Cystic Fibrosis

I dont know how much I can help but I will try. Your nephew needs the more fattening foods but if he is having so much trouble the docs prolly need to up his enzymes. That is about all I can tell you my cf is primarily focused on my digestive system too but the more I eat im supposed to take a certain amount of enzymes and the more the fattening the better but this is only personal opinion always check with his health care providers

Kimandcarl please please please read the following:

the digestive side of cf is pretty nasty, foods are tough to digest and the caloric intake needed for a pwcf is 2.5 times the norm!

The specific carbohydrate diet is not a cure but a damn good control. My wife has cf and this diet helped her so much it was like night and day.


Here are two books witha all the information you need to know. I urge you to get them and just try it. It's hard work, lots of prep, but the results are better than the alternatives. Please read teh book and understand how teh diet works before jumping in it will help out greatly.

"food and the gut reaction" by elaine gotschall

and

"breaking teh vicious cycle" by elaine gotschall

i urge anyone with cf to read and try the diet.
:)

Hi, my son had alot of stomach probs when he was younger and in the end he got totally blocked, he could not go to the toilet. He was vomiting and in extreme pain and constipated.This lasted for about 12 days- but it felt like 30. We had to give him strong laxitive medicine for it to go. This worked in the end. We don't know if it was where we did not get the creon right or from a mucus block. That happen about 9 years ago he's been fine ever since, but as soon as he feels abit blocked we get him drinking lots of water, and we are aware that when he is constipated to get him to the doctors quick for some strong laxitive.

I too have cf. My cf, until recently (i'm 39) manifiested itself as more of a digestive enzyme malfunction. I had to watch what I eat. I was fortunate, I have a very healthy appetite. I do avoid fats at all costs. If I eat fats I get very bad cramps, and loose stools. My symptoms although digestive related seems quite the opposite of your sons though. I don't think there was a time in my life I have been constipated.

hi, I would just like some more information on your cf. I was reading that your cf effects your digestive system more. I have a 8 month old who has cf and has loose stools all the time. she has to have a lot of creon but doesn't always work. the doctors think that her cf effects her digestive system more than her lungs. I would like some information please on what you do that helps you with your stools or any advice on what I can do. my daughter has a scoop of creon for every gram of fat.