I hear more about cf effecting the lungs
but my nephew shows more signs of stomache
pain. He just can't go sometimes. My
sister has changed his diet so that he is
not eating such fattening foods but it
does not help. I'd like to know more
about how cf effects his digestive track.
:cry:
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Jessica_CF20
Experienced User , Rather EHEALTHy
Joined: 02 Nov 2005 Posts: 207 Location: NM
Cf Posted: 11-02-05 20:01pm
I dont know how much I can help but I will
try. Your nephew needs the more fattening
foods but if he is having so much trouble
the docs prolly need to up his enzymes.
That is about all I can tell you my cf is
primarily focused on my digestive system
too but the more I eat im supposed to take
a certain amount of enzymes and the more
the fattening the better but this is only
personal opinion always check with his
health care providers
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meatroach
New User, Becoming EHEALTHy
Joined: 06 Nov 2005 Posts: 3 Location: Vancouver BC
Posted: 11-06-05 13:41pm
Kimandcarl please please please read the
following:
the digestive side of cf is pretty nasty,
foods are tough to digest and the caloric
intake needed for a pwcf is 2.5 times the
norm!
The specific carbohydrate diet is not a
cure but a damn good control. My wife
has cf and this diet helped her so much it
was like night and day.
Here are two books witha all the
information you need to know. I urge you
to get them and just try it. It's hard
work, lots of prep, but the results are
better than the alternatives. Please
read teh book and understand how teh diet
works before jumping in it will help out
greatly.
"food and the gut reaction" by elaine
gotschall
and
"breaking teh vicious cycle" by elaine
gotschall
i urge anyone with cf to read and try the
diet.
:)
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hiya
New User, Becoming EHEALTHy
Joined: 18 Dec 2005 Posts: 8 Location: uk
Posted: 12-18-05 17:40pm
Hi, my son had alot of stomach probs when
he was younger and in the end he got
totally blocked, he could not go to the
toilet. He was vomiting and in extreme
pain and constipated.This lasted for about
12 days- but it felt like 30. We had to
give him strong laxitive medicine for it
to go. This worked in the end. We don't
know if it was where we did not get the
creon right or from a mucus block. That
happen about 9 years ago he's been fine
ever since, but as soon as he feels abit
blocked we get him drinking lots of water,
and we are aware that when he is
constipated to get him to the doctors
quick for some strong laxitive.
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CeruleanOne
New User, Becoming EHEALTHy
Joined: 30 May 2006 Posts: 5 Location: San Mateo, CA
Me Too Posted: 05-30-06 18:48pm
I too have cf. My cf, until recently
(i'm 39) manifiested itself as more of a
digestive enzyme malfunction. I had to
watch what I eat. I was fortunate, I
have a very healthy appetite. I do avoid
fats at all costs. If I eat fats I get
very bad cramps, and loose stools. My
symptoms although digestive related seems
quite the opposite of your sons though.
I don't think there was a time in my life
I have been constipated.
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