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kimandcarl

New User, Becoming EHEALTHy
Joined: 22 Sep 2005
Posts: 1
Location: usa
Cystic Fibrosis
Posted: 09-22-05 21:47pm

I hear more about cf effecting the lungs but my nephew shows more signs of stomache pain. He just can't go sometimes. My sister has changed his diet so that he is not eating such fattening foods but it does not help. I'd like to know more about how cf effects his digestive track. :cry:
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Jessica_CF20

Experienced User , Rather EHEALTHy
Joined: 02 Nov 2005
Posts: 207
Location: NM
Cf
Posted: 11-02-05 20:01pm

I dont know how much I can help but I will try. Your nephew needs the more fattening foods but if he is having so much trouble the docs prolly need to up his enzymes. That is about all I can tell you my cf is primarily focused on my digestive system too but the more I eat im supposed to take a certain amount of enzymes and the more the fattening the better but this is only personal opinion always check with his health care providers
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meatroach

New User, Becoming EHEALTHy
Joined: 06 Nov 2005
Posts: 3
Location: Vancouver BC

Posted: 11-06-05 13:41pm

Kimandcarl please please please read the following:

the digestive side of cf is pretty nasty, foods are tough to digest and the caloric intake needed for a pwcf is 2.5 times the norm!

The specific carbohydrate diet is not a cure but a damn good control. My wife has cf and this diet helped her so much it was like night and day.


Here are two books witha all the information you need to know. I urge you to get them and just try it. It's hard work, lots of prep, but the results are better than the alternatives. Please read teh book and understand how teh diet works before jumping in it will help out greatly.

"food and the gut reaction" by elaine gotschall

and

"breaking teh vicious cycle" by elaine gotschall

i urge anyone with cf to read and try the diet.
:)
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hiya

New User, Becoming EHEALTHy
Joined: 18 Dec 2005
Posts: 8
Location: uk

Posted: 12-18-05 17:40pm

Hi, my son had alot of stomach probs when he was younger and in the end he got totally blocked, he could not go to the toilet. He was vomiting and in extreme pain and constipated.This lasted for about 12 days- but it felt like 30. We had to give him strong laxitive medicine for it to go. This worked in the end. We don't know if it was where we did not get the creon right or from a mucus block. That happen about 9 years ago he's been fine ever since, but as soon as he feels abit blocked we get him drinking lots of water, and we are aware that when he is constipated to get him to the doctors quick for some strong laxitive.
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CeruleanOne

New User, Becoming EHEALTHy
Joined: 30 May 2006
Posts: 5
Location: San Mateo, CA
Me Too
Posted: 05-30-06 18:48pm

I too have cf. My cf, until recently (i'm 39) manifiested itself as more of a digestive enzyme malfunction. I had to watch what I eat. I was fortunate, I have a very healthy appetite. I do avoid fats at all costs. If I eat fats I get very bad cramps, and loose stools. My symptoms although digestive related seems quite the opposite of your sons though. I don't think there was a time in my life I have been constipated.
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