Yes shirl...I do, but I am looking for others that do also...

Thanks sweetie. ;)

imshirl :d

Hi I too have been told that I have a tarlov cyst, but I should forget about it as it is not the cause of my symptoms.
I have seen 1 neurosurgeon and 1 neurologist and am having a hard time convincing them that the cyst is the cause of my problems as they cant find anything else. Is anyone else experiencing the same and do you know of any docotr in london who might help?

Nkaushal,

it is often difficult to get doctors to admit that the tarlov cyst is causing pain. Most believe what they have read in textbooks and the textbooks state that tarlov cysts do not cause pain...The doctors cannot think outside the box or book in this case....You need to see a doctor in france...Dr. Matriot...I will find his address for you....

Hi,
i have just been diagnosed with a tarlov cyst. 1.4cm.
I have been so miserable and my doctor attributed to a ruptured disc.

She never said a word about the cyst.

I read it on my mri report. I have made an appointment with a neuro surgeon who deals with the spine.

I am very uncomfortable though. Constant pressure on right side and lower back and buttocks. From mid back to the back of my leg throbbing by evening. Right side is painful only.

Hazlestreet,

i am curious...What does your mri state about your herniated disc? The pain you feel could be coming from the lumbar depending on the levels of the spine that are affected.....



Gjzh

Hi,
my doctor says that l5/s1 bulging to the left with a slight rupture.
My pain is completely on my right side.

Hazel

Hazel,

you need to find a nss (neuro spinal surgeon) that believes that a tarlov cyst can cause pain. Many do not believe that it does and in fact there are only two surgeons doing surgery that we know of for certain. There are a few others, but these two surgeons have done more surgeries on the tarlov cyst than any one else.


Those surgeons are Dr. Long at hopkins in baltimore and Dr. Henderson at georgetown university hospital in washington d.C.


your pain could be coming from the bulging disc, but the cyst causes the same kind of pain...Pain down the leg and into the feet making walking difficult...Of course, it depends if your cyst is a communicating cyst...