picked my then almost 8 mo old son up from his carseat as he was waking up from his nap. He started shaking. His head was bobbing back and forth like someone with parkinsons disease. I put my hand on the back of his head and he calmed within seconds. It lasted all of 30 seconds if that. I was freaked out and concerned but decided to watch to see if anything like this happened again since nothing like this had ever happened before.
Yesterday morning my son (now 8 mos) was napping in his bouncer. He woke up and I went in to get him...He'd been up about 5-10 minutes by the time I got to him. He was playing with his toys and seemed very awake and happy. I took him to his room to change his clothes. I opened up his closet door and again his head started shaking. He doesn't lose consciousness, his eyes don't roll back in his head, he doesn't seem stiff after, and he's not foaming at the mouth or sticking out his tongue or anything of that nature. I immediately called the ped's office who got him right in. I told them about the two episodes I had witnessed. He checked his reflexes and asked me about developmentally where my son was at with different things. My son has always been ahead developmentally. He crawled at 4 mos, he sits up on his own, he pulls himself up, and has even tried to walk with a laundry basket in front of him. Our ped is very encouraged by his development and stated outwardly he appears to be a healthy, happy, responsive little guy. He did suggest that we get an eeg done on his brain to see if anything is actually going on as what i'm describing is apparently not a typical seizure. Our eeg is tuesday...My son has to be sleep deprived for 4 hours before he gets the test.

I guess i'm beside myself as he appears to act and develop normally. Everything i've read on infant seizures or spasms has a poor prognosis and what my son is experiencing isn't necessarily inline with the descriptions of the episodes. I'm wondering if any other parents have experienced this with their infant or if anyone knows anything about infants having epilepsy? Is it always a poor prognosis?
Thanks in advance for any stories or advice you can give.
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mylilangel06
replied on November 1st, 2005
New User
Hi
Hi how are you.Sorry to hear about your son. I love children and it breaks my heart when there is something wrong with them.I have epiilesy.Your son could be shaking because if he may hit his head fall or anything to do with the brain can cause seizures.Even when you were pregant with him if his head get smuch it can cause seizures.I know someone never had a seizure intill she got pregant.They did a eeg on her and saw when she was born her part of her head was smuch.Well hope everything goes good.Let me know what happens with your son.
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small
replied on November 1st, 2005
New User
Thanks for your reply.
My son had his eeg done and his test results came back normal. At this time with no regression in his development and no other episodes since, the drs have decided to take a wait and see approach. If he has anymore episodes we will do further testing like a ct scan and mri but at this point the drs see no reason that he should be medicated and put through anymore testing with no more shaking and still developing ahead of schedule :)
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kayakmom
replied on November 5th, 2005
Experienced User
I hope that your son keeps doing well with no more episodes!! It is good to keep an eye on him and report if you see anything else happening. You did right to have the eeg even though the pede did not think it sounded like seizures.

Some seizures in infancy are not as scary as the infantile spasms. There are many types of seizures.

I hope that he keeps doing well. Did you see a pede neuro for the eeg?
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small
replied on November 6th, 2005
New User
We had the eeg done at one of the best ped neurology hospitals in the country (thank god we live 45 minutes away from it :d ). The neurologist then looks over the test and makes the determination. Our regular ped is linked to this hospital so our ped and the ped neurologist conferred and decided no other treatment would be necessary at this time.
Thank you for your response. He hasn't had any more episodes since (knock on wood) so i'm hoping it was just a passing thing. I'm still observing him like crazy to make sure we aren't seeing anything else though. I feel like a paranoid nut now :d
thanks again!
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kayakmom
replied on November 6th, 2005
Experienced User
Sounds like you are doing a good job! Good you are near a good place. So good you have not seen more
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